Anybody else on here suffer with necrobiosis lipoidica diabe

[Jenb85]

Steroid cream thins the skin? Oh my why wouldn't the doc tell me that... Have you found one cream to be better then another? Has yours stop spreading?

 

[carol-anne]

Hi

Been reading through the posts. I too have NDL i first got it in 2009 i thought it was an ingrowing hair at first but over the years it got bigger its about the size of a 50pence now but i saw the dermatologist he tried creams which didn't work then i had steroid injections these seemed to help with the colouring and the indentation that it had caused. But again having steroid injections can also thin the skin so i only had 2 injections within a year. I then developed another one on my right shin caused by 2 mosquito bites which I got 2years ago they gradually formed together and now the ndl is the size of 20 pence. It is very frustrating as i too am very conscious about wearing skirts shorts etc and i recently had compression for an ulcer that developed on my bigger one which thankfully has heald. But it makes me more wary of looking after my skin now.

 

[Jovifreak]

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Yes I have NLD on my right leg. It's itchy and I have just got my 1st small ulcer

 

[Lucy_Elizabeth]

Re: Anybody else on here suffer with necrobiosis lipoidica d

Hi Terry k ive had mine for 18 years since I was 16. I was told originally that it was fungal infection as it wasn't really heard of. My shins are covered and I am very paranoid about them. I was unable to wear the short skirts like my friends as I had to wear compression bandages on both legs. Thankfully now they dont open very often but when they do I get the awful bandages back and take a trip to the doctors every couple of days. I am told manuka honey is very helpful. I find the sun doesn't help mine. They are very painful at times. I was curious to know if there are more like us as I've never met or spoken to a fellow sufferer and wanted to know how different people get them treated.

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Hi, I am in a similar situation as yourself, I have 59 ulcers on my lower legs and have become so paranoid about them I am only 19 years old and I haven't wore a skirt or dress for 3 years now, my legs keep developing lesions and I really need help my doctors have no clue and just wondered if you had received help from any professionals thank you x

 

[KileNewman]

Hoping someone can help but I’ve got NLD and have done for about 5 years now, I’m male and have been T1 since 2012. I’m absolutely fine with them now as I’ve just learned to live with it as I know there is nothing that can really be done about it. I just want to know if anyone has any suggestions when it comes to being in the sun? Obviously I will wear sun cream but I’m going to the Maldives soon and just hoping for some suggestions. Thank you x

 

[Goonergal]

Hoping someone can help but I’ve got NLD and have done for about 5 years now, I’m male and have been T1 since 2012. I’m absolutely fine with them now as I’ve just learned to live with it as I know there is nothing that can really be done about it. I just want to know if anyone has any suggestions when it comes to being in the sun? Obviously I will wear sun cream but I’m going to the Maldives soon and just hoping for some suggestions. Thank you x

I can’t help with your question, but you’ve posted on a very old thread and those commenting haven’t been around for a few years. You’d likely be better starting a new thread.