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18 and recently diagnosed with Type 1. Struggling to come to terms with it

rxaxr

Newbie
Messages
4
Type of diabetes
Type 1
Treatment type
Insulin
Hi, so about a week and a half ago I was diagnosed with having type 1 diabetes and at the moment it seems pretty hard for me to comprehend and I am still coming to terms with it. I had no symptoms related to diabetes and I found out due to a blood test my doctor 'threw in' when I came in to talk about my stress and inability to cope with A levels. I am naturally slim and people were noticing weight changes, which I put down to stress. I took it upon myself to try and get this sorted due to esteem issues and the main issue of stress. I wasn't really given much advice on managing my stress just to have my bloods taken and go from there. I then had my blood test and literally the day after whilst at college the doctor called my mum, because my bloods were really high and they wanted 'to get the ball rolling'. I was reffered to the diabetic nurse and given insulin to take, novarapid before every meal and lantus before bed, I don't have any issues injecting myself. I eat a fairly healthy diet and have been conscientiously avoiding sugars. I have a very supportive family who are struggling as well and friends who are there for me but perhaps don't understand it entirely; which is understandable I didn't either and so it's a massive learning curve. I have found the past week or so overwhelming and have had times where I have felt very low and alone, despite people being there for me. I don't know anyone (well) with Type 1 diabetes nor anyone who developed it at 18, so if anyone has the time to talk with me or words of encouragement they would be greatly appreciated right now. Thank you, Rebecca
 
Hi and welcome. You have come to the best place for information and advice. Try not to get overwhelmed, easier said than done, I know but be strong. You must be after getting to college! Take care of yourself and let family members read this site too. It will help with their understanding. Sending you a hug.
 
Hi, so about a week and a half ago I was diagnosed with having type 1 diabetes and at the moment it seems pretty hard for me to comprehend and I am still coming to terms with it. I had no symptoms related to diabetes and I found out due to a blood test my doctor 'threw in' when I came in to talk about my stress and inability to cope with A levels. I am naturally slim and people were noticing weight changes, which I put down to stress. I took it upon myself to try and get this sorted due to esteem issues and the main issue of stress. I wasn't really given much advice on managing my stress just to have my bloods taken and go from there. I then had my blood test and literally the day after whilst at college the doctor called my mum, because my bloods were really high and they wanted 'to get the ball rolling'. I was reffered to the diabetic nurse and given insulin to take, novarapid before every meal and lantus before bed, I don't have any issues injecting myself. I eat a fairly healthy diet and have been conscientiously avoiding sugars. I have a very supportive family who are struggling as well and friends who are there for me but perhaps don't understand it entirely; which is understandable I didn't either and so it's a massive learning curve. I have found the past week or so overwhelming and have had times where I have felt very low and alone, despite people being there for me. I don't know anyone (well) with Type 1 diabetes nor anyone who developed it at 18, so if anyone has the time to talk with me or words of encouragement they would be greatly appreciated right now. Thank you, Rebecca
Thanks for the tag @Jaylee, I don't think clever is the right word for me but thanks;)

@rxaxr, it's entirely normal to feel overwhelmed, there is SO much information to take in initially, and you will never stop learning about the condition... But know this: you are definitely not alone! I joined this forum exactly a year ago last Thursday; two years into my T1 career; and it is the best thing I've ever done. So you've definitely made a good decision coming here:)

There is a wealth of knowledge to be found on here, from some seriously smart, friendly and competent T1's. You will find people from all walks of life, race, religion, orientation, creed, etc - but we'll all come together under the diabetic umbrella to do our absolute best in giving you all the information, support and advice you may need.

Ultimately, you will take instruction and direction from your diabetes team - but our forum members will be able to offer advice and tips, gained from thousands of years living with diabetes; collectively speaking that is:D

I cannot say this enough and I'm starting to sound like a broken record; but this book is worth every single penny:

https://www.amazon.co.uk/Think-Like.../ref=tmm_kin_swatch_0?_encoding=UTF8&qid=&sr=

There is also a "Young People/Adults" section of the forum that may interest you as well; see the link below:

http://www.diabetes.co.uk/forum/category/young-people-adults.75/

Welcome to the forum and I hope you find it as amazing a resource as I have. We also look forward to your contributions in due course:)

Grant
 
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welcome here Rebecca <3 :)

yes it is a gigantic chok and a gigantic task... I think type 1 much more than type 2 in most cases..

maybe you should now loosen up a bit towards sugar as your medications can also take you too low and then sugar is your friend number 1.

wish you luck and progress and also think it is good it was found out as diabetes type 1 can eat ones muscles away and that is bad... now you can get what you lost back again.. this Forum is a fantastic place to be for support, so stay here...
 
Hi @rxaxr . Welcome to the forum and the crazy but manageable world of T1 diabetes.
NO one knows or understands T1 like a T1. Consultants, DSN's or close family members have and give valuable input but T1 is specific to the individual.
You have come to the best place for information, help and inspiration.
With the right attitude T1 is not to bad at all, it can even inspire and make one a better, stronger individual. Not just physically but emotionally.
You have a lot to learn. Learn a little and often. Think and be positive even when everything feels negative and dark. Diabetes thrives on negativity and darkness. Diabetes hates the light, fun and positively.
Control is the key, but don't become obsessive. Laugh at the occasional bad day, aim to improve a high BS reading going forward and be proud to be diabetic.
Good luck and keep posting.
 
Hi @rxaxr welcome to the forum and to type 1. Sorry your finding it so overwhelming. But that's natural because it just is overwhelming. Do read the book think like a pancreas, that is what you have to do now and the book is a great introduction to the basics of what you need to know to manage type 1.

JDRF do a newly diagnosed kit and they also do events where you could meet other people living with type 1, it might be a good idea to have a little explore on their website to see if they are having any meetings in your area - https://jdrf.org.uk/ive-just-been-diagnosed/ . Diabetes uk also run a lot of local groups for people with diabetes, if you find a meeting near you it might be worth checking what the topic is because it might be type 2 focused so not especially relevant to you.

If you are struggling to cope with the stress of the diagnosis on top of the stress of your studies do have a chat with your DSN to see if they can refer you to a psychologist. Diagnosis with a chronic life long condition is a big deal and it's fine to ask for some help to deal with it. It might be easier to get access to the help if your still in paediatric care.

The other thing you might want to check out on the JDRF website is what support you should expect in school/college and how to ensure you have acces to your test kit and hypo treatment during exams etc. Hopefully your DSN might have already offered to visit school to give them a briefing.
 
@rxaxr

Hello Rebecca and welcome to the Forum :) Here is the Basic Information we give to new members and I hope you will find it useful. Ask as many questions as you need to and someone will help.


BASIC INFORMATION FOR NEWLY DIAGNOSED DIABETICS

Diabetes is the general term to describe people who have blood that is sweeter than normal. A number of different types of diabetes exist.

A diagnosis of diabetes tends to be a big shock for most of us. It’s far from the end of the world though and on this forum you'll find well over 235,000 people who are demonstrating this.

On the forum we have found that with the number of new people being diagnosed with diabetes each day, sometimes the NHS is not being able to give all the advice it would perhaps like to deliver - particularly with regards to people with type 2 diabetes.

The role of carbohydrate

Carbohydrates are a factor in diabetes because they ultimately break down into sugar (glucose) within our blood. We then need enough insulin to either convert the blood sugar into energy for our body, or to store the blood sugar as body fat.

If the amount of carbohydrate we take in is more than our body’s own (or injected) insulin can cope with, then our blood sugar will rise.

The bad news

Research indicates that raised blood sugar levels over a period of years can lead to organ damage, commonly referred to as diabetic complications.

The good news

People on the forum here have shown that there is plenty of opportunity to keep blood sugar levels from going too high. It’s a daily task but it’s within our reach and it’s well worth the effort.

Controlling your carbs

The info below is primarily aimed at people with type 2 diabetes, however, it may also be of benefit for other types of diabetes as well.

There are two approaches to controlling your carbs:
  • Reduce your carbohydrate intake
  • Choose ‘better’ carbohydrates
Reduce your carbohydrates

A large number of people on this forum have chosen to reduce the amount of carbohydrates they eat as they have found this to be an effective way of improving (lowering) their blood sugar levels.

The carbohydrates which tend to have the most pronounced effect on blood sugar levels tend to be starchy carbohydrates such as rice, pasta, bread, potatoes and similar root vegetables, flour based products (pastry, cakes, biscuits, battered food etc) and certain fruits.

Choosing better carbohydrates

The low glycaemic index diet is often favoured by healthcare professionals but some people with diabetes find that low GI does not help their blood sugar enough and may wish to cut out these foods altogether.

Read more on carbohydrates and diabetes.

Over 145,000 people have taken part in the Low Carb Program - a free 10 week structured education course that is helping people lose weight and reduce medication dependency by explaining the science behind carbs, insulin and GI.

Eating what works for you

Different people respond differently to different types of food. What works for one person may not work so well for another. The best way to see which foods are working for you is to test your blood sugar with a glucose meter.

To be able to see what effect a particular type of food or meal has on your blood sugar is to do a test before the meal and then test after the meal. A test 2 hours after the meal gives a good idea of how your body has reacted to the meal.

The blood sugar ranges recommended by NICE are as follows:

Blood glucose ranges for type 2 diabetes
  • Before meals: 4 to 7 mmol/l
  • 2 hours after meals: under 8.5 mmol/l
Blood glucose ranges for type 1 diabetes (adults)
  • Before meals: 4 to 7 mmol/l
  • 2 hours after meals: under 9 mmol/l
Blood glucose ranges for type 1 diabetes (children)
  • Before meals: 4 to 8 mmol/l
  • 2 hours after meals: under 10 mmol/l
However, those that are able to, may wish to keep blood sugar levels below the NICE after meal targets.

Access to blood glucose test strips

The NICE guidelines suggest that people newly diagnosed with type 2 diabetes should be offered:

  • structured education to every person and/or their carer at and around the time of diagnosis, with annual reinforcement and review
  • self-monitoring of plasma glucose to a person newly diagnosed with type 2 diabetes only as an integral part of his or her self-management education

Therefore both structured education and self-monitoring of blood glucose should be offered to people with type 2 diabetes. Read more on getting access to blood glucose testing supplies.

You may also be interested to read questions to ask at a diabetic clinic.

Note: This post has been edited from Sue/Ken's post to include up to date information.

Take part in Diabetes.co.uk digital education programs and improve your understanding. They're all free.
  • Low Carb Program - it's made front-page news of the New Scientist and The Times. Developed with 20,000 people with type 2 diabetes; 96% of people who take part recommend it... find out why
  • Hypo Program - improve your understanding of hypos. There's a version for people with diabetes, parents/guardians of children with type 1, children with type 1 diabetes, teachers and HCPs.
 
Hi and welcome. You have come to the best place for information and advice. Try not to get overwhelmed, easier said than done, I know but be strong. You must be after getting to college! Take care of yourself and let family members read this site too. It will help with their understanding. Sending you a hug.
Thank you
 
welcome here Rebecca <3 :)

yes it is a gigantic chok and a gigantic task... I think type 1 much more than type 2 in most cases..

maybe you should now loosen up a bit towards sugar as your medications can also take you too low and then sugar is your friend number 1.

wish you luck and progress and also think it is good it was found out as diabetes type 1 can eat ones muscles away and that is bad... now you can get what you lost back again.. this Forum is a fantastic place to be for support, so stay here...
Thank you
 
Hi there @rxaxr ( Rebecca )
welcome to the forum !! :)

it is really tough at first -- for you , for your family , and everyone in your circle of friends.

try your hardest to remember to be kind to yourself - this D lasts a long long time and learning to accept it and get on with your life is really important.

you have a great support network here -- I am glad you chose to post here for help .

do keep posting and we will try to be there for you
himtoo
 
Hi @rxaxr and welcome to the forum!

I was 16 when I was diagnosed, the week before I started my GCSEs, so I know what that is like - it is horrendous. The only thing you can do is take it one day at a time.

Definitely make your school/college aware, as @catapillar has excellently suggested, of your diagnosis - you will probably have to sit your exams in a separate room, with other people who have 'special arrangements', so you can have your meter and hypo treatments with you, but that is no big deal - it's nice and quiet.

At the moment, a big part of it will be getting your doses sorted, and just learning to live with this new, big, scary thing, but when you see your DSN, ask about being sent on a DAFNE course, or whatever the local variant is. Learning how to count carbs will allow you to match your insulin to watch you eat, which is much, much easier in the long run, although I appreciate it is early days!

Like I said, I was 16 at diagnosis, and 21 now, so it still isn't that long ago. If you would like to talk more, or need a shoulder to cry on, or have exam related/uni related/any questions that I can help you, please feel free to drop me a PM.

*Hugs*

Eleanor
 
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