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all alone

It's ignorance in people that makes them think that they can tell us 'you can't have that' I cut them short and tell them unless they are clued up on this condition then they should keep their opinions to themselves.

most of the people i love dont have a clue about diabetes and it does bother me that not one of them has taken the time to research it......and frankly im sick of talking about it too them but I wish they'd make the effort.

my mum isn't too bad anymore, she never used to say that I couldnt have things but when I was eating them i'd get 'the look' the universal look that all mothers are programmed with :lol:

I sometimes just eat things that she disapproves of just to annoy her :twisted: I take no pleasure out of it honestly :lol:
 
hehe, I think actually the main issue with parents and eating is that I live with my great grandmother who has no idea of the diet I should be eating - so her weekly shop has scotch eggs, cakes, biscuits and ready meals - I try my best not to eat them and tell her but it never works - next bet is to take her with me to a dietician I think.

On the brighter side, my friend is trying to match make me with another T1 in the local area so may have a stabby buddy! may not be too lonely soon spesh as I'm starting to make an effort on here.

:) xx
 
docs think tey know everything to do with diabetes but in fact tey know little . i was at doc today for my six mnth checkup as now i in the adult section . everythin ok but my hba1c is high still . i said to doc today can diabetics get depressed bout this he said yeah i said good cause i feel so alone in this like no one helping me now tat i in the adult section teyn want me to deal with sugar levels meself and injections to . it hard wen u got to wrk with it to eating at certain times asking boss can u go off do blood test wen u feel low .

its not fair cause i the only one in family who has this and i feel so alone .

i 23 yrs doin this now had it since i was 4 and my father and mother did all the worrying back ten but now i got to start facing reality if i dont take proper control i cud face complacations which i hve already .

please do any one feel like i feel in this
 
Hello Head.
My name is Carol and I have DB but mine is type 2 and I am a lot older than you but I agree with you that DB is the pits :evil: but we have it and that is a fact ,but there are some positives you know , the fact that you are taking charge of your DB yourself and asking your boss for time to go to test your bgs is a positive step in growing up and building your self esteem .Your boss will respect you for this and I am sure your parents are proud of you I cant imagine what it must be like to cope with DB for such a long time so keep your chin up and remember there are people on here who I am sure will be cheering you on :D
CAROL
 
i am a diabetic for almost 20 yrs now . was diagnoised when i was a toddler .
i finding it harder now dealing with this on my own like when i was younger my parents would decide what dose of insulin to take and what not to eat and what to eat .

But now i am 28 and yeah i do have support from my family and bf but they dont know how it feels to take injections eat regular times take blood readings ect it wearing me down i dnt hve anyone who is the same boat as me .

i go to the clinic every 6 weeks cause my readings are high and nurse and doc r brillant but they dnt live with the condition i do and i hate being a diabetic .

does anyone feel the same as me please if so email r reply back i need someone to talk to .
 
My family are very supportive....I feel alone and sad when we go out to eat..to be honest not for me but my family as I can see that they want to order the Pizza, Pasta and Great Italian deserts BUT (love them to bits) they say lets have a mixed grill......I am the one that says NO order what you want!!!
 
I was unsure about posting on this thread because I'm really not sure if I would use the word alone :? Its been very frustrating over the past couple of years, before that 21 years of doing okay really. I think forums are good because at least we can talk about the highs and the lows, the funny bits and the sad bits and the positive and the negative bits. Because of some ongoing problems and tests and appointments, I have an aquaintance friend and when she asks about my diabetes and I say I have a hospital or doctors appointment, she listens and then talks about her high blood pressure as if what I have just said is not really significant :( actually writing about this has made me realise that at that time, I do feel a bit lonely, its not just the case of sticking a needle in your body 4+ times a day and not eating sugar! I get the impression that she thinks this is all I do and thats it :roll:
It would be nice not to face problems alone and to have that special person to unload the worries and to share them together, even if that person didn't have diabetes them selves. RRB
 
Robinredbreast said:
I was unsure about posting on this thread because I'm really not sure if I would use the word alone :? Its been very frustrating over the past couple of years, before that 21 years of doing okay really. I think forums are good because at least we can talk about the highs and the lows, the funny bits and the sad bits and the positive and the negative bits. Because of some ongoing problems and tests and appointments, I have an aquaintance friend and when she asks about my diabetes and I say I have a hospital or doctors appointment, she listens and then talks about her high blood pressure as if what I have just said is not really significant :( actually writing about this has made me realise that at that time, I do feel a bit lonely, its not just the case of sticking a needle in your body 4+ times a day and not eating sugar! I get the impression that she thinks this is all I do and thats it :roll:
It would be nice not to face problems alone and to have that special person to unload the worries and to share them together, even if that person didn't have diabetes them selves. RRB
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Hi RRB,

I do know what you mean by the fact that non diabetic friends dont seem to get it. Previously I suppose I did feel very alone with it. But since joining this forum it doesnt seem to matter that others in my life may not get it because there are people here on this forum who do! I know that even on the forum there are differences in circumstances and health but I have been surprised and humbled that not only are there people who have felt like me but also that actually I am Ok! ( despite the wobbles. )

I seem to be more accepting of those who dont get it as long as I do and have others who I can confide in if neccessary :)

Lucy xxx
 
One thing I've noticed over the years is that your sugar levels have a real effect on how you feel and percieve things around you, I find if sugars are high, I feel alot more isolated/paranoid about my place and surroundings, has anyone else found this?

I understand the mechanics of how the chemical imbalance can skew your view on your surroundings, so just kind take it as it comes.


Bob
 
I feel exactly the same - been getting tearful all day today. I can't get the control like I used to do I am constantly beating myself up - I also feel really scared at times that I am not in control of my own body! I am Sick today with a high temp and my sugar has just been rising throughout the day even with low carbs at lunch and extra correction doses.
Thanks to everyone who posts here - it does feel like I have found people that understand!!!
 
I agree. Thanks to all who listen, respond and generally make me feel as though I'm not going crazy. We're in this together and to know someone else thinks and feels like me really does help. Riri x
 
Hi to all fellow diabetics, this is the first time in my 19 years of having diabetes that I feel I need to talk to people in the same boat as me. I've struggled for many years with it , never really delt with it and to be honest it scares me. I haven't treated myself to great smoked alot of cannabis just so I could forget about it all probably the worst possible thing to do. I don't want to be bit by this condition . I think sport and exercise have saved me so far pure luck on my behalf. I've felt alone for a number of years but I'm now ready to man up and accept diabetes. About time hey.
 
Hi to all fellow diabetics, this is the first time in my 19 years of having diabetes that I feel I need to talk to people in the same boat as me. I've struggled for many years with it , never really delt with it and to be honest it scares me. I haven't treated myself to great smoked alot of cannabis just so I could forget about it all probably the worst possible thing to do. I don't want to be bit by this condition . I think sport and exercise have saved me so far pure luck on my behalf. I've felt alone for a number of years but I'm now ready to man up and accept diabetes. About time hey.
 
Hey Gting,

Thanks for making the first step and posting on here. You probably already realize that diabetes won't go away just by ignoring it.
Perhaps someone can help if you tell us whether you're type 1 (insulin) or type 2 and what problems you're having at the moment?

Ste
 
Gting said:
Hi to all fellow diabetics, this is the first time in my 19 years of having diabetes that I feel I need to talk to people in the same boat as me. I've struggled for many years with it , never really delt with it and to be honest it scares me. I haven't treated myself to great smoked alot of cannabis just so I could forget about it all probably the worst possible thing to do. I don't want to be bit by this condition . I think sport and exercise have saved me so far pure luck on my behalf. I've felt alone for a number of years but I'm now ready to man up and accept diabetes. About time hey.
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Well done Gting you have taken the first positive step forward :clap: Give your a pat on the back because, as you say, you are ready to manup and accept diabetes :thumbup: Best wishes RRB
 
Anna I know what you mean by beating yourself up. Everytime I get a high sugar I give myself a hard time about it.

I don't know anyone else with diabetes and like others have said, I draw a lot from this forum knowing that others go through what I do. Its also been a tremendously good resource for me and has brought me better control since I've been on here.
 
I'm also 28 and type 1. I get these feelings regulary. I think the problem with diabetes is that it isnt something that you can see from the outside so people automatically presume you are okay. I unfortunately dont have many supportive people around me and my family dont seem to understand the hard work that goes in to the disease. My mum said when I was first diagnosed and struggling, 'Just get on with it and stop moaning!' so I rarely tell them anything anymore.

I think people think its a couple of injections, its easy and thats it but we all know it is far far more than that. As well as being a cracking mathmatician I have to be my own counsellor!

SO yes I feel lonely a lot and I can completely understand that feeling. If there are groups in your area (check fbook) it might be an idea to meet people who know exactly what you are talking about when you get technical!

H x
 
Well, I don't know if this will help or not... But I don't feel alone. And I don't mean that in a harsh way. Perhaps because I diagnosed as a baby, I have always got on with it, accepted it and never ever felt sorry for myself. It could be far worse and diabetes has never ever stopped me doing anything. I want to run the marathon one day, and I will do it. I don't feel very different to anyone else and, until my sister was diagnosed with diabetes too, I knew no one else with the condition. I have good control (of course, I have good days and bad days) and must admit that when my diabetes is doing something 'different' for a few days/weeks, it annoys me because it gets in the way of my day-to-day life and I can't predict what it will do next. But sticking to a routine and having as good control as I can means that I will hopefully have a long and healthy life, so I do what I need to do and think myself lucky.

I hope one day all those 'sufferers' who feel alone will no longer feel that way xxx
 
hails said:
I'm also 28 and type 1. I get these feelings regulary. I think the problem with diabetes is that it isnt something that you can see from the outside so people automatically presume you are okay. I unfortunately dont have many supportive people around me and my family dont seem to understand the hard work that goes in to the disease. My mum said when I was first diagnosed and struggling, 'Just get on with it and stop moaning!' so I rarely tell them anything anymore.

I think people think its a couple of injections, its easy and thats it but we all know it is far far more than that. As well as being a cracking mathmatician I have to be my own counsellor!

SO yes I feel lonely a lot and I can completely understand that feeling. If there are groups in your area (check fbook) it might be an idea to meet people who know exactly what you are talking about when you get technical!

H x
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You say people assume you're okay but, apart from those times when obviously we have a hypo, etc, we are okay!! We just have a condition like someone with asthma or whatever. I went to a support group when I was a kid but didn't enjoy it because all we talked/thought about was diabetes and it depressed me. I don't need to wallow in it, I want to enjoy my life :)
 
VAJ1985 said:
hails said:
I'm also 28 and type 1. I get these feelings regulary. I think the problem with diabetes is that it isnt something that you can see from the outside so people automatically presume you are okay. I unfortunately dont have many supportive people around me and my family dont seem to understand the hard work that goes in to the disease. My mum said when I was first diagnosed and struggling, 'Just get on with it and stop moaning!' so I rarely tell them anything anymore.

I think people think its a couple of injections, its easy and thats it but we all know it is far far more than that. As well as being a cracking mathmatician I have to be my own counsellor!

SO yes I feel lonely a lot and I can completely understand that feeling. If there are groups in your area (check fbook) it might be an idea to meet people who know exactly what you are talking about when you get technical!

H x
Click to expand...

You say people assume you're okay but, apart from those times when obviously we have a hypo, etc, we are okay!! We just have a condition like someone with asthma or whatever. I went to a support group when I was a kid but didn't enjoy it because all we talked/thought about was diabetes and it depressed me. I don't need to wallow in it, I want to enjoy my life :)
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I do feel you are lucky to be feeling that way, but must take into account not everyone can accept the condition as easily as you have. I can understand how people have had their lives changed by the condition. If you are in the position of having it from a very young age, then basically you have grown up not knowing anything different so therefore the imapct it has made on your life may not be as big as being diagnosed at a later age and having to change their lifestyle. Please do not assume these concerns that people are stating are just "wallowing". Here we can all expect to say how we feel without worrying about being told to get on life. Empathy is a virtue that is welcomed
 
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