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Advice please?

JPI572

Newbie
Messages
2
Type of diabetes
Type 2
Hi,
I don't often post to forums, but I think this probably is the best place to ask about my current situation.
First the background, back in March 2013 I was diagnosed - albeit after a little medical chin-scratching - I was diagnosed as T2. Given my age then, 40, the theory was I may have been T1.5...
My HbA1C was 98, I was around 110 kg (I'm 1.71m), and eating cakes and haribos by the packets (and not the mini ones either!), and Lucozade and full sugar fizzy drinks by the bottle. So, I thought that's fair enough, I have brought it upon myself.
The diagnosis was most definitely the kick up the backside I needed to do something about it. Initially, I was on Gliclazide and Metformin (1+1 and 2+2 daily respectively), although the Gliclazide was reduced by half after 6 months, and completely removed a further six months down the line. The Metformin is now one at breakfast and one with the evening meal. That change happened at the same time as the Gliclazide was withdrawn. At the same time, the diabetic nurse changed at my practice, and is now much older, which I think has contributed to my dilemma.
Since the original diagnosis, I have changed my lifestyle immensely and the HbA1C levels have been 56, 39, 28, 28, 28, 28, 29, 29, 32 and 31 (I have loosened the diet lately...). My weight is now 64 kg. My cholesterol has levelled off at 4.3 (1.2 & 3.1). All other levels are "normal".
My thinking is that if it was not for the original diagnosis, if anyone had presented these levels there is no way that they would be considered diabetic, and that I could have reasonably be considered to reversed my diabetes. However, the practice nurse doesn't seem to consider this as a possibility, being very much of the old school that diabetes is a lifetime condition.
I very much want to a) ditch the Metformin, but not without medical backup and b) get acknowledgement that I have successfully reversed my diabetes, without meeting a brick wall.
Short of changing my practice, which would be nearly impossible without moving, is there any way I can go about either of these without wating for the practice nurse to retire?

Thanks
JPI
 
You can always ask for a second opinion?

Myself. I couldnt class myself as cured if I was still using metformin. Or any meds for diabetes.
 
Well as far as medication is concerned the final decision is with you but preferably as a result of an agreement between you and your nurse after you have discussed it and given her the reasons why you wish to stop.

I have never subscribed to the "cure" for diabetes. There are people out there who can still eat Haribos and drink fizzy drinks and not get extremely high blood sugar readings. You can't do that anymore. That's what diabetes is and you have it.

There have been a few people who have been proactive and have changed their lifestyle before they go and see their doctor and have had trouble convincing the doctor that there is something wrong. A lesson to be learned there I think.
 
Thanks for your replies.

A couple of points - how can I get a second opinion when the the practice will always direct me to the same nurse, if I mention that my reason for making an appointment is diabetes related?

The other thing is that I want to come off the Metformin, if only to discover if the HbA1C levels are at the level they are because of it or my lifestyle changes (or a bit of both...). If they shoot up again, fine, I know that it is needed, but I really suspect that I would maintain levels in the 30s at worst.

I never did claim that I had "cured" my diabetes, just that I may have reversed it. I know it will always be there if I go back to my old ways, which I don't plan to do.
 
Thanks for your replies.

A couple of points - how can I get a second opinion when the the practice will always direct me to the same nurse, if I mention that my reason for making an appointment is diabetes related?

The other thing is that I want to come off the Metformin, if only to discover if the HbA1C levels are at the level they are because of it or my lifestyle changes (or a bit of both...). If they shoot up again, fine, I know that it is needed, but I really suspect that I would maintain levels in the 30s at worst.

I never did claim that I had "cured" my diabetes, just that I may have reversed it. I know it will always be there if I go back to my old ways, which I don't plan to do.

Hi,
I know I'm relatively new to all this but if I was you I'd bypass the diabetic nurse and go and make an appointment with your GP and discuss your concerns/needs with them after all they have over all responsibility for your care. If the receptionist asks what the appointment is relating to then come up with a bogus complaint or be elusive by saying something like your having headaches or think you have an infection. I know its misleading them but if it gets you the information and advice you need then its worth it. I've read on here that it is possible to reverse diabetes so therefore in theory it must also be possible to reduce your meds and become diet and exercise controlled only.
Good luck
Maggie/Magpie
 
What @Maggie/Magpie says above.. see who is the Diabetes overseer doctor at the practice as the nurse is probably supervised by a GP (who signs your prescriptions for example). And make an appointment. However, if your practice is similar to mine, the overseeing doctor will know less about your condition than you do. I stopped taking metformin because it disagreed with me. I told the nurse a month or so later. Assuming you are monitoring your bloods yourself then you can keep a good eye on what happens if you do stop. As always what you put into your body is up to you.
 
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