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Welcome. I have been type 3c since 2009 after a total pancreatectomy. As previous forum members have stated we are treated by the NHS as Type 1s! It takes time to work it all out but I can assure you that you will get there it may seem overwhelming at the moment, don't despair hang in there. I...

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It's always encouraging to hear from other post pancreatectomy patients and know that you are thriving and well. I am 11 years in and as you say it has been a 'roller coaster ride' and still continues to be so! I approach everyday as a new challenge try not to get downhearted when my body does...

The early days are the worst 'hang in' there Stephen it does get better. 10 years ago I had a total pancreatectomy, still find things hard at times but overall once you understand your body and its responses to the regime you will begin to cope better.

Must admit I do not read the forum very often. Had a total pancreatectomy in 2009, 10 years this year and life going reasonably well, with the occasional hiccup! Find being a type 3c presents a multitude of challenges, including the annoying interruption in Creon availability and the ongoing...

Yes, you are not alone I get hot flushes for no apparent reason, like you I am post menopausal. Makes hubby smile I go around shedding cardis/fleece and then complain I am feeling cold! I am a type 3 (after pancreatectomy) using insulin and counting the carbs.

Hi thanks for your thoughts. My immediate supply issue has now been resolved,with the Christmas holiday break nearly here I was getting a tad stressed! After canvassing many other pharmacy outlets here in my city I come to the conclusion that there is no supply chain problem only a less than...

Hi Anybody out there experiencing issues obtaining Creon 25000 capsules. My local chemist seems to have problems getting my regular supply from the wholesaler! Whenever I go to collect my prescription I go with 'fingers crossed' that this time there will be no hassle regarding the supply of...

Hi I have never heard of type3c, but I guess I am classed as such having undergone a total pancreatectomy/splenectomy in 2009. Look forward to hearing from other people with the same condition.

Thanks for your input will be contacting the hospital, next week hope by then I will have stopped spitting feathers and calmed down!!

Today I received a letter from my local hospital rescheduling my appointment to see my consultant, I am not a happy bunny as the new appointment is for September instead of April which will mean it will be almost 12 months since my last visit. I feel very cross about this but as I am a...

I change the needle on my NovoPen everytime I inject, no sense in risking getting any infection! :D

As a relatively new diabetic, since April 09. Had the pancreas removed. I find that I feel quite unwell when my levels are below 5! So I guess the message is that we are all quite different in our response to lows. I have always taken the advice of my specialist nurse and do regard 4 as the...

Hi I had the swine flu jab yesterday. My BS went up to 18.2 late last night and I felt pretty unwell for a coupld of hours! Coming back down to my normal levels this morning. I do have a very sore arm but apart from that seem to be suffering no other ill effects.

Thanks Spiral and Phoenix for your input. Yes having had a pancreatectomy everything is a bit more complicated. I do take pancreatic enzymes to deal with the fats in my diet. Because of the enzyme issue I am reluctant to take the lo carb route although having said that I do pay close attention...

Hello all My name is Carolyn I am aged 58 earlier this year i was diagnosed with IPMN (Intraductal Papillary Mucinous Neoplasm of the pancreas) which resulted in my undergoing a total pancreatectomy in April of this year. I have recovered from the op well but of course I am now classed as a...