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Assistance needed?

LW, 17.0 is NOT normal. I'm shocked at your GP's lack of knowledge. Certainly on the print out of blood test results from my GP there is a reference to IFG (but not IGT).

Whompa73, no-one is diagnosed by just one blood test, and the NHS diagnostic criteria states very clearly that that the diagnostic threshold is above 7.0 on a fasting test and 11.1 or above in an OGTT. The fasting test would need to be over 7.0 on two occasions. The intermediate 'prediabetic' range is not diagnostic of diabetes, but is used to identify people 'at high risk'.

Whilst it's true that some people at the prediabetic stage may return to normal ranges or remain prediabetic for many years, it's also true of some T2s provided they are diagnosed early enough and can make effective lifestyle changes.

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Littlewolf I'm glad that you have come back to us. I don't think you are paranoid or a hypochondriac, you have legitimate concerns about your health and the poor quality of care you are receiving. If I were in your shoes I would change to a different GP practice. Your doctor's attitude is appalling. You deserve much much better. I can only begin to imagine how frustrating this is for you.

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I'm starting to think not just about myself but the multitudes of diabetics out there who don't get taken seriously until something is about to drop off. I am terrified of insulin resistance induced obesity as well as an ex anorexic. All my family started off skinny then got diabetics, fat and infertile...

This morning (I overslept and felt pretty rough)



Considering my average fasting glucose was upper 5s-6s when I started testing around 6 months ago, it looks like things are going downhill.

OGTT is next Wednesday. They'd better not tell me to leave them alone if it comes out at 11 or under at the 2 hour mark. I don't think they are even going to look at 1 hour which could go just about anywhere...

Sorry if I am just using this board to ***** and moan lately. I just don't want to end up like the rest of my family.


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how about being sneaky and eat a mars bar or something during fasting tests, i know this is naughty and will give false readings but they will have to do further tests then and hopefully find out whats wrong, just a thought, maybee its a bad idea but most of my ideas are


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I actually agree and I would eat something that you know gives you a high BG reading before the OGTT test because at the end of the day, if you do not have diabetes (which they are saying you don't) it's not going to be dangerous for you to eat carby carbs is it as it won't make your BG rise to an abnormal level.... If you're not diabetic, which your HCPs have said you are not, technically you should be able to eat anything you like as it won't effect you.....


Diagnosed with GD in 2010, Completely disappeared postpartum. Re-diagnosed December 2012 with type 1.5 diabetes, age 26, BMI 23 currently controlled by only Metformin, 500mg twice a day.
 

Wow! I'm a type 1 and I overslept this morning too, but even then I still only had a reading of 10.5!
 
Probably not helped by me taking my GPs advice to 'stop worrying and be a normal student' by indulging in some 4 cheese pizza last night. I couldn't sleep at 2:30 am and it was 11.5, then I woke up to that.

I emailed all this to my GP today and explained to him why I think I'm diabetic even though one of the two fasting tests I had was just under 7. He's fixated on that diagnostic criteria (which he looked up online the day I came to review results) but seems to miss the ANY RANDOM READING OVER 11mmol bit. It used to be every so often, and now it's almost daily. I am terrified it will ruin our relationship though. He will feel offended that I think I know more about diabetes than he does. The only reason he even ordered tests when no other GP would is because he likes me personally. He thinks I'm cool and smart. I don't want to offend him and get cut off from a chance of a referral, but even suggesting an endocrinologist might be 'better' than him would hurt.

Are they deliberately trying to make people who catch diabetes early think they are crazy? Do the pharmaceutical companies get a kick out of it? I mean it's ******* obvious I can't control my blood sugar, why do I have to wait around?

All I need is a GAD test to look for T1, if not it's likely T2 and if they really don't think it is at all possible for someone with their ribs clearly showing to be T2 then they an bloody well pay out for a MODY test too.

When I joined this site I was hoping I wouldn't see any trends and my occasional high blood sugar would remain occasional. I would be assured by comparison with Real diabetics that actually my levels were fine and I'd eventually leave reassured that I was just being silly. I did not expect this deterioration, especially after the lows experienced during the heat wave. To see upper teens has shocked me to my core. I was hoping this was all in my head.

Sorry for raving and being so MEMEMEMEME but I genuinely don't know what to do anymore. As I become increasingly panicked the GP just seems more *amused* and giggling with Intrigue at this case of a skinny, fit young thing complaining of magically occurring hyperglycaemia.

I am not on any steroids. I even stopped taking topical steroids for my psoriasis. Whether or not I take antihistamines for chronic urticaria doesnt seem to make a difference. I think it could 'just be stress' then I relax on a weekend in the countryside then BANG 15+ out of nowhere.

What the hell is up with this? He says there is no way it is type 1, MODY doesn't usually present with such high readings. Do I look like a type 2 diabetic? Could I lose more weight? This is me looking *heavy* after recovery on my birthday



God **** I don't know how much it's going to help kicking up a fuss but I'm so frustrated. I know it's vain that there are far worse things to worry about like losing limbs (like my uncle) but I don't wan to die a fat diabetic. Even when I was anorexic I STRUGGLED to get the weight off at first and I have ALWAYS had an intense near-constant craving for carbs. Food rules my life. I've been afraid of it or craving it insatiably for as long as I can remember.

I wonder if it's all related. My family history exacerbated by an eating disorder messing up my metabolism, triggered by the weight gain cause by PCOS at puberty. Anyone else with experience of multiple compounding problems?????

Can I thank you guys again just for being here whilst I go crazy and scream and rant....




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How could he possibly say with certainty your not type 1. As u know I had three years of back and for to docs tiredness/headaches just generally feeling out of sorts. Knew nothing of diabetes at this time if I did I would probably be in a situation similar to yourself
Was only after me phoning for my results after a test was carried out I was told to get to a&e, where I was told I was 12 hours away from being in icu, probably in a coma. type 1 can hit any time. Nowadays as u know tests can be done to see how it is progressing. alot of people are not diagnosed until an extreme problem is present. your readings recently are definately diabetic ones no matter what you have eaten/drank. Don't need to be a doctor to know that! What does need to be decided its if type 2 our slow onset type 1, given your age/weight wouldn't be a surprise. Really hope u start to get some answers from your oral gtt.

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My mother said half jokingly she can't believe my readings and I'm still walking. He must share that sentiment because he basically said if I was type 1 they'd know ie I'd be in hospital already. I'm not sure if a dozen trips to A and E in 6 months is enough for them.

They haven't heard of antibody testing but I will think of a way to try and bring the possibility up. They didn't know what the OGTT was or what it entailed..


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You definately need a new gp! It its not un common for late onset type 1 to still produce some insulin either phase 1, or phase 2 or a little of both. With your weight and age (being a little stereotypical here, sorry) wouldn't think you would be resistant to the insilin you are producing which will be helping things but not for a correct diagnosis. This leaves you with a problem! If things were to progress over time ie weight loss, thirst etc that would be typical type 1 symptoms and would probably be in a and e at this time. However where you are now a gad test and c peptide test would be very helpful to diagnose correctly. At least you do have a ogt soon but as said already you are still producing some of your own insulin which depending on how your pancreas reacts on the day will not give a correct picture. Looking forward to you posting the results of that.

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+1 If they're not taking it seriously(which they should) then needs must sometimes to get the tests that are needed.
 
It doesn't help that even if they knew everything about diabetes I am admittedly an odd case.

With my weight, age and the kind of numbers I'm seeing you'd think more type 1

With my PCOS and acanthosis nigricans which is caused by insulin resistance (my cousin was just diagnosed with it too) gradual decline and T2 running in the family you'd be more inclined to think T2

This is why I wish they would just do a bloody GAD test. If it comes back negative I will look stupid but at least it means there must be something I can do to fix my levels right? I'm not even sure now because apparently Metformin doesn't make that much of a difference anyway.

Thanks for putting up with me. The support, even just being able to vent does help, as well as hearing all of your stories. Everyone had a different route to diagnosis and different methods of management. Hearing them all and trying to relate to myself is helpful...

I don't know really.. I already changed dentists from a very posh NHS/Private chain because one Dentist kept trying putting off my NHS treatment then trying to charge me privately. I honestly don't know about switching GP when it's supposed to be a reputable one in a very affluent area close to me. Wouldn't I need to request my records from them to give to another GP (then have them ask me awkward questions about why I'm leaving) They already wanted a huge sum of money to release my records so I could apply for disabled student support. I gave up on that, even though I am struggling with days I feel I'll, because the application process was too much in itself >_>


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Yeah I could eat a Mars bar if they ever do another fasting test. Or before the OGTT though I don't know what that'd do to the 1 and 2 hour results.

-I used to have horrible bouts of reactive hypoglycaemia

-Sometimes I will spike to the moon at one hour then come back down to 7s

-Sometimes I will slowly go up and up and be in double figures for hours later

1Sometimes I don't even go above 12 and it could be the *same meal* which confuses me. But then again this sounds like a pancreas that decides to work sometimes and not others :/

Elaine described similar things, being high when she wouldnt have expected it then low when she ate something naughty and expected the worst.

I know cereal is absolutely guaranteed to spike me to the stars so it's probably better than a mars bar. Oddly, table sugar and chocolate do not tend to do as much to me as an orange, bran flakes, bananas and other supposedly healthy things...


I genuinely haven't a freaking clue what's going to happen on Wednesday. I know they already think I'm a nutcase. Wouldn't it be funny if I went and had a hypo during the test... That hasn't happened for a while

May as well laugh at myself >_>


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Littlewolf, applogies if I've missed a post or something but why won't they just do a GAD test ? It would hopefully easily put an end to a stressful situation for you ! You'd think the money for these tests came out of their own pockets. I think you can get them done privately but no clue of cost.


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They won't do a GAD test because they are saying your fasting BG is not in diabetic range is that right?

Yeh it happened with me with pizza! Tested 1hr after pizza and got 5.6!! No idea what happened that day! It's just as ridiculous now... Ate a jacket potato about 6 days ago and got 5.6 just 2 hrs later but I ate the same jacket potato 2days ago Nd got 8.3?? Doesnt even make any sense... Fed up of it...

Another thing I would do in ur situation is to wait until the next time u check for ketones and the stick goes as purple the one in the foto u posted then go up to A and E saying u feel dizzy, ill etc... Get THEM to check for ketones (they probably will anyway if u say ur having trouble with high BG) and if they see it go that purple they should do the tests for u! My GP and consultant were worried enough to request full bloods for me when I presented with 4+ ketones at the GP surgery..... It tends to panic them!


Diagnosed with GD in 2010, Completely disappeared postpartum. Re-diagnosed December 2012 with type 1.5 diabetes, age 26, BMI 23 currently controlled by only Metformin, 500mg twice a day.
 
LW, you're having a really bad time of it, I am sorry!

I would seriously try to change practices if I were you. I don't see how your readings can be normal. I think maybe at the beginning the numbers can be all over the place, - pre diagnosis. - I had two fasting readings about eight years ago, of 7 and 6.8. The doctor said that was fine and didn't do any follow ups until I was diagnosed this year with a fasting reading of 17.4 and another of 13 something in the surgery. But in all those eight years, and for years and years before, - since my early 20s, if I ate anything with sugar in it or lots of carbs, I behaved like I was drunk. - falling over, banging into things, etc. sometimes I couldn't see and had to stand by the wall and wait for it to pass. Obviously I wasn't testing and no doctor ever joined the dots. I spent most of my time eating low carb anyway, as I can't eat gluten, so I didn't have symptoms all the time. - I found it quite ironic when at diagnosis, the nurse practitioner said, " well, we've caught it early". Had they? Really??

Seems to me that you are doing their job for them and they just aren't getting it. Have you asked them what their practice criteria is for diagnosing diabetes? Would be interesting to know.




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Baked beans send me through the roof and strawberries send me so high within the hour that I feel sick, have to lie down and then always go to sleep for a couple of hours. - it's not always the things you expect.


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Ok, should the ketones show up again I will head to the hospital

You know it makes me mad to hear that, Hornplayer. 'We caught it early'? I would have wanted to punch the doctor in the face.




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