NOT SURE IF THIS SHOULD BE IN THE YOUTH SECTION?
We had missed an appointment due to holiday and then had to reschedule again due to work issue (did rearrange though - not just missed)
The doctor told us she he had lost 4kg, and he was 'obviously DKA' and they were going to check his ketones, and if he had any they were going to admit him - as we werent turning up to appointments and hadnt brought his meter or a diary....
- son is 13, well known by diabetic nurse and school as badly behaved generally, and challenging, including in relation to his diabetes. Changed this year from mixtard to basal bolus regime, because terrible control, never doing blood sugar, eating rubbish all the time and hba1c of 14 which apparently is highest the machine goes up to so it could have been anything. At this stage he was podgy round his tummy, and pre diabetes 3 years ago his natural physique like his dads is skinny skinny skinny.
His hba1c was down to 12 and when they checked his ketones he was not 'obviously DKA' - he was actually hypo at 1.7.
No congratulations from staff for a great improvement in hba1c at all.
Feel extremely annoyed at being treated like this and seems like doctor is treating us like a family who 'need watching' because they think we might be neglecting him - doctor told us that he is their 'worst' patient they have ever had
I want to put it in writing to the doctor and copy to our gp because the doctor always puts stuff in their records about concerns etc - and i feel that they have badly misjudged us, and also treated us badly in the appointment - what do you think?
oNE reason he might have lost weight could be because he is eating less carbs so he doesnt have to inject all the time - ie might have nuts, or cheesestring or less than 15g snack - which i can understand!
Doctor saying obviously needs to eat more carbs - (he eats baked beans when he gets home from school every day and has cereal or toast for brekky each morning, and has sausage and chips, roast spuds, pasta on a regular basis for meals - so i dont think he does!)
He looks better having lost the 4kg - and also the doctor said that he isnt having enough lantus and needs to up it - although going hypo - she has upped it from 40 units to 44 units and now he is under 2 at least 3 times a day! - can this be so she hopes he eats more?
After 2 days of this we told him to bring it back to 40 and he has (un believably for him) agreed to keep a proper diary for a week and we can take it from there - actually the bad experience at the hospital had brought him on side more with us - which is a good thing!
We had missed an appointment due to holiday and then had to reschedule again due to work issue (did rearrange though - not just missed)
The doctor told us she he had lost 4kg, and he was 'obviously DKA' and they were going to check his ketones, and if he had any they were going to admit him - as we werent turning up to appointments and hadnt brought his meter or a diary....
- son is 13, well known by diabetic nurse and school as badly behaved generally, and challenging, including in relation to his diabetes. Changed this year from mixtard to basal bolus regime, because terrible control, never doing blood sugar, eating rubbish all the time and hba1c of 14 which apparently is highest the machine goes up to so it could have been anything. At this stage he was podgy round his tummy, and pre diabetes 3 years ago his natural physique like his dads is skinny skinny skinny.
His hba1c was down to 12 and when they checked his ketones he was not 'obviously DKA' - he was actually hypo at 1.7.
No congratulations from staff for a great improvement in hba1c at all.
Feel extremely annoyed at being treated like this and seems like doctor is treating us like a family who 'need watching' because they think we might be neglecting him - doctor told us that he is their 'worst' patient they have ever had
I want to put it in writing to the doctor and copy to our gp because the doctor always puts stuff in their records about concerns etc - and i feel that they have badly misjudged us, and also treated us badly in the appointment - what do you think?
oNE reason he might have lost weight could be because he is eating less carbs so he doesnt have to inject all the time - ie might have nuts, or cheesestring or less than 15g snack - which i can understand!
Doctor saying obviously needs to eat more carbs - (he eats baked beans when he gets home from school every day and has cereal or toast for brekky each morning, and has sausage and chips, roast spuds, pasta on a regular basis for meals - so i dont think he does!)
He looks better having lost the 4kg - and also the doctor said that he isnt having enough lantus and needs to up it - although going hypo - she has upped it from 40 units to 44 units and now he is under 2 at least 3 times a day! - can this be so she hopes he eats more?
After 2 days of this we told him to bring it back to 40 and he has (un believably for him) agreed to keep a proper diary for a week and we can take it from there - actually the bad experience at the hospital had brought him on side more with us - which is a good thing!