Billytrack
Active Member
- Messages
- 32
- Type of diabetes
- Type 1
- Treatment type
- Pump
My name is Brian. I also use Afrezza. I am not an investor in anything....wish I was... the money they spend on OUR medical needs is the only reason any of us have any insulin to begin with.
I've been using Afrezza for a few weeks now and my results are incredible. My last A1c when I was on Humalog was 10.1 and my A1c that will be entirely Afrezza may be below 6. If it's not below 6 it will be really close to it.
I have had excellent control with Afrezza. It doesn't work anything like any other insulin I've ever used. Right when I 1st started using it I joined a thread very much like this one. I was attacked constantly, called a liar, an investor and so forth.... It was a really bitter experience for me. I'm not going through that again just for posting my amazing results I have. What I am going to do is continue to live my life using Afrezza and having Non-diabetic like readings everyday. I may not live forever, but I will live like a Non-diabetic from now on.
Afrezza does so much more than just be a fast acting super easy to use insulin. It's been a life changer for me. I hope it gets approved in the U.K. so it can change some lives with you as well!
I wish you all the best of health and happiness!
Brian
It's very interesting how everyone talking about this insulin is a completely new member of the forum, taking part only in this specific thread...
Having seen how badly COPD and asbestosis affects people there is no way I would have anything that could damage lungs. No way. No matter if it did ease injections etc.having been on insulin for 30 years and no complications why would I want to risk my breathing. How can any damage to lungs be minor even whether it is a minority of people or minor damage?
If you damage lungs then that is not good.
We all know from asbestosis etc that damage is not necessarily immediate. My uncle died the most awful, excruciating death from it 40 years after handling it.. Me personally I won't be joining the queues to get it.
@AfrezzaUser, @bsharp669, as a long term triallist and a shorter term user, can you please share your experiences of your spirometry tests that I trust were undertaken according to the MannKind guidelines?
@AfrezzaUser, @bsharp669, as a long term triallist and a shorter term user, can you please share your experiences of your spirometry tests that I trust were undertaken according to the MannKind guidelines?
Just don't like the idea of a inhaled insulin, what are the long-term effects on the lungs and will it work as well as injections?
For those who have a needle phobia or are struggling with injections then it will be a welcome relief.
I started taking Afrezza about 17 days. I could not be happier, I feel so in control of my diabetes. I was one of the people that experienced a slight cough when I first started taking it, but that has subsided.I'm taking Afrezza andi
I'm on it. I love it. I may appear to be promoting it... But only because I've not experienced anything like it before and I think it's a huge game changer for all diabetics. Can you reference a person on it who doesn't feel more in control of their diabetesEven Alfred Mann says that it is necessary to carb count as a type 1. The insulin action is quite interesting:
As you'd expect it is rapidly absorbed and is flushed through relatively quickly, probably by virtue of it being a monomer rather than a hexamer. Having said that, my experiences with the current fast acting is that I don't see the result of them still being in my blood beyond 3.5 hours.
Whilst Sam may be a wonderful case study, there were 2000 people on the trials and I don't believe it was wonderful for all of them...
I'm afraid I'm very much a cynic when I see something like this having claims made about it from someone who appears to be promoting the product.
Having said that, I will always put myself forward to trial something like this. Who knows how real it is...?
@AfrezzaUser , @Im_typeone, @Bsharp6669: As always with new treatments and also the known questionable practices that certain investors in MannKind have previously undetaken, there is what I'd describe as a healthy dose of scepticism within the diabetes community here. Some are very clearly impressed with the idea of Afrezza, some are intrigued by it and the change in the pharmakinetics and others are simply wary.
We don't really know you guys, and it's interesting to find you turning up on the forum to share your stories. It would be great if you could tell us how you found out about this thread and what your diabetic life looked like before you started to use it, what drove you onto the trial and then the change in treatment, whether the product seemed like a last throw of the dice, etc.
@AfrezzaUser, you've become the poster boy and evangelist for the product and understanding the reasons why that is would help a lot of the people on here.
I fall into the intrigued by the pharamkinetics and effects but wary of the delivery mechanism. I am well aware of the concerns relating to introducing a growth hormone into the lungs and the incidence of cancer that typically follows.
You guys must get that any new treatment that is introduced, seemingly without any negative experiences, is highly unusual and tends to set off an alarm for most that something isn't quite right. Hence the reactions that have been seen on here.
A discourse allowing us to understand what it was you were struggling with before where we can ask you questions would be most welcome on our part.
The answers to your questions are on his blog: http://afrezzauser.com/my-story/
I don't want to give you any links-you would probably see it as me trying to lead or trick you, but it's fairly simple to look up the clinical trials and results. That's the beauty of the Internet. Another great place to look is the Advisory Committee (Adcomm) notes/videos for the Afrezza FDA recommendation.It doesn't actually give any medical data though of any imorovements.. Just testimonies according to what I have read.
I don't want to give you any links-you would probably see it as me trying to lead or trick you, but it's fairly simple to look up the clinical trials and results. That's the beauty of the Internet. Another great place to look is the Advisory Committee (Adcomm) notes/videos for the Afrezza FDA recommendation.
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