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bf had hypoglycaemic seizure

Elinor5232

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Hiya, new here. Been with my partner for 4yrs, he's been a type 1 diabetic for 27yrs (since he was 2yrs old). I've always sort of just left him to sort his diabetes - he's been doing it long enough. However I'm usually pretty good at spotting his hypos (especially those hypos where he just gets quite stubborn so you have to battle with him a little to get him to either just eat something or test his blood sugar levels). I have been a bit worried recently that he seems to have more hypos than when I first met him - I have wondered if this was because his last hba1c was a bit high and he's maybe trying a bit too hard to keep it down and over compensating.
Y'day morning he woke up at half 8, got out of bed, completely non-responsive to me, spasming/ convulsing, and had a full-blown seizure whilst I was on the phone to 999. He ended up in a&E as even 90mins after being given glucagon he was still having really repetitive/cyclical speech and had no memory of the last 2 weeks or so at all, plus he was repeatedly complaint of back pain and due to his mental state the paramedic and I couldn't work out if this was likely just secondary to the seizure or separate issue. Discharged from a&e with nothing showing on bloods/rads.
I'm just maybe looking for ideas of anything I can do to try and help him and myself here, as no obvious trigger for such a severe hypo (he had hadone a few pints the previons night, buthe was only a night in, so nothing out of the ordinary crazy, BG was high end ofor normale at dinner - although I know it's a notoriously unpredictable disease). But at the minute I feel like I'm just wanting him to run blood tests all the time (I made him run one before bed and one 20mins after we got into bed last night), and I'm anxious for all the times he might be on his own (I work alternate weekends so had I been working this weekend I would have left before all this happened). I know most of this is just going to be giving it time and learning to relax again, but any tips anyone might have that will stop me feeling like I'm nagging him (he'll allow me a few days of anxiety but understandably he's not going to want me banging on about his blood glucose levels for ever!) I don't know if diabetic nurses would allow me to come along or do talks for partners etc, or if there's any other good resources out there?
Sorry for the long waffling post, just feeling a bit panicky at the moment!
 
I don't want to cause you any extra concern as you obviously have a fair bit to contend with but, is this the first time he's ever had a seizure of any kind?

How old is your BF now?

http://www.diabetes.co.uk/news/2006/Jan/diabetes-epilepsy-link.html

I must emphasise that I am NOT trying to diagnose your BF over the internet, just highlighting that it might be worth a further discussion with your friendly neighbourhood quack.
 
Hi @Elinor5232
welcome to the forum :)
that sounds a really bad hypo and from a diabetic point of view , I would be thinking a chat , visit with the DSN ( Diabetic specialist nurse) to look at routines , doses , carb intake , patterns etc.

as a significant other it sounds as though you are doing a great job with your observation and assistance.

Ultimately your BF needs to accept he is having difficulty and ask his care team for help.

as to blood testing , I test about 8 - 10 times per day. we are all different with this and so all I can advise is that you do request he test regularly ( testing is the only way we truly know where we are-- otherwise it is guessing )


do keep posting and possibly see if your boyfriend would like to join us here -- we are a friendly bunch :)

all the best !!
 
urbanracer - as far as I'm aware he's had 2 seizures previously (he's 29yrs old now), but both had explanations - one was as a child, when he was accidentally double-dosed on insulin in hospital, and one 6-7 years ago, believed to be from not rotating injection sites and causing a build up of insulin in one place that suddenly released. However from what his sister said today I don't think they called paramedics for that one as they got him to drink, and he can remember that one - he has no awareness of anything yesterday until he was talking to the paramedic. I guess it's most likely just a mis-match of food intake to insulin coupled with the beer, but it's scary as there wasn't really anything different/out of the ordinary with any of that compared to previously.

himtoo - thank you, I guess it is just a case of chatting to the diabetic nurse some more (although i felt like the last visit he had was really unhelpful - they seemed to just tell him his hba1c was high, but couldn't tell him how high - I'm guessing it's not a high/normal, yes/no type test, but one that has a range, so being high by a point is different to being high by 40 points - much like a normal blood glucose range? - and not really give him any real practical help as to what to do about it). And yeah it wouldn't hurt for him to test more often - maybe I will just have to try and get him into a habit of testing before bed every night so I can sleep better. When we first got together I used to wake up every time he moved or rolled over in bed in case he was going to fit (yeah I was a bit overly paranoid!) - after 4 years I'd managed to break that habit, but think that will be the case again now!
 
as the partner with the D -- I can certainly relate to my OH waking every time I roll over -- I ALWAYS test before bed -- without exception .

actually -- you have given a very good potential explanation of yesterday's bad hypo -- too little carb , too much insulin , plus alcohol is a known bringer on of hypo's. ( have had a couple myself - one I ended up in A&E from midnight till 5:30am )

common sense says that these hypo's can be minimised by following a few simple rules
take a water break in between "rounds "
snack while drinking alcohol
test every couple hours while drinking
deffo test before bed -- and eat a small snack if BG suggests
 
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