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I have a normal HBA1C and diagnosed with reactive hypoglycaemia. A CGM will show it best, my blood sugar is rarely flat, constant up and down, unless fasting. While when my partner wore a CGM it was often a nice stable horizontal line. I also have not been able to go keto/ very low carb, I feel...

I agree, I felt horrible at 3.6 too, no way I could drive. I start to feel it when my bs is 4.9 or below. My fasting is usually 5.3 I had wondered if it was an over reaction by my adrenal glands to a blood sugar drop, but no one seems interested in helping and can’t afford private. The faster...

@Oh766 sorry to hear about your struggle. Your hospital sounds proactive, but did they rule out an insulinoma? Your fasting BS sounds low. If it is reactive hypoglycaemia, reducing carbs is the way forward, while increasing protein and fat. As a fellow RH struggling, the foods that stablize my...

Wonder if protein shakes count as dairy? Problem is the information isn’t that detailed.

Thanks for all the answers, very kind :) Yes I wondered about vegetarian food- Falafel, hummus and nuts would be fine as long as could take Plan to go on the ferry. Perhaps I would take some meat and cheese in case of a delay, and yes throw away before customs. I assume the customs check is the...

Yes cans of tuna was all I could think of too! Thanks

Hi, Does anyone know if having reactive hypoglycaemia exempts you from the not travelling with any meat or dairy into France? The thought of not having any yogurt, cheese or meat when travelling for hours is overwhelming. How are you meant to avoid hypo? Protein bars and nuts are ok for...

That’s brilliant news and thank you for sharing all this information

Hi RobbieRob, I have RH too. My thoughts on your diet were, not enough protein for breakfast and cut out fruit. Apples cause a hypo for me about 1.5-2 hours later. Used to have one a day, not realising 20g of sugar. Meat stabilised my BS, I am concerned that I now eat too much meat. I read that...

Yes I felt really drowsy in the test, and hot and sweaty. The nurse didn’t tell me what the other readings were. I had the same test 6 months ago, it got aborted due to not getting the blood samples in time. When I had that test I did go up to 13mmol. Regardless about if 3.6 mmol is a full...

Hello, I had a mixed meal test today. Wondered if the results below indicate reactive hypoglycaemia (which is suspected and I have already changed my diet). They are sending some blood to the lab, but say it may not be tested as I only went down to 3.6, not 3.5! @ 0 hours fasted before ensure...

Do you know what is the reason the wine makes you feel unwell? I’m the same, haven’t had alcohol for over a month a feel better for it.

Yes I definitely do experience high blood sugar after eating something sweet or carbs. I have been aware of for years, without realising it was a symptom of something wrong. For example doughnuts and sweets make me go super buzzy and headachy. When I drank the ensure for food tolerance test, BS...

Sorry, last post- Alcohol- I find a glass of red wine lowers my blood glucose pretty quickly, even with a meal, and I have lower Blood glucose the next morning. Unfortunately I feel a lot better not drinking alcohol and caffeine. I have had bad anxiety this last year because of this condition...

Yes it is annoying having to pay for the CGM, it’s a shame NHS don’t use it at all as a tool for this condition. I have probably worn one for six months on and off. It has given me such an insight. For example I will crash after a stressful day, walking several miles, on my period and after lots...

You’re welcome @SJP23 Yes I am exactly the same. I remember one Sunday eating hardly any carbs, had perfect blood sugar, but the next day I couldn’t do anything and having to eat several breakfasts. I had very bad carb withdrawal, would also be too woozy to stand up and crazy protein cravings...

Hello, I first went to endocrinologist about 9 months ago after years of hypos, with suspected reactive hypoglycaemia. I had a 19 hour fast at the hospital today (didn’t drop below 3.8 mnol) which shows you how long the wait is for diagnostic tests where I live. Mixed meal was inconclusive. I...

That’s interesting, I had low vitamin D last winter 47 nmol/L and had regular hypos. Was not sure if it was connected. Thanks for the 30g of protein chart.

Hello, Happy New Year to everyone. I’m on about day 12 of Covid, have now tested negative. But still feeling exhausted with low energy. Has anyone got any tips? Not being able to load up on sugar, carbs, orange juice, fruit, lemsip and caffeine because of reactive hypoglycaemia means I don’t...

Thank you, it’s not just me then!