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<blockquote data-quote="Streather \m/" data-source="post: 2156612" data-attributes="member: 515547"><p>Dude, i get it so much i struggle to adequately put it into words, the only times my blood sugars behave are when i abstain completely from food, but I've ended up ruined from it. i have been in a constant burnout cycle for near 2 decades and the help where i live is just not there, nor is the understanding from the medical services or the recognition of the actuality of living with this ******* demon on your back all day, everyday.</p><p>I keep trying but it is difficult at the best of times. my blood sugar fluctuations effect my mood and send me into terrible rages which i am aware of but this somehow makes it worse. People worried about me and trying to help often sent me further into depressive rages, not at them, but just in general, which also effects my sugars by spiking them which in turn effects my mental clarity and ability to deal with things.</p><p>Everything effects it and i have found this is not often pointed out by the professionals, and if your like me, you will be a stubborn ****** and claim you are coping when you are falling apart, and they will let you do it. Please be completely transparent and honest with them, get them the data they require, as much of a ball-ache as it can be and talk as much as possible to other t1s to see what has worked for them, each person i have spoken to with this disease has a very personalised and unique experience of it, tailored to them. </p><p>Remember that the highs and the huge swings effect your mind massively and throw you into chaos, which begins viscous circles within vicious circles. Tighter control, however hard and unachievable it seems, will make things easier when achieved and give you a base point to aim for if things go awry. </p><p></p><p>Also i have had trouble dealing with issues like smoking, drinking and narcotics in the past, it was part of my rebelling against the disease. feel free to chat about anything with myself and I'm sure others on this site. we will all be happy to help if we can, even if its just for perspective and so you don't feel so alone.</p><p></p><p>It sound like you have an amazingly supportive partner (i instantly like her cause she shares the same name as my better half, who has helped me tremendously in dealing with things) and mother, let them help as well, the right support makes all the difference, take them to appointment with you so you have someone else fighting in your corner that wont let you get steamrollered by the system, others who see the effects on you are much more likely to push hard when the services are being stubborn or uncooperative. get yourself and them as educated about the condition as possible, use this site and all resources at you disposal. take lists or email the endo/db nurse your concerns and problems so you can work through them and find solutions that work for you and not forget things when you are there, remember, you are the expert on you, cliche, but for a bloody good reason.</p><p></p><p>sorry for going on so long but your problems hit home hard with myself. stay well and keep fighting dude. </p><p>Don't let the ******* win.</p><p></p><p>Kind Regards, </p><p> Terry Streather. </p><p> T1 since '87 aged 4</p></blockquote><p></p>
[QUOTE="Streather \m/, post: 2156612, member: 515547"] Dude, i get it so much i struggle to adequately put it into words, the only times my blood sugars behave are when i abstain completely from food, but I've ended up ruined from it. i have been in a constant burnout cycle for near 2 decades and the help where i live is just not there, nor is the understanding from the medical services or the recognition of the actuality of living with this ******* demon on your back all day, everyday. I keep trying but it is difficult at the best of times. my blood sugar fluctuations effect my mood and send me into terrible rages which i am aware of but this somehow makes it worse. People worried about me and trying to help often sent me further into depressive rages, not at them, but just in general, which also effects my sugars by spiking them which in turn effects my mental clarity and ability to deal with things. Everything effects it and i have found this is not often pointed out by the professionals, and if your like me, you will be a stubborn ****** and claim you are coping when you are falling apart, and they will let you do it. Please be completely transparent and honest with them, get them the data they require, as much of a ball-ache as it can be and talk as much as possible to other t1s to see what has worked for them, each person i have spoken to with this disease has a very personalised and unique experience of it, tailored to them. Remember that the highs and the huge swings effect your mind massively and throw you into chaos, which begins viscous circles within vicious circles. Tighter control, however hard and unachievable it seems, will make things easier when achieved and give you a base point to aim for if things go awry. Also i have had trouble dealing with issues like smoking, drinking and narcotics in the past, it was part of my rebelling against the disease. feel free to chat about anything with myself and I'm sure others on this site. we will all be happy to help if we can, even if its just for perspective and so you don't feel so alone. It sound like you have an amazingly supportive partner (i instantly like her cause she shares the same name as my better half, who has helped me tremendously in dealing with things) and mother, let them help as well, the right support makes all the difference, take them to appointment with you so you have someone else fighting in your corner that wont let you get steamrollered by the system, others who see the effects on you are much more likely to push hard when the services are being stubborn or uncooperative. get yourself and them as educated about the condition as possible, use this site and all resources at you disposal. take lists or email the endo/db nurse your concerns and problems so you can work through them and find solutions that work for you and not forget things when you are there, remember, you are the expert on you, cliche, but for a bloody good reason. sorry for going on so long but your problems hit home hard with myself. stay well and keep fighting dude. Don't let the ******* win. Kind Regards, Terry Streather. T1 since '87 aged 4 [/QUOTE]
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