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Are there any type 1 diabetics here in remission?

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I haven't had a hypo since 11th March 2021 thanks to my strict carnivore diet and by slowly reducing and finally stopping all my exogenous bolus and basal insulin. I have NO symptoms, but I will if I started eating carbs again. That is why I'm still a diabetic. I've been in the non diabetic range since 26th July 2021 when I finally stopped injecting insulin or any other kind of diabetes medication. My diabetes is currently controlled by diet alone.
 

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Hi and welcome @Billy Barroo

Just caught up with this thread. Interesting reading.

Am I correct that the Paleomedicina studies you have referenced are these?

Published in 2015, and mentioning 19 months of insulin freedom for a 9 year old child diagnosed with T1?
I note that they say no insulin was used, and that normoglycaemia was achieved, with no hypoglycaemia
See quote below:

Case Report: A nineyear-old child with T1DM who initially was on an insulin regime with high carbohydrate diet then was put on the Paleolithic ketogenic diet. Following dietary shift glucose levels normalized and he was able to discontinue insulin. No hypoglycemic episodes occurred on the diet and several other benefits were achieved including improved physical fitness, reduction of upper respiratory tract infections and eczema. Currently, he is on the diet for 19 months.
Conclusion: Adopting the Paleolithic ketogenic diet ensured normoglycemia without the use of external insulin. The diet was sustainable on the long-term. Neither complications nor side effects emerged on the diet.


And


Where a 19 year old followed the Paleomedicina diet for 6.5 months and showed improvements in insulin production (see quote below)

Introduction: Type 1 diabetes mellitus (T1DM) patients are usually instructed to follow a low fat/high carbohydrate diet. A few studies in literature, however, reported metabolic benefits and sustainability of carbohydrate restricted diets. Case Report: Herein, we present a case of a 19-year-old male with newly diagnosed T1DM. The patient was first put on an insulin regime. Twenty days later, he shifted towards the paleolithic ketogenic diet and was able to discontinue insulin. Strict adherence to the diet resulted in normal glucose levels and a more than three-fold elevation of C-peptide level indicating restored insulin production. Currently, the patient is on the paleolithic ketogenic diet for 6.5 months. He is free of complaints, and no side effects emerged.
Conclusion: We conclude that the paleolithic ketogenic diet was effective and safe in the management of this case of newly diagnosed T1DM. Marked increase in C peptide level within two months indicates that the paleolithic ketogenic diet may halt or reverse autoimmune processes destructing pancreatic beta cell function in T1DM.


I did quite a bit of reading on Paleomedicina when I started my own carnivore journey back in 2017, and I distinctly remember thinking 'Wow, a 19 month honeymoon for a 9 year old, and a 6.5 month honeymoon for a 19 year old are not nearly long enough to claim that T1 has been 'successfully treated'.'

I have just had another look at the Paleomedicina website,
and I am not seeing any updates about what has happened to the child (presumably now aged 16, in 2022), and the 19 year old (presumably now 27 years old) which is rather a pity.
I would be very interested in hearing about them.

Do you have any further info?
 
Yes I have a lot more scientific (based on facts) information but I'm reluctant to post it on here in case I get accused for giving out misinformation again and then decide to close the commenting.
 
Type 1 diabetes mellitus (T1DM) patients are usually instructed to follow a low fat/high carbohydrate diet.
I don't recognise this advice.
When I was diagnosed, I was told to continue eating my usual diet. During subsequent DAFNE course and meetings involving a dietician, there has been no change to this advice.
For those following a low carb diet, this may appear relatively high(er) carb but I was never told to increase my carbs nor decrease my fats.
My diet is probably closest to a Mediterranean diet - high in fresh vegetables and fish.
 

Please note that you are not quoting my words, you are quoting an italicised extract from the Paleomedicina study written in 2014 - so perhaps you should query that statement with them.

In addition, Paleomedicina is an organisation that exists in Hungary.
Presumably you are as unfamiliar as I with the dietary recommendations given to newly diagnosed T1s by the Hungarian health service? It is not unusual for different parts of the world to give different carb intake advice.

Here is a link giving the details of the two main Diabetes associations in Hungary, if you wish to pursue this further.
 
Standard eatwell nhs advice is low fat high carb for everyone. Aka “eat normally” according to most practitioners.
 
Yes I have a lot more scientific (based on facts) information but I'm reluctant to post it on here in case I get accused for giving out misinformation again and then decide to close the commenting.

Thanks,
I was specifically asking for any further information you have on the 2 case studies on the Paleomedicina website.
If you have those links, then I would be very interested to read them, and would be grateful if you would link to them on this thread.
 
I was also told to continue eating my usual diet too, which was bad advice in my case, but there's a very good reason why they tell us to do that. I can't say on here what it is, but Zsofia Clemens and a few other nutritional specialists and scientists can.
 
I've gone and asked directly to the Paleolithic Ketogenic Diet group if there are any updates on your queries. My post is pending, Admin need to approve it first. I'll let you know if or when it's approved.
 
Standard eatwell nhs advice is low fat high carb for everyone. Aka “eat normally” according to most practitioners.
Like "Low carb" I guess there is no official definition of "High carb".
Which is the point I was trying to make when commenting on the quote from the study (yes @Brunneria I realised it was a quote and not your description.)

Just because the carbs on an Eatwell plate are higher than those who eat a "low carb diet" does not make it a high carb diet.
 
Compared to a historical diet (ie pre 1980’s) it does when low fat came in and cheap pasta, rice, sugar etc became ubiquitous
 
Any links to read about Rachel Chalmers? Couldn't find anything online.
 
Yes I have a lot more scientific (based on facts) information but I'm reluctant to post it on here in case I get accused for giving out misinformation again and then decide to close the commenting.
What! If it is untrue it will be flagged, I have read / seen anecdotal videos for years of people in your situation...don't forget many organisations still say Type 2 is chronic and progressive, yet my meters, A1c and fructosamine tests say different.
 
Just casually chatting with my endo, his main concerns are insulin bolusing for fat/protein meals is notoriously hard to get right, can be easier to have lows and there is no safe way to distinguish nutritional ketosis from clinical DKA - big factors in why neither US/UK current diabetes guidelines advocate low carb/Keto for Type 1s, even though now well recognised as very powerful for treating T2. This is why he has been doing a study with multiple T1 participants to see if there is helpful potential to modify the Type 1 guidance to support use of Low carb / Keto ways of eating. That said, Dr Bernstein in the USA is considered one of the major advocates of moderate protein, moderate fat, very low carb eating to help good glucose control in Type 1, especially children. But not accepted mainstream.

Thank you for posting a couple of references - but these are individual case studies - primarily of interest because they are such unusual outliers, and you may also fall into this category if you are a genuine Type 1 or a very rare, very long LADA Type. Pragmatically I envy you - my beta cells no longer function at any level and I do develop concerning DKA symptoms if I go longer than 24 hrs without my usual insulins.
 
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They mean only trace insulin which is confirmed by my c-peptide test. I produce trace insulin but wouldn't survive without injecting insulin. Type 1 is diagnosed as having a c-peptide below 0.2 nmol/l on diagnosis. If your c-peptide is not below this level three years after diagnosis than you were misdiagnosed.

 
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@ert Thanks for sharing. Sadly I no longer produce even trace insulin!
 
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Yes I have a lot more scientific (based on facts) information but I'm reluctant to post it on here in case I get accused for giving out misinformation again and then decide to close the commenting.
Hi,

Within the context of your topic. You are more than welcome to produce more recent documentation on the two cases studied using the Paleomedicina diet.

This sounds awful for you..
Your attachment is a copy of your initial admission for DKA & diagnosis in December 2019.

If you were re-admitted the end of February & early March, 2020.
What was the prognosis regarding the tests on your symptoms?
 
You are digging yourself into a deeper hole . You asked a question Quote: "Does it last a month, a year, 5 years or a lifetime? An extremely important point we keep coming back to". and I answered it. Quote: "The honeymoon period can vary from person to person. It can last for any number of days, weeks, months and years". I actually thought you didn't know. You replied Quote:"Yes I did know that. No need for sarcasm." If you you already knew, then why did you ask the question? You need to stop spreading false information It's the likes of you that's causing the confusion. The scientific evidence is out there, do some research it's been there for years. The out of date mantra saying "Only type 2 diabetics can go into remission" has been debunked on so many levels.
Can you explain how these type 1 diabetics can not go into remission? even though they did.
I'm no longer interested in your personal opinions. Show us some genuine scientific facts. or just let's agree to disagree with each other and leave it at that.
 

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