Apologies for the length of this post. Not sure really why I'm posting, I know I just have to wait and see what happens and deal with whatever the result is. I guess I just need somewhere to vent a little and waiting isn't something I'm good at! lol.
Since diagnosis last year I thought I had this diabetes under control, but clearly not!
I have changed my diet and reduced my weight from 122.6Kg to 85Kg (6 stone) and still reducing.
My HbA1c results had been good, at just under 6% for the last few tests.
Until recently I was on just 80mg of Gliclazide and having regular lows at around 5pm, so I was about to discuss a reduction in medication, but then overnight something happened.
No longer were my results under control, despite no changes to my diet, drugs or exercise programme.
I waited a week to see if this was just a blip before ringing up to discuss. I was told to wait a little longer in case I was coming down with a cold or something, but that wasn't the case.
It was agreed to up my Gliclazide from 80mg in the evening to include a further 40g in the morning.
I tried that for about 10 days and then it was upped to 80g in the morning.
There was no positive impact on my numbers, in fact it was continuing to creep up, so it was upped to 240g of Gliclazide a day. Still no impact, so finally it was upped to the full 320g, 160g in the morning and 160g in the evening.
So my numbers now fluctuate between 14 and 18mmol/L each day and are pretty much stuck there. Whether I have 100g of carbs a day or 200g of carbs, my numbers just won't get any lower. I've had a couple of days of feeling really rough but my body seems more accepting now of running with high blood sugars... although I know I'm still not doing as much as I would normally, I have that "can't be bothered" feeling in me.
So the current thought is that I was mis-diagnosed and that maybe I am Type 1 after all. When I was first admitted to hospital they thought I was type 1, I had ketones in my urine and the sudden nature of it all pointed in this direction, but by the time I left they had settled on type 2 - no doubt due to my age and weight. So I went in for a HbA1c and a GAD antibody test.
The results of the HbA1c came back at 7.8% (no surprise given that my own readings each day had shown I was outside of the 4-7 mmol/L range) and I am still awaiting the result of a GAD antibody test - unfortunately it seems that for this test it takes several weeks for a result to come through.
It seems odd to be hoping for a positive result but I'm starting to worry about it coming back negative.
I (kind of) understand what will happen if it comes back positive and I can deal with that... at least I think I can
If it comes back negative though, I'm not really sure. They could try adding more drugs into my regime - although they haven't told me what other drug options are available or give up on oral drugs and switch over to insulin.
These options just seems shocking to me, one year into a T2 diagnosis having lost (and continuing) to lose weight, to be in a situation where I can't control it with diet and oral alone... that doesn't seem to bode well for the future.
I can see myself getting close to coming of the rails completely, thoughts like "have a biscuit, you're numbers are out of control anyway" are starting to creep in to my head and (I think as a result of the increased dose of Gliclazide) I'm feeling a lot more hungry between meals than before. So far (in the main) I have resisted, but there have been a couple of occasions already when I have given in and more worryingly although I might have had a short term spike with these "indulgences" they haven't really made much difference - by the time I get to my pre-meal reading there is no indication of a slip up - making it harder to stick to the regime.
I'm sure other people have been in this situation and I'm just looking for a little bit of advice on how others coped with being in this situation.
Many thanks (and sorry for the moan),
David
Since diagnosis last year I thought I had this diabetes under control, but clearly not!
I have changed my diet and reduced my weight from 122.6Kg to 85Kg (6 stone) and still reducing.
My HbA1c results had been good, at just under 6% for the last few tests.
Until recently I was on just 80mg of Gliclazide and having regular lows at around 5pm, so I was about to discuss a reduction in medication, but then overnight something happened.
No longer were my results under control, despite no changes to my diet, drugs or exercise programme.
I waited a week to see if this was just a blip before ringing up to discuss. I was told to wait a little longer in case I was coming down with a cold or something, but that wasn't the case.
It was agreed to up my Gliclazide from 80mg in the evening to include a further 40g in the morning.
I tried that for about 10 days and then it was upped to 80g in the morning.
There was no positive impact on my numbers, in fact it was continuing to creep up, so it was upped to 240g of Gliclazide a day. Still no impact, so finally it was upped to the full 320g, 160g in the morning and 160g in the evening.
So my numbers now fluctuate between 14 and 18mmol/L each day and are pretty much stuck there. Whether I have 100g of carbs a day or 200g of carbs, my numbers just won't get any lower. I've had a couple of days of feeling really rough but my body seems more accepting now of running with high blood sugars... although I know I'm still not doing as much as I would normally, I have that "can't be bothered" feeling in me.
So the current thought is that I was mis-diagnosed and that maybe I am Type 1 after all. When I was first admitted to hospital they thought I was type 1, I had ketones in my urine and the sudden nature of it all pointed in this direction, but by the time I left they had settled on type 2 - no doubt due to my age and weight. So I went in for a HbA1c and a GAD antibody test.
The results of the HbA1c came back at 7.8% (no surprise given that my own readings each day had shown I was outside of the 4-7 mmol/L range) and I am still awaiting the result of a GAD antibody test - unfortunately it seems that for this test it takes several weeks for a result to come through.
It seems odd to be hoping for a positive result but I'm starting to worry about it coming back negative.
I (kind of) understand what will happen if it comes back positive and I can deal with that... at least I think I can
If it comes back negative though, I'm not really sure. They could try adding more drugs into my regime - although they haven't told me what other drug options are available or give up on oral drugs and switch over to insulin.
These options just seems shocking to me, one year into a T2 diagnosis having lost (and continuing) to lose weight, to be in a situation where I can't control it with diet and oral alone... that doesn't seem to bode well for the future.
I can see myself getting close to coming of the rails completely, thoughts like "have a biscuit, you're numbers are out of control anyway" are starting to creep in to my head and (I think as a result of the increased dose of Gliclazide) I'm feeling a lot more hungry between meals than before. So far (in the main) I have resisted, but there have been a couple of occasions already when I have given in and more worryingly although I might have had a short term spike with these "indulgences" they haven't really made much difference - by the time I get to my pre-meal reading there is no indication of a slip up - making it harder to stick to the regime.
I'm sure other people have been in this situation and I'm just looking for a little bit of advice on how others coped with being in this situation.
Many thanks (and sorry for the moan),
David
