Off the top of my head, I can remember @Jim Lahey experienced great improvements.
Hi @Caprock94 sad to hear you're still in pain. My first post here was asking about this, and I remember your friendly reply hoping things would get better for both of us. I got lucky, after a couple of months of treatment-induced neuropathy things went back to normal. It was awful while it lasted though. Leg cramps and stabbing pains would wake me up in the middle of the night. Once I was walking to work when my whole leg suddenly went numb and I had to sit down. It made me feel like a very old woman.
What about you? It sounds like things are better than last year, which is a good thing.
Since I take 150 mg of R.ALA and low carb.it has improved
Mine have improved - although I had non diabetic neuropathy due to very low folic acid (B9) levels, that my GP failed to test for over a few years of my reporting symptoms. Once I was finally prescribed folic acid and my levels slowly crept up to normal there was an improvement.
In the year between, as the neuropathy partially resolved, the restless legs and the itching/tingling were worse.
You don't think it could be something in the LCHF diet? Like magnesium deficiency. It can cause burning hands, and is likely if you eat a lot of dairy and drink caffeinated beverages on top of low carb. Might be worth trying supplements for a few weeks to see if it makes any difference.Mine got better, but seems to be worse lately. I’m hoping it’s more nerves regenerating?? My blood sugar control remains good.
Mine hasn't gone as extreme as yours, although I did have some stabbing pains. Those have largely gone. My feet just hurt/burn, especially after walking a significant distance. My hands feel hot. ALA, for some reason, seems to make it worse! It's like I'm getting too much blood flow to my hands and feet. They are very sensitive.
You don't think it could be something in the LCHF diet? Like magnesium deficiency. It can cause burning hands, and is likely if you eat a lot of dairy and drink caffeinated beverages on top of low carb. Might be worth trying supplements for a few weeks to see if it makes any difference.
Yes interesting I too have COke No Sgar most days. THen I read thisInteresting. I do drink a lot of diet sodas.
Reading all the posts it seems we are still in the dark with this condition and possible treatments.
I have had neuropathy in both feet/legs for 4 years and would say my sugar control has been good for the last 2 years at least. Lots of positive changes but the neuropathy just won't go.
I tried 300 Mg R-ALA a year ago for 3 months, with no change so I gave up on them. Then recently on here I read that a higher dose of 1200 Mg worked for a member. So as a compromise, just 2 weeks ago I started with the R-ALA taking 3 x 300 per day and something is defintely changing, but it's hard to describe.
As some have said, when you put your feet up, or try to sleep the burning gets worse, but in my case it was merely uncomfortable as opposed to painful. I never had a problem sleeping. This hasn't changed, but the sensation during the day has, a little. It's almost like it's gone during the day, but comes back at night. I will continue with the R-ALA for a few months and see what happens.
I am sure there msut be ongoing research in this field but I haven't found anything so far.
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