Search Results

  1. steveelles

    How do your false hypos manifest?

    Hi there I get some pretty steep drops. From what I can tell, I have two primary symptoms (along with the usual hot flushes, headache, nausea and wanting to throw a chair across the room). 1. A whizzing noise in my ears (hissing tinnitus). I think this may also happen as my sugar goes up...
  2. steveelles

    Anyone else Jekyll and Hyde?

    35 years undiagnosed (age 4-5 upwards) Misdiagnosed Type 2 for 8 years and wrongly medicated with bad side-effects. Currently waiting MODY test. Beta cell tests came back negative. Newly on Gliclazide 320mg daily BG's now back into single figures although fastings can still be highish some...
  3. steveelles

    Stomach cramps whenever I lose weight

    Hi, 8.8 mmol/L when Igot uncomfortable. Started the day on a fasting of 14.1.
  4. steveelles

    Stomach cramps whenever I lose weight

    I've had a serious issue with stomach cramps for 35 years. The only obvious pattern was that they were always worse whenever I was at my skinniest. Whenever I am screened for Chron's or Celiac it is always negative. I have shown high fecal calprotectin levels during these periods. Diagnosed as...
  5. steveelles

    Anyone else on Gliclazide?

    Day 4 for me. 2 x 40mg. Fasting BG this AM was 14.3. Lowest in ages. My head came clear on the first day. As did my eyes. Still having some rather profound memory issues though. How are you getting on? How did you end up on this medication?
  6. steveelles

    Please create a MODY discussion thread

    Hi. I hope they get to the bottom of things for you. I feel like we were all born a couple of decades to early and that the knowledge is going to come later. That said, I am feeling pretty grumpy about no one spotting I was diabetic for 35 years but I shall place a positive eye on the furture.
  7. steveelles

    Please create a MODY discussion thread

    Hi, yes absolutely. Until the night sweats started in my late 20s I never showed any of the usual symptoms. I was never tested for blood sugar until I was 40. I never had any thirst or frequent trips to the loo. However, I did wet the bed until 11 and my Mum pointed out that I was in fact always...
  8. steveelles

    Please create a MODY discussion thread

    Thank you, I will do that. Not a lot on YouTube either.
  9. steveelles

    Please create a MODY discussion thread

    Hi there. Maternal grandfather was Type 2. Paternal grandmother was "Type 1" but here's the thing. She was undiagnosed until 56 when she had a diabetic crisis on holiday which brought on a catasrophic stroke. This was 1982 and MODY was identified in the 90s if I have my facts right. She died in...
  10. steveelles

    Please create a MODY discussion thread

    Appologies. More detail here: My GP had refused to refer me to the Blackburn Diabetes Centre despite me being under the Bolton Diabetes Centre when I registered with him. His reason was because my HBA1Cs were good. However, it was self testing that revealed a fasting of 32.2 which was...
  11. steveelles

    Please create a MODY discussion thread

    Hi there. I think on a thread with other MODYs would be great but I will still continue to discuss more broadly on other threads. Thanks :-)
  12. steveelles

    Please create a MODY discussion thread

    After 5 years on Metformin and Sitaglyptin/aloglyptin (vomiting violently 3 or 4 times a week) and constantly telling various GPs that there is a problem I finally gave up on the NHS and paid for a private consultation with an endocrinologist. That was only after I took myself of all my meds and...
  13. steveelles

    Type 2s: What was your fasting blood glucose in a morning? (very low chat level)

    Currently refusing medication because it made me too ill to work. Fasting BG this morning was 23.1 and has been up near the twenties for several weeks. Have lost 6 stone. Am no longer overweight. Have increased muscle density in the 5 largest muscke groups. Eating very little. Fasting BGs have...
  14. steveelles

    Any reversal symptoms to expect?

    I'm now at 6 months after stopping the metformin and the aloglyptin (good riddance). Have lost 5 stone (in 5 years). Now at 14.5 stone standing at 6 foot 4 and feel like I am returning to my normal weight. BG's were up at 22 two months ago when I had flu. Currently seem to be hungry all the...
  15. steveelles

    My Blood Sugar has a natural audio alert

    A high pitched whining in my right ear gives me about 90 seconds warning that my stomach is about to start rolling and moving (as my BG drops). If I eat immediately, it doesn't happen and the high pitched noise subsides after about 3 minutes. Nature is an amazing thing. An in-built audio alarm...
  16. steveelles

    Private Diabetes Clinic in France

    Hi there. Type 2 diagnosed at 40 but showing symptoms since early childhood (verified by specialist at NHS Diabetes Centre). Does anyone know a clinic in France where I can get the blood test to identify the genetic variant of Type 2 that I have? I'm fed up with banging my head against the wall...
  17. steveelles

    Once A Diabetic Always A Diabetic?

    You put your left leg in. Your left leg out. You do the hokey kokey with diabetes. You can reverse your symptoms. Because diabetes is a health condition, rather than a disease, it could be argued that you are no longer diabetic but it would be more accurate to say you are not diabetic, "right...
  18. steveelles

    Pain in stomach when having a hypo

    I'm going to show this thread to my doctor. So pleased I found it. Okay, here's my experience starting with the diabetes history and then into the stomach pains as a parallel history. I was diagnosed Type 2 by a nurse around 2012. I have it on both sides of my family and carried a 50%...
  19. steveelles

    Was I diabetic as a child?

    OK, so, update: I finally got so see a consultant who looked a a full medical history for me and confirmed that I've been showing symptoms consistent with a glucose metabolisng disorder like Type 2 diabetes since early childhood. He also said I should think myself lucky the doctors didn't...