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  1. Dragonflye

    Pancreas Transplant

    im using medtronic enlite and yes, everytime it alarms i am checking my sugar... on average (when i dont hypo) i will test 6+ times so i know i am definately hypo and not the sensor alarming for no reason :) the dr has no question whether i am hypo or not, its the severity and unpredictable...
  2. Dragonflye

    Pancreas Transplant

    I use the cgm almost 100% of the time, i was the 2nd person in my area to have funding granted for it :) most of the time it is waking me up to alert me i am hypo, however the hypo's are still lasting in excess of 10hours and even with that, i still have siezures at some point during these hypos...
  3. Dragonflye

    Best place to buy test strips?

    Having experienced a refused prescription in the past for test strips I have found more information about this... they cannot refuse you... after the incident i spoke to my GP and apparently they have to try and reduce the amount they are prescribing BUT it shouldnt be a t1 (or anyone on...
  4. Dragonflye

    Pancreas Transplant

    My doc said they usually do a pancreas transplant at the same time as a kidney, but they do pancreas on its own (which is what id be having) and he said it could be 5-10 years diabetes free, the main point for his consideration for me was apparently once your on insulin again then severe hypos...
  5. Dragonflye

    Pancreas Transplant

    Hello everyone, Its been a LONG time since I last logged on. I have posted before about my severe nighttime hypo's (no warning and them lasting 12hrs+ - on average i usually have my insulin pump suspended from 10 to 15hours when I have these). Well after having my baby that caused so many...
  6. Dragonflye

    Diet Milk...? (expressed)

    8lb12oz... still 4.7% below her birth weight but her weight is in perfect proportion to her length :) so it looks like my milk isnt low on calories :) as she's gaining at a steady rate and her measurements are all in proportion, the health visitor thinks i should continue doing what im doing and...
  7. Dragonflye

    Diet Milk...? (expressed)

    Hey guys :) I was wondering had heard of the following and if you think theres any merit to it... I saw my DSN yesterday and we had a discussion on why my daughter (almost 5 weeks old now!!!) is still not putting on much weight, still 5% below her birth weight and 1 of the thoughts we...
  8. Dragonflye

    Hypo all night

    ooops im getting panicy easy at the mo :oops: Chocolate is normally a last resort for me :) i normally get glucogel on prescription however my gp practice has changed the way the do repeat prescriptions now, I used to be able to phone, now i cant, i need to order through the chemist with the...
  9. Dragonflye

    Hypo all night

    I really hate nights like this :( for the last 5 hours i've been hypo, 1lt lucozade, my last 3 dextrogel, 1lt milk and chocolate... we are officially have nothing left with sugar :( im just hoping that i dont drop again as im on my own with my almost 4 week old angel and my 2 yr old monkey and i...
  10. Dragonflye

    I need to buy shares in lucozade...

    I've just been using lucozade out of habit :) I normally have glucogel but my doctors have changed the way they do repeat prescriptions and I'm now having issues getting it as frequently as I'm needing it, infact until I've seen a doc they wont let me order a repeat prescription. I'm on a tbr...
  11. Dragonflye

    I need to buy shares in lucozade...

    I've lost count of how many hypo's ive had in last month lol my pump is being changed on a daily basis and im still hypoing!!! oh the joys of diabetes and having a newish baby :lol: i'm on less insulin now than ive ever been (30-35units approx per day) stupid question but ill ask anyway...
  12. Dragonflye

    CGM

    Hi, I've had a loan cgm for the last 6 months due to pregnancy, however from what my dsn said my pct have authorised funding for my own cgm and I have been told I am the 2nd person under my pct who has had this funded. You wont get it automatically but due to lack of hypo awareness you could...
  13. Dragonflye

    Not been on in a while - Update

    19 days and Amelia is still under midwife care!!! A few issues still but her weight gain is still very slow... although 1st time midwife has said that the HUGE weight loss was artificial weight she lost due to my diabetes :) She's still a little poppet :D sleeps most of the night ;) and my...
  14. Dragonflye

    Refused an ambulance on a 999 call

    No change of story :) I usually hate calling for an ambulance and only do so in dire circumstances, usually we use alternative transport (taxi) however on this occasion we couldnt afford... but circumstances being as they were and I was unable to walk to the hospital I didnt feel I had a choice...
  15. Dragonflye

    Refused an ambulance on a 999 call

    Well Milkyway complaints procedures have now been put into place. At the end of the day my situation was life threatening and this has now been confimed and as my treatment was delayed (this is a combination of inept a&e staff and ambulance call centre) my baby is suffering, which is again a...
  16. Dragonflye

    Refused an ambulance on a 999 call

    OK that may be your opinion however I may just add that my condition WAS life threatening, not only to myself but to my baby, I was lucky I got to the hospital when I did as my blood results indicated I should have been in a coma or at least very close to. As it happens my baby is now suffering...
  17. Dragonflye

    Not been on in a while - Update

    Hey :) just wanted to say we are still under midwife care as though Amelia is putting on weight, she's not putting on a lot (and thats after loosing a total of 13.1% of her birth weight) so is now still at 10% down from her birth weight. We do have the midwife on our backs, needs feeding every...
  18. Dragonflye

    Not been on in a while - Update

    Heyhey :) My c-section went ahead as planned and on 1st November at 9:58 I had my beautiful daughter Amelia, weighing a whopping 9lb3 :D The diabetes did cause a slight complication which was made worse by her being a little on the big side however we are both doing welland hoping to go home...
  19. Dragonflye

    Ketones

    I'm usually testing for ketones on a regular basis, if my sugars are above 13, or if im feeling sick :) i test the blood, i wasnt given a machine but i aquired 1 :) but apparently blood is a lot more accurate as ketones can take extra time getting into the urine so you could potentially show a...
  20. Dragonflye

    Not been on in a while - Update

    Well saw my diabetic team for the last time before I have the baby :D got to admit it was a positive experience... they are really impressed with how ive managed my diabetes during this pregnancy and thats even with all the issues i have had :) they are soooo impressed with me they want me to...
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