Whilst I cannot answer your question about how long the test results take to be confirmed/denied as a MODY it might be a good idea for you to look at the University of Exeter site which is where they give lots of information and even include a MODY probability calculator. This is not foolproof but might be some information that you could discuss with your HCP.i have been told that due to family history and ruling out type 1 that I have a high chance of mody. Is there anyone else that has had there bloods sent to Exeter, I'm curious as to how long it takes to get the results back.
I'm waiting for an appointment with a specialist but haven't really been given any time frames thanks
i have been told that due to family history and ruling out type 1 that I have a high chance of mody. Is there anyone else that has had there bloods sent to Exeter, I'm curious as to how long it takes to get the results back.
I'm waiting for an appointment with a specialist but haven't really been given any time frames thanks
Thank you, that's good to know! I thought it might take a few months but had no idea! My cousin has mody but was misdiagnosed for a lot of years unfortunately she is quite poorly now. If it wasn't for that I would have been diagnose type one so feel lucky to have been tested for it
Hi my cousin was also on injections for 20+ years and is now just on tablets it must make such a difference!
I had my bloods taken at the beginning of March but have heard nothing from the hospital since
Hi there
I was diagnosed with Mody 3 almost 2 years ago. I had been on 4 injections a day for almost 40 years and now only take tablets. I am in Australia but the test was sent to Exeter. My specialist contacted me about 4 weeks after the test. I hope you become one of us as it is a much better prospect. Wishing you well ML
I agree, I would love to connect with other Mody3's they are supposed to be only 1% of those diagnosed but I have read they are becoming more frequently diagnosed as the cost of the genetic tests was prohibitive - the more who do it the cheaper it becomes! Hope you are travelling ok with your treatment - all good for me, I am still only on tabs after 2 years 3 months and a couple of days off injections that I had been on for almost 40 years ML
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