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I think you should remember that this Dr was a stand in who did not work at your hospital. There is a high chance he/she will not have had chance to read yours or anyone else’s notes prior to the start of the clinic. No doubt the Dr was dragged in at the last minute, without being briefed on...

I disagree. For years and until his retirement, my independent ophthalmic optician gave me a full eye check for free due to me being T1. This included full sight test, retina screening and glaucoma check. I was never “advised” that I needed to get new spectacles. I actually owe a lot to this...

Hi @Hayleyemma, I was really touched by your post as I spent all my latter years as a diabetic (T1) worrying my sox off (I had a kidney/pancreas transplant in 2006). Getting diabetic retinopathy was the first indication that my diabetes was not going well. This was spotted at a routine eye...

But here in England we have always paid for prescriptions, unless you qualify as exempt. It is quite unfair that everyone in the U.K. pays Tax and NI, yet only England pays for prescriptions. I would have though everybody should pay at least something, unless they have a chronic illness and...

I have also received pretty amazing treatment from the NHS, including many hospitals stays. If I'd had to pay for the 4 years of renal dialysis I received, not to mention a kidney transplant, followed years later by a simultaneous pancreas/kidney transplant, I would have been left destitute. I...

I have had similar experiences throughout my life. When I was age 15 at school, I did a talk on diabetes to my class as part of an English assignment. The whole class was really interested apart from one student who interrupted my talk by telling me I was incorrect. She said there are two...

I fully understand these frustrations, but feel we do need to be a little less touchy in some respects. Up until very recently diabetics were not advised to adopt a low carb diet, therefore bread, crackers and crumpets were perfectly fine for a diabetic person to consume as part of their diet...

I have spent most of my life feeling guilty about being ill. This isn't something I have put upon myself, but is from all the tutting and sighing or just plain silent treatment if I am too ill to even get out of my bed. It wasn't too bad when it was just T1, but since then I have had 2...

Before I received a kidney/pancreas transplant I would have hypos all the time. My BG could just plummet and I would have the worst hypos. I could go from feeling fine at work (desk job) then a few minutes later my heart would be pounding and my clothes soaked through. I could neither move...

I agree Diamattic. When looking at tables of statistics i think we all need to bear in mind that when quoting patient mortality following transplant, it does not mean that these patients died because of the transplant itself. If you read the written details it states that the figures cover all...

Many thanks for your advice Brunneria. Perhaps the thread I was reading had both T1 and T2, I know it did not specify one or the other... either way, it is still a pretty extreme was to manage your diabetes, but then I am still in the process of discovery hear. You said that keeping low blood...

Hi there, I cannot believe that information - 25% mortality rate!! Nobody would have pancreas or kidney transplants if the odds were that bad. There would be bodies everywhere (my hospital does 4 or 5 a week, that's nearly two patients dying every week). Then your quote of 5 years post...

Hi TopoGigi, thanks for your message. I take Neoral, Cellcept (Mycophenolate) and Prednisolone and seem to manage fine with them. The main issue for me (and one that I must stress had nothing to do with my transplant as such) was that I too contracted CMV from the donor. As you will know...

Having had a kidney/pancreas transplant ten years ago, I like to keep a close eye on developments with diabetes healthcare. In the early 80s, the advice regarding diet was low fat, average protein, with the bulk of calories coming from complex carbs such as rice, bread, pasta or potatoes...

Just wondered where the information from your last paragraph came from? When I had my pancreas and kidney transplant 11 years ago mortality figures were very low and post surgery rejection was easily spotted then treated with high dose steroids for a few days. With regard to immunosupprants...

I have been on immunosuppressants 11 years (SKP transplant) and to be honest have not noticed much difference from when I was a T1 diabetic in terms of side effects or risk of infection. As a diabetic if I did get a virus or bacterial infection it probably lasted a little longer than a non...

If I can answer any of your pancres queries I am only too happy to help. I received a kidney and pancreas transplant 11 years ago and it went really well. Clare

I had a kidney and pancreas transplant 11 years ago. You are correct in that it is not a cure, but it can give you years of respite from T1 diabetes. I take three types of immunosuppressants which i have no problem with. Initially, there were some minor side effects but these only lasted a...

Good grief! I think the diabetic that injected with the needle in the final image must have skin like tree bark! That is ridiculous. There is absolutely no way that a proper needle would be that deformed and curled up after just 6 uses.

When I read how many needles you go through in a month I nearly dropped my iPad! When I was a T1 diabetic (before my transplant) we were actively encouraged to make needles last, primarily due to the cost. I was more than happy with this as it meant not having to change a perfectly decent...