- Messages
- 103
- Type of diabetes
- Type 1
- Treatment type
- Insulin
Hi guys. I have posted here multiple times before, hoping everyone is staying safe!
I’m very concerned, I had a letter today that told me I now have Pre-Proliferative Retinopathy. I looked on the leaflet and it says it’s an advanced stage of retinopathy which has concerned me greatly.
I contacted the eye centre and they gave me very little reassurance, the lady just told me that my next appointment isn’t for 9 months, which must mean there haven’t been any “drastic” changes, however this sounds very drastic to me as I’m sure it was only maculopathy before? She said if it was urgent I would be seen again in 3 or 6 months, this has done very little to calm me down. It’s 2am and I’m very frightened, I’m 21 and can’t imagine a life without my sight. I was being seen every six months prior to now, I’m very confused.
I have tightened my control dramatically since 2017 when I first began to notice my sight deteriorating, however it doesn’t seem to be helping delay the problems.
I’m also not booked in for any laser, injections etc. should I press my GP for treatment now before it gets worse? I just feel as if I’m very alone on this issue, I’m finding it hard to get advice and just overall need a friendly conversation explaining what’s happening and why I’m not being referred for treatment yet.
Thank you ever so much in advance guys!
I’m very concerned, I had a letter today that told me I now have Pre-Proliferative Retinopathy. I looked on the leaflet and it says it’s an advanced stage of retinopathy which has concerned me greatly.
I contacted the eye centre and they gave me very little reassurance, the lady just told me that my next appointment isn’t for 9 months, which must mean there haven’t been any “drastic” changes, however this sounds very drastic to me as I’m sure it was only maculopathy before? She said if it was urgent I would be seen again in 3 or 6 months, this has done very little to calm me down. It’s 2am and I’m very frightened, I’m 21 and can’t imagine a life without my sight. I was being seen every six months prior to now, I’m very confused.
I have tightened my control dramatically since 2017 when I first began to notice my sight deteriorating, however it doesn’t seem to be helping delay the problems.
I’m also not booked in for any laser, injections etc. should I press my GP for treatment now before it gets worse? I just feel as if I’m very alone on this issue, I’m finding it hard to get advice and just overall need a friendly conversation explaining what’s happening and why I’m not being referred for treatment yet.
Thank you ever so much in advance guys!