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After todays review.....

Boo1979

Boo1979

Well-Known Member
Messages
1,849
Type of diabetes
Other
Treatment type
Tablets (oral)
The diagnosis on my forms has now changed from T2 to “ diabetes aetiology uncertain”
First diagnosed in hospital with BM of 28 and diagnosed as insulin dependent (over 20 years ago) then that was fairly quickly changed to non insulin dependent when I pointed out that the doctor was labouring under the impression that I was 15 years younger than my real age. Although the consultant at that time also said I had been diabetic for at least 15-20 years pre diagnosis ( so from sometime in late teens to ealry twenties)
Todays review came up with hba1c of 40, libre indicating nocturnal hypos (and predicted hba1c of 39 )so my meds have now been cut in half.
Consultant has also ordered GAD and anti islet antibody tests and was also tracking family history of diabetes. All very interesting - I never have fitted usual T2 profile
 
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The diagnosis malarkey seems to be a mite tricky... your Libre seems to be doing the job. It should be useful to track your drop in meds. I hope the tests are informative, rather than leading to more questions and uncertainty.
 
Boo1979 said:
The diagnosis on my forms has now changed from T2 to “ diabetes aetiology uncertain”
First diagnosed in hospital with BM of 28 and diagnosed as insulin dependent (over 20 years ago) then that was faitly quickly changed to non insulin dependent when I pointed out that the doctor was labouring under the impression that I was 15 years younger than my real age. Although the consultant at that time also said I had been diabetic for at least 15-20 years pre diagnosis ( so from sometime in late teens to ealry twenties)
Todays review came up with hba1c of 40, libre indicating nocturnal hypos (and predicted hba1c of 39 )so my meds have now been cut in half.
Consultant has also ordered GAD and anti islet antibody tests and was also tracking family history of diabetes. All very interesting - I never have fitted usual T2 profile
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Interesting. If my Endo ever saw my Libre traces he'd swallow his tongue. On my Libre, the HbA1c estimate is usually 21, and it does show lots of low, low nights, consistently, however, my venous blood HbA1c literally bounces 31<>33.

Could your nighttime haypos be compression lows Boo, or are you testing at those same numbers during the night?

Fingers crossed the tests show what you hope for Boo.
 
DCUKMod said:
Interesting. If my Endo ever saw my Libre traces he'd swallow his tongue. On my Libre, the HbA1c estimate is usually 21, and it does show lots of low, low nights, consistently, however, my venous blood HbA1c literally bounces 31<>33.

Could your nighttime haypos be compression lows Boo, or are you testing at those same numbers during the night?

Fingers crossed the tests show what you hope for Boo.
Click to expand...

What are Compression Lows? Something to do with the actual monitor?
 
Most of the hypos cluster between 6 -7am when Im sparko. The few were Ive been awake enough to do a comparison fingerprick test have varied - some within less than 1mmol difference, some others up to 3 mmol out
The view from the consultant is that because the libre estimate of 39 and the venous result of 40 are pretty much identical,and that I havnt been having any finger prick results above 9, then the hypo warnings have to be accurate and the dose of Gliclizide has to be halved
What I hope for is a coherant answer from the medics, dont particularly care what it is as long as it makes sense
 
hankjam said:
The diagnosis malarkey seems to be a mite tricky... your Libre seems to be doing the job. It should be useful to track your drop in meds. I hope the tests are informative, rather than leading to more questions and uncertainty.
Click to expand...
I think its getting more tricky with the identification of more and more forms.
Whan I was first diagnosed, you were either insulin dependant or non insulin dependent
 
At the end of the day, the type is just a label. The fact is we have diabetes of one type or another, but as long as we keeping it under control with or without meds, is it so important? If only they would do insulin tests as a matter of routine there would be less mistakes made with diagnosis and with medications.
 
Bluetit1802 said:
At the end of the day, the type is just a label. The fact is we have diabetes of one type or another, but as long as we keeping it under control with or without meds, is it so important? If only they would do insulin tests as a matter of routine there would be less mistakes made with diagnosis and with medications.
Click to expand...
Yes but labels are far from meaningless - there are significant physiological and metabolic differences between different forms of diabetes and the difference berween groups may also have implications for what interventions work best in gaining / maintaining control and how long for
 
Boo1979 said:
Yes but labels are far from meaningless - there are significant physiological and metabolic differences between different forms of diabetes and the difference berween groups may also have implications for what interventions work best in gaining / maintaining control and how long for
Click to expand...

Yes, I agree there are major differences.
 
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