maculopathy

  1. E

    Eye issues

    Hi all, my husband and I are hoping to start TTC in the near future. I’ve been attending my local pre-pregnancy clinic and had brought my sugars into target. Then came covid… My hba1c is a little higher than they would like (55) but has been pretty stable recently. I’ve just gone for an eye...
  2. C

    Maculopathy and headaches

    Hi, I had a eye screening done in December and got a letter just before Christmas to say I have maculopathy. I rang the specialist and they said i have it mild in my left eye only. I have been worrying but I’ve tried to get my blood sugars under better control. This past week though it feels as...
  3. A

    Type 1 Signs of Diabetic Maculopathy

    Hi all, I've been type 1 for 17 years now and just received my eye screening results. I have been informed I have signs of diabetic maculopathy and that I need to have my eyes screened every 3 months. I am so terrified this is going to lead to permanent damage. My action plan is to get my...
  4. LooperCat

    Healed eyes

    Some good news from this T1 of twenty years I thought I’d share... I had a letter in October saying I’d been referred to the ophthalmologist as they’d seen maculopathy in my left eye and pre-proliferative retinopathy in my right after my routine eye scan. To say I was bricking myself for my...
  5. ResistingResistanceUK

    Maculopathy & RA

    Whilst my blood levels have been under control, my RA isn’t under control and is wreaking havoc with my body including my eyes. I’m wondering whether anyone else has any experience with diabetic maculopathy & RA? It was a shock to hear that I needed more tests for my eyes!
  6. LooperCat

    Retinopathy & Maculopathy following fast reduction of HbA1c

    Got the results of my retinopathy screening today only to find I have pre-proliferative retinopathy in one eye and maculopathy in both. Was just background last year... hard not to panic. I’m now aware that rapid improvement of HbA1c such as mine can cause this - but I was never told about it...
  7. Sallyhandy

    Pre pregnancy and maculopathy....help!!!

    Hi everyone. I'm new to this forum so please bear with me. I am 32 yrs old and have had type 1 for 25yrs. A year ago I went on a dafne course and have managed to lower my hba1c from 87mmol to 69mmol. I am currently getting seen by a pre conception clinic and have been given the go-ahead to start...
  8. Sophie1991

    Eye Screening results

    Hi all. I'm new to this site so please bear with me I'm Sophie & have had T1D for 16 years in November. Diagnosed at 10 years old I've had my highs and lows (literally) & have finally got my HBA1C down to 60%, which isn't ideal but it's better than it was! I have always had the all clear from...
  9. joules

    I fixed hashimotos, maculopathy, + dawn phenomenom in a few months

    Hello everyone. Just want to share that within a year i have turned around the above (not diabetes completely, though secondary issues) through loads of research. Hope that this will benefit everyone here! To cut a long story short, which ideally should be a longer story; I will try and make...
  10. P

    Maculopathy, pre-proliferative retinopathy and want to be pregnant

    Hi All, this is the first time I have reached out to other diabetics in the 27 years since I was diagnosed so bear with me! I have been averagely controlling my diabetes most of my life and this year (past 6 months really) I have taken control a bit more as I am now 30 and would like to have the...
  11. M

    SIGNS OF DIABETIC MACULOPATHY

    Dear Friends Need your advice. I am type 11, diagnosed last year, had eye screening last July with good result, but a yearly screening this month generated a letter saying " Your results showed signs of diabetic maculopathy that needs to be checked further " and I will be checked again in a...
  12. joules

    Retinopathy > Maculopathy in 3 yrs. I Wheat

    Hiya, Just wanted to share some great news, which will help others perhaps. I was diagnosed with retinopathy 3 years ago, which then progressed onto maculopathy in March and November last year. I got really paranoid so talked to an external dietician about what I was and wasn't eating and did a...