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Auto immune problems

P

Patrick l

Newbie
Messages
2
Type of diabetes
Type 1
Treatment type
Insulin
Just wondering how many people who developed late onset type one found that they also had or developed autoimmune problems such as vasculitis?
 
Type 1 (whether late onset or not) is an auto-immune system issue, and once you have one it is not that uncommon to get more - there are many different other autoimmune system conditions though

eg. my T1 was not late onset and I now have two other immune system conditions as well (though they have been quite spaced out - see my signature for details) - but not vasculitis
 
I too have another auto-immune condition - Reynauds and have been tested for others including coleiacs and pernicious anaemia because they seem to come together.
Neither of my parents have Type 1 diabetes. However both have other auto-immune conditions so I have wondered if I inherited dodgy immune system rather than the diabetes.
 
I was recently diagnosed with pernicious anaemia, it’s been 25 years since I was diagnosed with diabetes so it’s been a while between each diagnosis but generally auto immune conditions do come together and if you have one you’re very likely to get another.
 
I was told after about 20 years of type 1 that I had an under active thyroid and as it was classed as an auto immune problem that they usually go hand in hand .
 
I am 68 and 15 yrs ago became Type 1 diabetic, 25 yrs ago was diagnosed with Psoriasis Arthritis both auto immune illnesses. Both consultants have been excellent and cannot fault the NHS support enabling me to play golf three times a week and go to the gym twice a week. A month ago was the first sign my body was starting to break down, left eye showed first sign of damage and bloods showed Kidney issues. The result that been put on blood pressure tablets to ease kidneys etc and have set up a new gym program to try and reduce muscle wastage which believe it or not I am excited to start on Thursday. Finally I have worked hard over the last 2 Weeks since my consultant meeting to improve my Freestyle Libre results by 10% , so far so good. Any body who can recommend a banana replacement for energy on the golf course much appreciated as need to reduce potassium which keeping energy level.
 
Mr Derek said:
Any body who can recommend a banana replacement for energy on the golf course much appreciated as need to reduce potassium which keeping energy level.
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A sandwich? Depending on topping and type/size of bread, this should have about the same amount of carbs and calories as a banana.
Patrick l said:
Just wondering how many people who developed late onset type one found that they also had or developed autoimmune problems such as vasculitis?
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Not sure yet, but I'm being investigated for some type of arthritis (not RA).
Thyroid levels came back borderline last time, but I'm supplementing a little iodine now to see if this makes a difference. If it does, it's likely the reduction of iodised salt from cutting out bread/crisps/pasta/rice, and not autoimmune.
I also had a vitamin D deficiency (controlled with high dosed supplements), which is associated with autoimmune disease.
 
I’m not T1 but T2 but I do have a psoriasis and psoriatic arthritis, I have PCOS which isn’t yet classed as an autoimmune condition but is being considered as one (at the moment it’s classed as endocrine) also Diverticular disease which isn’t itself classed as autoimmune but is considered co morbid with autoimmune conditions.
 
I have (relatively) recently developed alopecia, though it developed ~35 years after I was diagnosed T1
 
I developed vitiligo on arms and legs about 20 years before my T1 diagnosis. In the last year I have started some signs of psoriasis.
 
SimonP78 said:
I have (relatively) recently developed alopecia, though it developed ~35 years after I was diagnosed T1
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How is it going? I am a long time Type 1 too and just developed sudden hair loss. They aren’t sure why yet. It’s so scary. I had full beautiful hair up until a couple of months ago. I do have post covid syndrome and lost almost 60 pounds since March. And, have been under extreme stress with a family matter. I also have several autoimmune disorders. I’m terrified it could be permanent.
 
I'm not Type 1, but Type 2. I have MTHFR mutation gene, POTS, CFS/ME (Pots, CFS/ME caused by Covid.) and they are part of autoimmune diseases/disorders etc. Esp the immune system is attacking healthy tissues/organs etc.

I also have a high positive Type 1 Diabetes predisposed genes - could end up LADA one day.
 
Type1 for 43 years and developed alopecia a few years ago wasn’t full blown just partial, only being able to grow half a moustache and one eyebrow wasn’t a good look lol, different but not a good look, I spoke to GP he said you’ve got one auto immune disease not surprised you have another , thankfully I’m back to a full goatee and two eyebrows so no more broken Mr Potato Head for me hehehe
 
Ushthetaff said:
Type1 for 43 years and developed alopecia a few years ago wasn’t full blown just partial, only being able to grow half a moustache and one eyebrow wasn’t a good look lol, different but not a good look, I spoke to GP he said you’ve got one auto immune disease not surprised you have another , thankfully I’m back to a full goatee and two eyebrows so no more broken Mr Potato Head for me hehehe
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Your posts are superb! The positive vibes would light up a coal mine!
 
Prancy said:
How is it going? I am a long time Type 1 too and just developed sudden hair loss. They aren’t sure why yet. It’s so scary. I had full beautiful hair up until a couple of months ago. I do have post covid syndrome and lost almost 60 pounds since March. And, have been under extreme stress with a family matter. I also have several autoimmune disorders. I’m terrified it could be permanent.
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Mine is not coming back, if I let my stubble grow there's very little left (though unfortunately there is enough that I still need to shave - I can't get away with stubble at all as the half a moustache look isn't great as @Ushthetaff says). Same is true for the hair on my head, I still have patches, so I use an electric razor every day or two to give it a quick trim. It's quick and easy so not a problem. I've not noticed a step change in anything else since my eyebrows and most of my eyelashes gave up the ghost. I still have (somewhat less) hair everywhere else it used to be.

I'm quite happy with my bald head these days, though it's certainly colder than it used to be, so I actually end up wearing a beanie most of the time during the colder months and a cap during the sunnier/warmer ones. There are some advantages, no shampoo required, no need to sort ones hair out in the morning (I used to have good thick hair with no male-pattern balding, though it was fairly short so this advantage is perhaps a bit of a stretch ;))

Results appear to vary though, so don't get too down-heartened by my experience, though for a man (I can't comment as a woman I'm afraid) I don't think it's the end of the world once you get over the fact you look different.
 
SimonP78 said:
Mine is not coming back, if I let my stubble grow there's very little left (though unfortunately there is enough that I still need to shave - I can't get away with stubble at all as the half a moustache look isn't great as @Ushthetaff says). Same is true for the hair on my head, I still have patches, so I use an electric razor every day or two to give it a quick trim. It's quick and easy so not a problem. I've not noticed a step change in anything else since my eyebrows and most of my eyelashes gave up the ghost. I still have (somewhat less) hair everywhere else it used to be.

I'm quite happy with my bald head these days, though it's certainly colder than it used to be, so I actually end up wearing a beanie most of the time during the colder months and a cap during the sunnier/warmer ones. There are some advantages, no shampoo required, no need to sort ones hair out in the morning (I used to have good thick hair with no male-pattern balding, though it was fairly short so this advantage is perhaps a bit of a stretch ;))

Results appear to vary though, so don't get too down-heartened by my experience, though for a man (I can't comment as a woman I'm afraid) I don't think it's the end of the world once you get over the fact you look different.
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i Use the theory that a bald head never goes out of fashion , fine if your a man but not so good if your not, or if you just love flowing locks, I’m lucky than even with my partial alopecia i could still grow a full head of hair but chose to shave it I suppose there’s no pleasing some people eh lol , even though my goatee and eyebrows are now growing fine and my nasal and nose hair have been given some type of magic growth hormone ( think that’s an age thing btw ) some pats of my body ( which shall remain nameless ) have decided to remain in the hairless domain ,
To be honest I don’t worry about it cos let’s face it worrying doesnt solve the problem it only makes it worse , I deal with it and move on , I have learnt a great deal since developing diabetes , and nothing now surprises me ,diabetes is all about finding out what works for you as an individual , I’ve lived 43 years with diabetes experimenting for what works for me , I’m not saying I’ve cracked it far from it but like British Rail I’m getting there .
 
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