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Autonomic Neuropathy

Discussion in 'Diabetes Complications' started by homer190376, Mar 17, 2022.

  1. homer190376

    homer190376 Type 1 · Well-Known Member

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    Hi All,

    I know I've approached this subject before, but does anyone have any experience in the autonomic nervous system? I have been diabetic for 23 years under fairly good control, however recently have had been admitted to hospital, it was found that my Autonomic nervous system has substantial damage approaching complete failure.

    I know there is not a cure, but as yet no one has actually explained what this means for my quality of life or life expectancy?

    does anyone suffer similar, if any advice would be muchly appreciated.

    thank you
     
    • Hug Hug x 1
    #1 homer190376, Mar 17, 2022 at 11:07 AM
  2. homer190376

    homer190376 Type 1 · Well-Known Member

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    Strange, is it that rare, I'm the only one with this problem?
     
    #2 homer190376, Mar 19, 2022 at 6:15 PM
  3. NicoleC1971

    NicoleC1971 Type 1 · Well-Known Member

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    Were you told the cause of the disorder in your case ? If you can describe the symptoms, you might track people down who are going through the same. Re diabetes I believe that gastroparesis is linked to damage to the background nervous system that regulates our background nervous system. As you are in hospital I am guessing that this is perhaps not necessarily related to diabetes. I hope you can find some answers !
     
    • Like Like x 1
    #3 NicoleC1971, Mar 19, 2022 at 6:24 PM
  4. Erin

    Erin Type 2 · Well-Known Member

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    It's the "N" word: Neuropathy. I think I may have it, but it could entrapped spine nerves or even anxiety. What kind of tests were used for you?
     
    • Creative Creative x 1
    #4 Erin, Mar 19, 2022 at 7:16 PM
  5. homer190376

    homer190376 Type 1 · Well-Known Member

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    hi, I had a Autonomic function test.
     
    #5 homer190376, Mar 20, 2022 at 5:21 PM
  6. David1963

    David1963 Type 1 · Member

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    Hi, this is my husband's account - I believe he has autonomic neuropathy which causes him to have bowel issues, dizziness on standing sometimes and I also wonder if some of the inconsistency that he has about the same meal causing differing blood sugar rises may be down to gastroparesis. The bowel issues may also be down to exocrine pancreatic insufficiency. He has never really spoken to his doctors about this for some reason that I don't understand! There is a lot of stuff about DAN on google - I have randomly picked one study from a good source: Autonomic Neuropathy in Diabetes Mellitus (nih.gov)
    and one from this site Autonomic Neuropathy - Heart, Stomach, Sweat Glands & Sex Organs (diabetes.co.uk)
    Hope that helps!!
     
    #6 David1963, Mar 20, 2022 at 5:55 PM
  7. Erin

    Erin Type 2 · Well-Known Member

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    I wonder if it's not possible to have neuropathy with hypoglycemia, as well as the commonly reported hyperglycemia.
    I notice that my a.m. switch insulin, instead of bed time, reveals a hypo spike which may not be noticeable at night, if there is such a thing as reactive hyperglycemia; maybe the body struggles to get a "homeostasis" and after the Dawn phenomenon, we don't get the average no. upon awakening. Just wondering.
     
    #7 Erin, Mar 20, 2022 at 6:40 PM
  8. David1963

    David1963 Type 1 · Member

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    Hi, not sure I understand what you mean... But neuropathy develops after years of high blood sugars. Once established the symptoms shouldn't really come and go with different blood sugars...
     
    • Like Like x 1
    #8 David1963, Mar 21, 2022 at 11:56 AM
  9. Erin

    Erin Type 2 · Well-Known Member

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    Sorry to think that it's "permanent".
     
    • Like Like x 1
    #9 Erin, Mar 21, 2022 at 12:13 PM
  10. homer190376

    homer190376 Type 1 · Well-Known Member

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    Hi, I basically have the following issues/conditions

    Postural hypotension
    Diabetic Retinopathy
    Microalbuminuria
    Charcot foot - Two operations so far, yet to be successful :(
    Gastroparesis

    and some of the     systoms

    Collapsing episodes
    Blood pressure fluctuations

    Palpitations
    Dizziness/lightheaded
    Headaches
    sweating hot/cold - teeth chattering
    shivering
    pale face
    blurred vision
    inability to stand steady
    rapid breathing/breathlessness
    dry mouth
    numb feet/hands, sharp shooting pains
    Nausea/vomiting/diarrhoea
    extreme tiredness
    pain on both sides of my stomach
    lower back pain
    itchy skin
    swallowing - my throat seem to retract and i cannot digest

    in most cases unable to sense my glucose levels going low anymore?
    getting up 4-5 times during night for toilet

     
    • Hug Hug x 1
    #10 homer190376, Mar 24, 2022 at 5:35 PM
  11. Erin

    Erin Type 2 · Well-Known Member

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    #11 Erin, Mar 24, 2022 at 6:07 PM
  12. Erin

    Erin Type 2 · Well-Known Member

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    Sorry for a possible glitz - using a laptop and then answering from here when reply did not appear. Try again:
    "Wow! That is quite an encyclopedic list of symptoms.! What is the cause or causes for all?"
     
    #12 Erin, Mar 24, 2022 at 7:42 PM
  13. homer190376

    homer190376 Type 1 · Well-Known Member

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    Have been told its all down to my autonomic nervous system. its approaching complete failure. these are the symptoms i generally get when feeling ill and need emergency care.
     
    • Hug Hug x 2
    • Like Like x 1
    #13 homer190376, Mar 25, 2022 at 10:42 AM
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