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I truly believe there is a possibility of a joint attempt between the health board and school to make low carbing so awkward we would be forced to stop

This will end up in court, it is so sad

Been there, done that, the director of diabetes uk has spoken to them personally.

We cant even have a conversation about her care unless the diabetes nurse is there. It is ridiculous, I advised last week to stop a hypo after lunch to give her half a glucose tablet and instead they let her hypo as it wasn't in the health care plan.

Exhausted all avenues, they aren't considering anything, health advice comes from the health board not the parent, end of. Closed system

We are way past that, the governors are making a decision this week to tell us whether Freya can continue to attend. They are adamant the law is on their side and that the health board provide the information around the medical aspect of her care and we either accept it or leave

Hi It's been a while since I posted on here. Wanted to put the feelers out there to see if anyone's having or combatted the same issue as we are facing. My daughter Freya is five, about to turn six and has been diagnosed a year. We eat a low carb diet as a family and she has a hba1c of...

That's very kind, I would send you the postage money?

I have three brand new meters, a one touch verio, a contour next and an Accu check mobile (with a full cartridge). What I would like to do is trade these for any Accu check that uses Accu check test strips. The reason for trading is our prescription is for Accu check and we get the strips on...

Typical........something useful not allowed to happen

Hi all I'm still asking lots of questions. We are looking into part funding our CGM. We have one on loan for my 5 year old daughter that we need to give back on Monday. I looked on the US dexcom site and noticed their G4 has a Bluetooth share facility. The on in the UK doesn't seem too...

Any idea if we can get hold of this report? Our NHS in West Wales are looking at the animas vibe and dexcom CGM combo for some of their paediatric patients.

They haven't given any advice really. They has us on 4 units of lantus each night and when we were dropping over 10mmols during sleep they blamed hormones. I had to research basal testing to figure out what she actually needed. What advice can you have other than test a lot?

She hasn't a clue. She is young and still acting normally when dropping to 2.0

The other thing a pump ensures is no leakage. We have very few completely successful injections

Yes that's right, they are very keen on her being on a pump and we have also requested a CGM due to her having no hypo awareness and their solution is an animas vibe as it can do everything (although this isn't confirmed yet). I'm very sad about her having anything with a tube and want to cover...

Hi all I am looking to research all options including the self funding of treatment. In my head the perfect treatment for my 5 year old newly diagnosed daughter would be to have a CGM and and a tubeless pump. Has anyone done the research to look into annual costs of either if self funding...

That is helpful. Our DSN is certainly onside but it's hard to gauge the consultant's feelings on things.

Thanks. I agree it seems like the only pump I would consider for a small active child

I've just got off the phone with the DSN. It's a complicated affair, they had a patient on a trial of one who is now moved health boards. They are meeting the Omnipod rep on the 4th of Feb and have to make a case to the health board to justify the increased coast. It's going to be a case of...