• Guest - w'd love to know what you think about the forum! Take the 2025 Survey »

17 years with T1D

E

ecoia

Newbie
Messages
3
Type of diabetes
Type 1
Treatment type
Insulin
Not really sure where to start with this. I was diagnosed with type 1 at the age of four, and throughout childhood I had stellar control due to my dad. Things started to go downhill when I started taking care of my own diabetes, my hba1c results gradually started to go up, and I felt like a bit of a failure. The diabetes team at the children's clinic were a smashing bunch however, and you could tell that they genuinely cared about what they were doing. When I was moved on to the adult clinic, it was a very different story. My new consultant tore me a new one as soon as I sat down, with no real advice or anything constructive for me. I think I only went to two or three appointments before I stopped going. I figured there was no point, I couldn't keep my blood glucose under control so complications were inevitable.

I knew deep down if I put some effort in I could find some help, but at that time I didn't feel like I deserved it. I was taken in to hospital a couple of times for DKA during my teens (alcohol had a part to play, surprise surprise), and I remember telling a doctor not to treat me. Since then I have found ways to change my mindset, and I'm horrified with the way I have acted.

So the next step is going back to see a doctor, which scares the life out of me. I've got somewhat decent control (average bg is 7.8, so it could be better) and I'm no longer trying to wreck my body like a moron. Just terrified that it's going to be like last time, but it really is time to grow the hell up.
 
Pleased you've decided to turn things around ecoia, a diagnosis of type 1 diabetes is hard at any age but is especially so when someone is diagnosed when young.

Just be sure to make a list of all the questions you want answered so that you can present them to the diabetes consultant, you might also want to ask about a carb counting course such as DAFNE that you should find useful in your diabetes management.

Good luck and do keep us informed on your progress.
 
Thanks, just need to figure out what I'm putting on that list! I heard of DAFNE, I currently have to take one unit of novorapid for every 5g of carbs. Think that's a bit much as I remember someone saying it should be a unit for every 10g? I'll need to ask why my blood sugar goes through the roof whenever I eat something high in fat, because that baffles me.
 
Back
Top