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Atypical insulin reaction - need advice

R

Rusty_Sweetbread

Active Member
Messages
29
Location
New Zealand
Type of diabetes
LADA
Treatment type
Insulin
I was recently asked about someone who has 'insulin antibodies'.
Apparently, her body 'attacks' the insulin she is given.

When it is administered, the insulin binds to protein, but is then eventually released when she has too little insulin in her system.
Hypo's are frequent, unpredictable, and unpleasant.
She's definitely diabetic, apparently, but it's a rare manifestation of something odd, and her doctor doesn't know how to treat it.
  • Any thoughts?
  • Any advice?
  • Any targeted questions that need to be asked?
(I said to ask on diabetes dot co dot uk, so she may have done that already, and I may have missed it)
Cheers
-Paul
 
Rusty_Sweetbread said:
She's definitely diabetic, apparently, but it's a rare manifestation of something odd, and her doctor doesn't know how to treat it.
Click to expand...

So does she still produce her own insulin? ie is her underlying condition regarded as T1. T2, something else?

I assume they've tried different types of insulin?

Rusty_Sweetbread said:
Hypo's are frequent, unpredictable, and unpleasant.
Click to expand...

Try going low carb???? (and hence minimise the amount of insulin required.)
 
Rusty_Sweetbread said:
She's definitely diabetic, apparently, but it's a rare manifestation of something odd, and her doctor doesn't know how to treat it.
Click to expand...

Can she see a different specialist/doctor?
 
EllieM said:
So does she still produce her own insulin? ie is her underlying condition regarded as T1. T2, something else?


I assume they've tried different types of insulin?



Try going low carb???? (and hence minimise the amount of insulin required.)
Click to expand...


Good questions.
Don't know what type of diabetes, I'm afraid, or whether her insulin production has fully ceased.
I'm assuming that they have tried a range of insulins, as they seem to running out of therapeutic options.
I expect that 'low carb' diets have been suggested too.
 
I would be surprised if Low Carb diets had been suggested by a GP, unless her GP is Dr David Unwin !
The vast majority of them are still sticking with the 'Food Pyramid' or the 'EatWell' Plate, 5 A Day etc.. Which are the worst dietary choices for a T2D.

It is unusual to find a GP ( or even a diabetes specialist) who knows as much about T2D as the members in here!
 

Yes, I would expect that group members collectively to have a vast amount of experience with diabetes.

But CHO restriction (150g/day CHO, and even 40 -70g/day) diets are not too new to be discussed by mainstream diabetes support and education organizations. Google koolhydraatbeperkt diabetesfonds for details
 
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