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Anti vegf injections

stevelond1

Newbie
Messages
1
Type of diabetes
Type 2
Treatment type
Insulin
Hi I have been told by the hospital that I need anti vegf injections in both eyes I’m petrified

Do they hurt and how bad is the experience is there any need to worry I’m so scared

Any advice greatly appreciated I have diabetic macula odema
 
Sorry, I do not have any experience of this treatment but stay tuned as members here who have had vegf will surely be along soon.

Welcome to the forum. Tagging @daisy1 for the fabulous introductory post offered to all newcomers.

It may help members to offer up advice if you give a little more info such as which treatments, if any, you take to manage your Diabetes but only if you are comfortable with that.

Have a wander around the forum and ask as many questions as you like.
 
Yes I’ve had them. No it doesn't hurt but the whole experience is not nice. Uncomfortable is probably the nicest way to explain it. I can elaborate if you wish but it may be best for you to find out for yourself. Going into excessive detail may put the fear of god into you.

Overall it’s not something to be feared given that it works, but I’m certain you won’t like it.
 
Hi @stevelond1 ,

I have had treatment with anti-VEGF for macula odema too.

Take a peaked hat & or dark glasses for when you come out from the appointment.

I personally have no issues with the procedure. It doesn't hurt on account of pre-prep localised anesthetic eye drops administered. If you're used to eye drops? You're in the "zone."
I also find the HCPs at my eye unit calm, friendly, professional & empathic.
Get the first one done & the rest will be in your stride... :)

Best wishes & good luck.
 
Hi I have been told by the hospital that I need anti vegf injections in both eyes I’m petrified
Welcome to the forum.
I've only ever had a cataract operation. The local anesthetic was in the form of a small tablet placed in the corner of the eye and that was just slightly irritating so I didn't feel anything at all when they injected anesthetic or when they replaced the lens.

Like Jaylee I found the HCPs at the eye unit calm, friendly, professional & empathic. In fact the two surgeons were laughing and joking most of the time, very relaxing, just wish I could remember the jokes. All the best.
 
I've recently finished a course of 12 similar injections. It was fine. Ask them to put extra numbing drops in if you like but unlikely to be needed. Worst bit for me was the unpleasant taste in my mouth about 30 mins after as something worked its way through. But by then I had nearly walked back home. Just check that they have wiped the black pen mark off over your eyebrow before you leave so you don't look a numpty!
 
Make sure you insist they wash out all the iodine after the procedure.
I am very sensitive to iodine , the first time i had the procedure once the anesthetic wore of it was as my eyes were filled with broken glass for hours, not nice.
The procedure itself is not painful , but it is not exactly relaxing!
The process is lots of drops of anesthetic and anitbiotics [the a for mentioned iodine] into the eye , when numbed the eyelids are help open with a clip you are then asked to look sidways or up at a target [the doctor will keep you informed what is going on all the time so no surprises] the injection itself feels like a pressure and brief ache , you will even see the liquid go in.
After the injections you may see black dots which are bubbles these go in a few hours.
Your vision may blur completely after 10-15 mins ,it varies with me longest i had was first time near 2 days last one it never got fully blurred.
Do ensure you have transport available to get you home after the procedure as driving is a no no.
Obviously the above is only my own personal experience .
Best of luck.
 
Make sure you insist they wash out all the iodine after the procedure.
I am very sensitive to iodine , the first time i had the procedure once the anesthetic wore of it was as my eyes were filled with broken glass for hours, not nice.
The procedure itself is not painful , but it is not exactly relaxing!
The process is lots of drops of anesthetic and anitbiotics [the a for mentioned iodine] into the eye , when numbed the eyelids are help open with a clip you are then asked to look sidways or up at a target [the doctor will keep you informed what is going on all the time so no surprises] the injection itself feels like a pressure and brief ache , you will even see the liquid go in.
After the injections you may see black dots which are bubbles these go in a few hours.
Your vision may blur completely after 10-15 mins ,it varies with me longest i had was first time near 2 days last one it never got fully blurred.
Do ensure you have transport available to get you home after the procedure as driving is a no no.
Obviously the above is only my own personal experience .
Best of luck.

In my experience Eylea dispurses quicker than Lucentis.. Yep the black spot "Muppet eye" was more noticeable with Lucentis for me. Agree "how are you getting home?" The ask. Don't drive.

"How many fingers am I holding up?" One session I saw a packet of Polos. I was correct! :)

I just focus on an imaginary glass piramid & let her do the "bizz."
 
In my experience Eyelea dispurses quicker than Lucietis.. Yep the black spot "Muppet eye" was more noticeable with Lucientis for me. Agree "how are you getting home?" The ask. Don't drive.

"How many fingers am I holding up?" One session I saw a packet of Polos. I was correct! :)

I just focus on an imaginary glass piramid & let her do the "bizz."
my treatment is Eyelea , oh forgot about the fingers thing.
Have you had the zombie red eye thing from nicked blood vessels?
My first time it was both eyes it just horrified people, haha did enjoy that.
 
my treatment is Eyelea , oh forgot about the fingers thing.
Have you had the zombie red eye thing from nicked blood vessels?
My first time it was both eyes it just horrified people, haha did enjoy that.
The first treatment was Lucentis.on just the right eye. Then the left eye said hello 6 months later? . They then suggested Eylea.
Eylea is my drug of choice. Ive only had one treatment with both eyes. the left has responded well for well over a year now needing no further action. the right? had a jab 3 months ago.. i am monitored & scanned every 4 weeks.
If they see anything? i''m walked straight through to the department next door.

I've never had any noticeable red eye or "bloodshot" after effects..

I've never felt the experience is as bad as described, when recounted to others.
 
@stevelond1
Hello and welcome to the Forum :) Here is the Basic Information we give to new members and I hope you will find it interesting and helpful.

BASIC INFORMATION FOR NEW MEMBERS

Diabetes is the general term to describe people who have blood that is sweeter than normal. A number of different types of diabetes exist.

A diagnosis of diabetes tends to be a big shock for most of us. It’s far from the end of the world though and on this forum you'll find well over 235,000 people who are demonstrating this.

On the forum we have found that with the number of new people being diagnosed with diabetes each day, sometimes the NHS is not being able to give all the advice it would perhaps like to deliver - particularly with regards to people with type 2 diabetes.

The role of carbohydrate

Carbohydrates are a factor in diabetes because they ultimately break down into sugar (glucose) within our blood. We then need enough insulin to either convert the blood sugar into energy for our body, or to store the blood sugar as body fat.

If the amount of carbohydrate we take in is more than our body’s own (or injected) insulin can cope with, then our blood sugar will rise.

The bad news

Research indicates that raised blood sugar levels over a period of years can lead to organ damage, commonly referred to as diabetic complications.

The good news

People on the forum here have shown that there is plenty of opportunity to keep blood sugar levels from going too high. It’s a daily task but it’s within our reach and it’s well worth the effort.

Controlling your carbs

The info below is primarily aimed at people with type 2 diabetes, however, it may also be of benefit for other types of diabetes as well.

There are two approaches to controlling your carbs:
  • Reduce your carbohydrate intake
  • Choose ‘better’ carbohydrates
Reduce your carbohydrates

A large number of people on this forum have chosen to reduce the amount of carbohydrates they eat as they have found this to be an effective way of improving (lowering) their blood sugar levels.

The carbohydrates which tend to have the most pronounced effect on blood sugar levels tend to be starchy carbohydrates such as rice, pasta, bread, potatoes and similar root vegetables, flour based products (pastry, cakes, biscuits, battered food etc) and certain fruits.

Choosing better carbohydrates

The low glycaemic index diet is often favoured by healthcare professionals but some people with diabetes find that low GI does not help their blood sugar enough and may wish to cut out these foods altogether.

Read more on carbohydrates and diabetes.

Over 145,000 people have taken part in the Low Carb Program - a 10 week structured education course that is helping people lose weight and reduce medication dependency by explaining the science behind carbs, insulin and GI.

Eating what works for you

Different people respond differently to different types of food. What works for one person may not work so well for another. The best way to see which foods are working for you is to test your blood sugar with a glucose meter.

To be able to see what effect a particular type of food or meal has on your blood sugar is to do a test before the meal and then test after the meal. A test 2 hours after the meal gives a good idea of how your body has reacted to the meal.

The blood sugar ranges recommended by NICE are as follows:

Blood glucose ranges for type 2 diabetes
  • Before meals: 4 to 7 mmol/l
  • 2 hours after meals: under 8.5 mmol/l
Blood glucose ranges for type 1 diabetes (adults)
  • Before meals: 4 to 7 mmol/l
  • 2 hours after meals: under 9 mmol/l
Blood glucose ranges for type 1 diabetes (children)
  • Before meals: 4 to 8 mmol/l
  • 2 hours after meals: under 10 mmol/l
However, those that are able to, may wish to keep blood sugar levels below the NICE after meal targets.

Access to blood glucose test strips

The NICE guidelines suggest that people newly diagnosed with type 2 diabetes should be offered:
  • structured education to every person and/or their carer at and around the time of diagnosis, with annual reinforcement and review
  • self-monitoring of plasma glucose to a person newly diagnosed with type 2 diabetes only as an integral part of his or her self-management education

Therefore both structured education and self-monitoring of blood glucose should be offered to people with type 2 diabetes. Read more on getting access to blood glucose testing supplies.

You may also be interested to read questions to ask at a diabetic clinic.

Note: This post has been edited from Sue/Ken's post to include up to date information.
Take part in Diabetes.co.uk digital education programs and improve your understanding. Most of these are free.

  • Low Carb Program - it's made front-page news of the New Scientist and The Times. Developed with 20,000 people with type 2 diabetes; 96% of people who take part recommend it... find out why

  • Hypo Program - improve your understanding of hypos. There's a version for people with diabetes, parents/guardians of children with type 1, children with type 1 diabetes, teachers and HCPs.
 
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