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1 week diagnosed and bad eyes

mattj99

Member
Messages
5
Type of diabetes
Type 1
Treatment type
Insulin
Hi everyone.

I apologise if this topic has been covered multiple times already.

I was diagnosed with Type 1 a week ago. My levels at time of going to the hospital was 31. I was kept in over night on fluids and insulin and released 24 hours later with instructions to inject 8 units of fast acting insulin before every meal and I now also have a slow release insulin to take at night. I have managed to over the last couple of days keep my BG between 6 and 10, with the odd spike around 13.

I was suffering with slight blurry vision before diagnosis, but over the last 4 days they have gotten much much worse, to the point of not being able to read my phone and computer (my girlfriend is typing this for me!). It is affecting my work.

I am trying to get some answers from the doctors regarding how long this is going to happen, for and reassurance that this isn't going to cause permanent damage and if I am doing anything wrong. However I am not getting this information and care and getting quite frustrated.

Has anyone had the same experience? Does anyone have any advice on how to help this and what to expect?

thank you in advance!
Matt
 
Hi mattj99 ( and typist girlfriend ) :)
welcome to the forum

one of the direct symptoms of an immediate lowering of blood sugars is a deterioration in eyesight -- this is temporary but can last from 1- 6 weeks or so. it is difficult to pinpoint the exact duration.

i am tagging @daisy1 - she provides a great starter pack of info for all newly diagnosed.

just try and remain calm in the short term -- take things 1 day at a time

use your blood test meter -- it is your new best friend ( it doesn't tell lies )

all the best !
 
Hi everyone.

I apologise if this topic has been covered multiple times already.

I was diagnosed with Type 1 a week ago. My levels at time of going to the hospital was 31. I was kept in over night on fluids and insulin and released 24 hours later with instructions to inject 8 units of fast acting insulin before every meal and I now also have a slow release insulin to take at night. I have managed to over the last couple of days keep my BG between 6 and 10, with the odd spike around 13.

I was suffering with slight blurry vision before diagnosis, but over the last 4 days they have gotten much much worse, to the point of not being able to read my phone and computer (my girlfriend is typing this for me!). It is affecting my work.

I am trying to get some answers from the doctors regarding how long this is going to happen, for and reassurance that this isn't going to cause permanent damage and if I am doing anything wrong. However I am not getting this information and care and getting quite frustrated.

Has anyone had the same experience? Does anyone have any advice on how to help this and what to expect?

thank you in advance!
Matt
I know how scary it can be to suddenly have blurred vision. After several days I found out that in my case it was a drug side effect, and it went away on its own. But on the day it started I thought I was going to go blind.

You are not doing anything wrong. As himtoo said, it will most likely improve on its own. The doctors should have told you this.

Just to check, have you recently started any new medication, apart from the insulin? I usually check for known side effects at www.drugs.com
 
I'm type 2, went into the hospital with BGs of 24.6.... I was having blurry vision, it got worse when my BGs started to come down, and it took a couple of weeks until it got better, over that time I changed my prescription 3 times...

Right now, I'm not wearing any glasses... so yes it can get worse and then better, but I guess everyone is different.

Back then the people at the opticians told me that was normal and to expect changes as my BGs normalized, but at the time it was quite scary to not to be able to read my mobile or my computer, at some point it got really bad.
 
@mattj99

Hello Matt and welcome to the forum :) I hope you are feeling reassured regarding your eyesight now. As mentioned above, here is the information we give to new members and I hope you will find it useful. Ask more questions when you need to and someone will be able to help.


BASIC INFORMATION FOR NEWLY DIAGNOSED DIABETICS

Diabetes is the general term to describe people who have blood that is sweeter than normal. A number of different types of diabetes exist.

A diagnosis of diabetes tends to be a big shock for most of us. It’s far from the end of the world though and on this forum you’ll find over 150,000 people who are demonstrating this.

On the forum we have found that with the number of new people being diagnosed with diabetes each day, sometimes the NHS is not being able to give all the advice it would perhaps like to deliver - particularly with regards to people with type 2 diabetes.

The role of carbohydrate

Carbohydrates are a factor in diabetes because they ultimately break down into sugar (glucose) within our blood. We then need enough insulin to either convert the blood sugar into energy for our body, or to store the blood sugar as body fat.

If the amount of carbohydrate we take in is more than our body’s own (or injected) insulin can cope with, then our blood sugar will rise.

The bad news

Research indicates that raised blood sugar levels over a period of years can lead to organ damage, commonly referred to as diabetic complications.

The good news

People on the forum here have shown that there is plenty of opportunity to keep blood sugar levels from going too high. It’s a daily task but it’s within our reach and it’s well worth the effort.

Controlling your carbs

The info below is primarily aimed at people with type 2 diabetes, however, it may also be of benefit for other types of diabetes as well.
There are two approaches to controlling your carbs:

  • Reduce your carbohydrate intake
  • Choose ‘better’ carbohydrates

Reduce your carbohydrates

A large number of people on this forum have chosen to reduce the amount of carbohydrates they eat as they have found this to be an effective way of improving (lowering) their blood sugar levels.

The carbohydrates which tend to have the most pronounced effect on blood sugar levels tend to be starchy carbohydrates such as rice, pasta, bread, potatoes and similar root vegetables, flour based products (pastry, cakes, biscuits, battered food etc) and certain fruits.

Choosing better carbohydrates

Another option is to replace ‘white carbohydrates’ (such as white bread, white rice, white flour etc) with whole grain varieties. The idea behind having whole grain varieties is that the carbohydrates get broken down slower than the white varieties –and these are said to have a lower glycaemic index.
http://www.diabetes.co.uk/food/diabetes-and-whole-grains.html

The low glycaemic index diet is often favoured by healthcare professionals but some people with diabetes find that low GI does not help their blood sugar enough and may wish to cut out these foods altogether.

Read more on carbohydrates and diabetes

Eating what works for you

Different people respond differently to different types of food. What works for one person may not work so well for another. The best way to see which foods are working for you is to test your blood sugar with a glucose meter.

To be able to see what effect a particular type of food or meal has on your blood sugar is to do a test before the meal and then test after the meal. A test 2 hours after the meal gives a good idea of how your body has reacted to the meal.

The blood sugar ranges recommended by NICE are as follows:

Blood glucose ranges for type 2 diabetes
  • Before meals: 4 to 7 mmol/l
  • 2 hours after meals: under 8.5 mmol/l
Blood glucose ranges for type 1 diabetes (adults)
  • Before meals: 4 to 7 mmol/l
  • 2 hours after meals: under 9 mmol/l
Blood glucose ranges for type 1 diabetes (children)
  • Before meals: 4 to 8 mmol/l
  • 2 hours after meals: under 10 mmol/l
However, those that are able to, may wish to keep blood sugar levels below the NICE after meal targets.

Access to blood glucose test strips

The NICE guidelines suggest that people newly diagnosed with type 2 diabetes should be offered:

  • structured education to every person and/or their carer at and around the time of diagnosis, with annual reinforcement and review
  • self-monitoring of plasma glucose to a person newly diagnosed with type 2 diabetes only as an integral part of his or her self-management education

Therefore both structured education and self-monitoring of blood glucose should be offered to people with type 2 diabetes. Read more on getting access to bloodglucose testing supplies.

You may also be interested to read questions to ask at a diabetic clinic

Note: This post has been edited from Sue/Ken's post to include up to date information.
 
I know how scary it can be to suddenly have blurred vision. After several days I found out that in my case it was a drug side effect, and it went away on its own. But on the day it started I thought I was going to go blind.

You are not doing anything wrong. As himtoo said, it will most likely improve on its own. The doctors should have told you this.

Just to check, have you recently started any new medication, apart from the insulin? I usually check for known side effects at www.drugs.com

Thank you for your reply, this has helped put my mind at ease a little. How long did your blurry vision last for before it started to improve?
 
I'm type 2, went into the hospital with BGs of 24.6.... I was having blurry vision, it got worse when my BGs started to come down, and it took a couple of weeks until it got better, over that time I changed my prescription 3 times...

Right now, I'm not wearing any glasses... so yes it can get worse and then better, but I guess everyone is different.

Back then the people at the opticians told me that was normal and to expect changes as my BGs normalized, but at the time it was quite scary to not to be able to read my mobile or my computer, at some point it got really bad.

Thanks for your reply. How long were you not able to read your phone for? My job is design so I am a little worried at how much time I may need off work!
 
Thank you for your reply, this has helped put my mind at ease a little. How long did your blurry vision last for before it started to improve?
It was a few days I think.
 
Thanks for your reply. How long were you not able to read your phone for? My job is design so I am a little worried at how much time I may need off work!
If your boss is accommodating, you might still be able to be at work, and do limited duties.
 
Thanks for your reply. How long were you not able to read your phone for? My job is design so I am a little worried at how much time I may need off work!

I'm a designer too, I totally feel your pain, that is why I was soooo scared of being unable to see or having my eyesight affected, that is why I got so scared about diabetic complications.

I can't tell you how long exactly it would take you, but it took me about three to four weeks, yes, it doesn't sound good. I'm sorry, it might not be the same for you, but that is what it took me.

I think it got better when I managed to keep my BGs at a constant level, I mean when I stopped going dramatically down and started to stabilize.
 
Just to clarify: the worst part of it took a couple of days I can't say exactly how long, is the general normalization that took longer.
For example before diagnosis it was blurry from distance, afterwards diagnosis and as soon as my BG started coming down I couldn't focus, and then it started improving, and by the last time I went to the opticians my eyesight had improved dramatically over the situation before diagnosis...
 
Hi Matt,

I have the same thing, started treatments 2 weeks ago

I asked the nurse earlier this week and she didn't really answer

So relieved you brought it up and got answers above, puts my mind to rest a little

Cheers
 
Hi Matt,

I have the same thing, started treatments 2 weeks ago

I asked the nurse earlier this week and she didn't really answer

So relieved you brought it up and got answers above, puts my mind to rest a little

Cheers

They haven't been particularly helpful have they. I've had really really blurry vision for 4 days and it isn't getting better at all. Has your improved?
 
Just to clarify: the worst part of it took a couple of days I can't say exactly how long, is the general normalization that took longer.
For example before diagnosis it was blurry from distance, afterwards diagnosis and as soon as my BG started coming down I couldn't focus, and then it started improving, and by the last time I went to the opticians my eyesight had improved dramatically over the situation before diagnosis...

Thanks for the info. Mine has now been really blurry for 4 days with no sign of improving. I can't read my phone with the font at its largest option, everything is a blur. I am keep my levels pretty steady so I don't understand why it's so bad still.
 
Thanks for the info. Mine has now been really blurry for 4 days with no sign of improving. I can't read my phone with the font at its largest option, everything is a blur. I am keep my levels pretty steady so I don't understand why it's so bad still.

Hopefully it will get better at some point soon, stay positive, as I said... I had to change my prescription a few times and was scared that I actually damaged my eyesight, nobody told me for certain anything but all I can tell you is to be patient and see how things are in a couple of weeks.

Have you been to the opticians already?

What the opticians told me, that I vaguely remember is that the eyes don't like the sudden changes and that they take some time to readapt. I'm sorry I can't be of more help but I hope it gets better soon.
 
Hi everyone.

I apologise if this topic has been covered multiple times already.

I was diagnosed with Type 1 a week ago. My levels at time of going to the hospital was 31. I was kept in over night on fluids and insulin and released 24 hours later with instructions to inject 8 units of fast acting insulin before every meal and I now also have a slow release insulin to take at night. I have managed to over the last couple of days keep my BG between 6 and 10, with the odd spike around 13.

I was suffering with slight blurry vision before diagnosis, but over the last 4 days they have gotten much much worse, to the point of not being able to read my phone and computer (my girlfriend is typing this for me!). It is affecting my work.

I am trying to get some answers from the doctors regarding how long this is going to happen, for and reassurance that this isn't going to cause permanent damage and if I am doing anything wrong. However I am not getting this information and care and getting quite frustrated.

Has anyone had the same experience? Does anyone have any advice on how to help this and what to expect?

thank you in advance!
Matt
 
hello

I was diagnosed type 1 in march. i came home from hospital after a week. I also could not use my pc properly or my phone. i was very scared and it took 3 weeks before my eyes gradually went back to normal. i brought cheap glasses having never worn them before went gradually up to a number 4. and then gradually back down again - to none.
it was so bad i thought i was going blind. it is scary but i am sure it ill go back to normal.
i also looked on here at the time it started happening. I felt reassured by the amount of people it happened too and their sight all returned to normal.
chin up just sit it out!!
 
ps my sugar levels were good when i came out of hospital but seems to take some time for eyes to correct themselves - also probably had high sugar for quite a long time before.
 
Hi mate I was diagnosed with type 1 a week ago and I'm struggling to control my sugar levels and since I've been out of hospital my vision is really weird and I just feel high all the time I was told that it's only temporary and will go, glad I'm not the only one feeling like this!
 
Another similar story here.
Been type 2 for over a year and my eyes keep changing on a regular basis.
Have always been short sighted and worn contacts, but just before diagnosis I bought some glasses so that I had the choice.

At the moment, I can see better with my glasees than my contacts as my eyes went really blurry last weekend - 2 weeks after starting LCHF diet.
At least with contact lenses it's easy to change prescription, and my optician has been very accommodating.

Good luck - really hope it settles down - it can be scary!
 
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