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Autonomic Neuropathy

S

Sarahxx

Member
Messages
7
Type of diabetes
Type 1
Treatment type
Insulin
Hi,
Just looking to see if anyone here suffers with this awful complications and what symptoms you have?

Sarah x
 
hi i seem to suffer from stomach issues diahoria higher blood pressure then a normal person etc seem to have got this even my hba1c was good at the time from the doctors point of view
 
Oh yes I am the same my blood pressure
Doesn’t regulate itself upon standing so I have really bad dizzy spells and also a fast heart rate. It’s been abit of a nightmare to say the least.
 
Hi, I have been suffering with chronic diarrhoea since May 2017. I have seen the gastro team and have had numerous tests (colonoscopy, celiac etc) but nothing has shown up so my only thought is autonomic neuropathy. It has absolutely ruined my life :(

I also suffer with tachycardia and sweat excessively, however these are a doddle compared to the bowel issues
 
ccassidy539635 said:
Hi, I have been suffering with chronic diarrhoea since May 2017. I have seen the gastro team and have had numerous tests (colonoscopy, celiac etc) but nothing has shown up so my only thought is autonomic neuropathy. It has absolutely ruined my life :(

I also suffer with tachycardia and sweat excessively, however these are a doddle compared to the bowel issues
Click to expand...
I have been referred to gastro to but I find I go through phases of not going to constantly going. I hate going to sleep as that’s when it kicks off aswell.

I to have tachycardia but I don’t sweat all this hot weather and nothing.

Not the best thing to deal with when your still relatively young x
 
ccassidy539635 said:
Hi, I have been suffering with chronic diarrhoea since May 2017. I have seen the gastro team and have had numerous tests (colonoscopy, celiac etc) but nothing has shown up so my only thought is autonomic neuropathy. It has absolutely ruined my life :(

I also suffer with tachycardia and sweat excessively, however these are a doddle compared to the bowel issues[/QUOTE
Click to expand...
 
I have all of the same problems ... only absolutely everything i eat causes servere symptoms ... i also have uvitus which has now left me with limited vision in one eye fue to nerve damsge ... ive been diabetic for only 11 years i was diagnosed with type 1 at the age of 29 ... it has stopped me from having a relationship through sheer embarresment of sleeping and being terrifyed of accidents ... its ruined my life and if it wasnt for my children i would have ended my life ... the pain when eating is unbareable and the hunger pains are also unbareable .... i can not work ... and i struggle to walk now ... its never going to get better only worse and the doctors are eager to place blame rather than realise all the factors such as stress .. depression ... infection have all contributed to the countless DKA ive been through ....
 
I’m so sorry to hear this and I can empathise massively with a lot you are going through. I am only 21 and I feel things are only going to get worse. I’ve been diabetic 12 and a half years.
My control has been terrible since around age 15, so nearly 7 years worth of damage done. How has your control been over the 11 years you’ve had diabetes if you don’t mind me asking?
 
ccassidy539635 said:
Hi, I have been suffering with chronic diarrhoea since May 2017. I have seen the gastro team and have had numerous tests (colonoscopy, celiac etc) but nothing has shown up so my only thought is autonomic neuropathy. It has absolutely ruined my life :(

I also suffer with tachycardia and sweat excessively, however these are a doddle compared to the bowel issues
Click to expand...
Have any of the gastro experts talked about faecal transplants ?
 
ccassidy539635 said:
No I’m still waiting for a 2nd appointment. I have never heard of faecal transplants??
Click to expand...
There is some info by Googling " faecal transplants and Professor Borody". It is mainly for problems caused by antibiotics bit also for inflammatory bowel conditions, according to the blurb.
But there is nothing like chocolate as a possible remedy or help.
Good Luck and fingers crossed for your second appointment. My daughter has coeliac disease (CD) but not diabetes, and the specialist said that the biopsies of the small intestine high up do not always find the typical changes. Sometimes they do a genetic test to see if someone is at risk of developing CD and then the TTG blood test (whilst on gluten foods for 4 weeks or so. And positives on both tests is thought to be pretty convincing. But see what your specialist says. Bestest Luck (again)!!
 
I have been diagnosed with T2 almost a year ago, previously I was diagnosed with Fibromyalgia, also I’m peri menopausal, and I have no idea what causes my aches and pains. Stress levels are through the roof.
Depression/anxiety
Sweats
Burning up from inside without a temp
Mushy head
Migraines
Lethargy
Insomnia
Blurry vision

I also have CHD and PAD and breathlessness and claudication pain heavily restricts my walking or exercise.
 
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