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Hi, My eating is a bit out of control at the moment due to a new medication. I've thankfully ruled out Insulinoma with the help of my GP. I'm starting to become more convinced that I am not suffering from Reactive Hypoglycaemia. Due to recent events, I'm starting to link my hypoglycaemia to...

Hi, Sorry for the very late reply, I collapsed at home recently which I thought was related to my blood sugar issues but it turns out I'm suffering from Vestibular Migraines. Thankfully they've put me on some great medication but one of the side effects is feeling hungry which has been murder...

Hi, Have you been told to attend hospital if you experience a hypo? No. Before seeing an Endocrinologist I used to have to go to hospital as I was usually in the 2.4-3.2mmol range and the NHS 111 operator used to get scared. By the time I'd had a sugary drink (advice from 111) and drove to...

Hi Lamont D, we've talked before on the RH forum. My HbA1C was 36 last time I was checked. On a morning I can be anything from 2.9mmol to 4.8mmol.

Hi, I currently have a provisional diagnosis of Reactive Hypoglycaemia but I'm starting to think this is not correct. Before being provisionally diagnosed with RH, I was told that it could be Insulinoma but the MRI came back normal. If I fast at home I can trigger a hypo within about 12 hours...

Thank you for the response. This is actually very reassuring. Hopefully there might be a way for me to get back to driving professionally for a living.

Thank you Nicola, this is exactly what I was looking for. It is what I expected - I'm going to be unable to go back to work driving buses/trucks as it's impossible for me to maintain glucose levels above 5 mmol whilst driving.

Hi, Do any professional drivers know about the '5 to Drive rule'? My Endocrinologist told me about this rule as I have Reactive Hypoglycaemia and it was something I had to agree with to get my licence back. Do you know if you have to be consistently above 5 mmol to drive? Despite following a...

Also, I was told to eat a long acting carbohydrate before bed. What was suggested to me was cereals such as Weetabix, Oatibix, Cornflakes etc which have worked really well in maintaining my sugar levels through the night despite these being high Glycemic Index foods. The cereals idea was...

This sounds exactly like me although I can't get into hospital for the fasting test as there's no available beds for me to do it. Every time I was asked to fast before an appointment I just couldn't hypo. I'd then be on my way home from the hospital and bam, a hypo. I think the fact that when...

Hi Lamont, I use a Libre 2 so can keep an eye on my glucose levels. The cereals usually do spike a little bit at around 8 mmol (from around 4.6mmol starting level) but they seem to slowly decrease from this level so my glucose levels stay stable for longer. The Lacto-free milk is proper milk...

Hi all, I'm starting to get used to this Reactive Hypoglycaemia and starting to learn that each person is different so what works for one person won't necessarily work for others. One thing I'd like to ask you all is do any of you have days where you have hypos despite doing absolutely...

I saw a Dietitian who recommended you book end your days with a cereal. It has worked wonders for night time hypos for me having only one night time hypo every fortnight or so. I use Rice Krispies, Cornflakes or Weetabix with a some sweetener and Lacto-free milk (proper milk causes my sugars to...

Thanks for the information, I will have to discuss my predicament with my Endocrinologist to see if I should return to work as a professional driver or look for an alternative career.

Hi, I've just recently been diagnosed with Reactive Hypoglycaemia. I lost my job as a Bus Driver last year when my doctor told me to stop driving. I got my licence back in June 2024 including my HGV and Bus categories and the DVLA has okayed me to drive professionally. I'm wanting to get back...

Thanks for everyone's help. I have just had the best week of my life - only one hypo (3.6mmol) which was good for me as I'm usually in the 2.5mmol - 3.3mmol range with hypos. Things maybe looking up.

Thanks very much for your replies. I don't know why I was asked to eat starcy carbohydrates with every meal as like you've both said it causes the inevitable glucose spikes, sugar crash then the hypo. I think carbohydrates are an issue for me. Dairy also causes the same reaction as...

Hi, I'm following a Dietitian's advice after being diagnosed with Reactive Hypoglycaemia but struggling with carbohydrates. I was recommended to eat a carb heavy diet such as potato, rice, oats and wholemeal wheat. My blood sugars are going crazy with this diet plus I suffer from IBS so the...

Hi everyone, I'd like to update anyone who is curious about this. I had an appointment with two Endocrinology doctors this week who are 80% sure that I have insulinoma. Due to other issues that I have, such as intermittent agonising abdominal pain and small non-cancerous tumours developing in...

Another update: I'm having 6 hypos a day at the moment dropping to about 2.9mmol. The doctor has told me to stop driving as I have developed hypo unawareness. I have had a normal C-peptide blood test. I thought it could be being caused by my migraine medication so I stopped taking it and...