mody

Hi All, My names Jas. I'm 39 and have been Diabetic since the age of 16. I have joined the forum to obtain further insights into thos living with MODY and the impacts to their life. Also to get an understanding of how I can make it work for me after only knowing Type 1 for 23 years of my...

My wife is 66. She has suffered from diabetes since she was 18. She was eventually diagnosed with MODY in 2009,when she was 53 and prescribed glymepiride. Since then her health has declined (stroke in 2016, heart attack in 2019), she has put on weight and needs to take insulin in addition to the...

Hello Been a bit of a strange journey for me. Was told I likely had type one diabetes early may this year with a hbA1c of 104. I noticed I was gaining weight with insulin, so I have changed my diet gradually to try and reduce my insulin requirement. I have slowly learnt more and more from...

Anyone had a similar experience? My girlfriend had gestational diabetes which was diet controlled. Out of curiosity I tested my blood sugar with her kit and got a reading of 23mmol. I continued to test my BG for a week and didn't have a reading below 16mmol. I went to see my GP (who I hadn't...

Hi everyone! Just to briefly introduce myself.. I'm 27 and was diagnosed with MODY (Maturity Onset Diabetes of the Young) when I was 18.. that's a story for another time! My mum also has MODY and my brother carries the gene (specifically HNF4A for us). At diagnosis, I was told I was type 1 and...

Firstly, hello! I’m new to the forum but sadly not new to diabetes. I know you are not medical professionals but if any one has been diagnosed with MODY I’d love to hear from you! I was first Diagnosed as Pre-diabetic back in 2009, where a blood test showed my blood sugars were slightly high...

Hello, I am a 24 year old female. I was diagnosed as diabetic (type 2) last week following a HBA1C result of 51. I wasn't aware that the doctor was testing my blood sugar levels (I thought they were testing hormones). I also wasn't aware that they tested my blood sugar back in March 2020 and...

Hello all, I guess I never got to properly introduce myself, but thought, after my last HbA1C, this would be a good opportunity to share my story for others. I was diagnosed with Diabetes back in August 2019 and have since then followed a LCHF diet (almost hitting keto ranges at times, but not...

Hi guys, long time lurker, rare poster. Been feeling crook lately. Close to a year now. Constipation, cramps, blood in bowels, lethargy and depression. I haven't really had much faith in doctors so I have been putting off going to one (every doctor tells me something different). Diagnosed type...

so on Friday I was at the hospital to ask about getting a libra and they had the results of my genetic tests and I don't have type one after all. so I have come off insulin, now I have been taken very small doses and have a low carb diet, they have changed me onto diamicron. Today was the first...

I started to get high blood sugars around age 22 which flagged up in a routine blood test. I went on to develop gestational diabetes a few years later and now have full blown diabetes. The problem is I am very slim and not the typical type 2. If I loose the slightest bit of weight I will be...

Hi all, I read about MODY for the first time, yesterday; I had never heard of it before. I was diagnosed 9 years ago with Type 1 Diabetes at the age of 27. For about three years, prior to being diagnosed, I'd experienced what I now know as diabetes-type symptoms - blurry vision, had to drink...

Hello I’m 36, diagnosed 2 years ago with prediabetes with a 5.7 A1C (Through diet and exercise I got it down to 5.1 recently) . I had had symptoms of diabetes on and off though since I was in my 20s. After very large meals I would get unusually tired (not normal tired), feel almost comatose...

For many years I've brought up my fatigue and other symptoms (restless legs started when I was 17, then hair loss, constipation, low mood etc... Sometimes feeling almost like passing out after a normal meal), and also the fact that my family has a lot of diabetics, but all the GPs have told me I...

A bit of background info: •My Mum is a type 1 diabetic diagnosed at 26 years old. •Grandmother tyoe 1 diagnosed early 50s •Multiple uncles and Aunt type progressing to insulin •Older Brother recently diagmosed wirh type 1.5 LADA ●I have PCOS ●I have had gestational diabetes twice, first of...

Hi, my name is Fiona and 11 years ago, I was diagnosed with MODY at the age of 15. At the time I was diagnosed, not only was I immature, but my consultant was also my dad's and assumed I knew it all, despite him being Type 1. I rejected the fact I was diabetic, I hated it. I never test, I hate...

I have applied to get tested for a mutated HNF1A gene ("MODY 3"). My only dysglycemia is a weak first phase insulin response at meals. That makes me IGT. This problem surfaced while I was in my late 50s. The second phase response is fine. It would be weird if this is my condition, since almost...

Hi guys I wanted to ask for any advice on tackling Mody, I was diagnosed with it back in 2010 and was put onto just glibenclamide.Nowadays I'm on 500mg Metformin and 80 mg of Gliclazide three times a day as well as 8 units of levemir insulin at night before bed: as of today Im now on 10 units of...

i have been told that due to family history and ruling out type 1 that I have a high chance of mody. Is there anyone else that has had there bloods sent to Exeter, I'm curious as to how long it takes to get the results back. I'm waiting for an appointment with a specialist but haven't really...

Hello! I went for my diabetic check up a couple of weeks ago, where the nurse told me my sugars were high (they're normally well controlled), my blood pressure was high again (I do tend to struggle with it and was already on 10mg Rampril and 5mg amplodimine). My medication was upped for both...