Ok so I'd like some advice ASAP I'm trying to ring the diabetes helpline in the week but they're not available after 3pm they've just said to check your blood sugars more often in the cold weather, drink plenty of water and if my blood sugars get very very high and I can't get them down then I need to go to a&e or call an ambulance that drives minds it straight through the roof I can't do that at all, I'm doing all I can to get things under control and it's constantly high, I've done loads of insulin several times every day with 20 units morning lunch and evening I've rapid and 20 units of tresiba in the morning and fasting so I'm hardly eating as much as I used to, I feel that I need to lose weight although I've been told I'm underweight I've done 100 units of rapid today and I'm only supposed to be doing 60 at the very most with a few added extra units if I'm having a big meal I'm checking on my libre view almost every hour now there's a small difference between that one and the finger prick I'm running out of ideas about what to do... I'm skipping meals so that I don't have high blood sugars, I'm doing loads of insulin, I've done heaps of research into what I can have and what I can't have original plan was 200 carbs a day I'm lucky if I do 50 carbs a day I get very hungry as I've got a very big appetite and it's causing a lot of problems with my way I don't know what to do do sorry for the long message just after somebody that's also T1 and could maybe give me a few moments help me I was in a coma last week and I nearly died sickness diarrhoea really high blood sugars machine was out of range by lots machine only goes to 35 and it was way of that ketones of 11 apparently I was lucky to be alive its previously been no higher than 5.0 but this is really bad I was out cold I don't remember going to hospital or anything and as a result I've got a lot more medication to take I'm now incontinent and my medication is being changed... I'm trying to avoid going outside as much as I can as I was advised going outside into the cold will cause your blood sugar to creep up... I've been to hospital very recently with diabetic ketoacidosis as I have done several times last year. Find myself getting so upset and so angry I'm giving up with everything try really hard to stay positive that is very very difficult any help or advice greatly appreciated please going to have no horrible comments I put a similar post on Facebook diabetes group and I got some horrible comments saying I need to go and kill myself if I have to ask for help. T1 for 7 years. My A1C is 16.0
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Blood sugars very high continuously
- Thread starter Jasont1d
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Hi Jason,
Welcome to the forum. You’ll get no disparaging comments here..
Let’s see what we can do to help.
Have you or are you sick from any form of virus? Cold/flu?
Are you rotating injection sites? The same used site can delay insulin action.
If you are Ill these NHS “sick day rules” could help.. https://www.england.nhs.uk/london/w...abetes-Sick-Day-Rules-Type-1-MDI-06042020.pdf
Hi @Jasont1d , welcome to the forum.
Sounds like you're having a rough time.
Do you have a diabetes nurse or endo you can contact?
My first idea is that your basal dose might be off, it's very hard to get you mealtime insulin right if your basal is not right.
Please contact your diabets nurse urgently about this!
Wish you all the best!
Sounds like you're having a rough time.
Do you have a diabetes nurse or endo you can contact?
My first idea is that your basal dose might be off, it's very hard to get you mealtime insulin right if your basal is not right.
Please contact your diabets nurse urgently about this!
Wish you all the best!
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As @Jaylee said it's very common for T1s to need more insulin if they are ill. Do you have a way to test for ketones? And I second @Antje77 's comment on basal, it's very difficult to get things right if this is wrong.
An hba1c of 16 suggests an average blood sugar of 23mmol/L so it's not surprising you are feeling unwell. Have your clinic made any suggestions about what you should be doing to better control your bgs? Individual dosing amounts for insulin can vary wildly so I am wondering whether they need to have another look at your dosing amounts . (You could try asking to go on a DAFNE course?)
And if you are underweight that is another red flag for something being off on the dosing front. In your position I would be pushing my team hard for more dosing advice.
Have a read of those sick day rules. I know you don't want to go back to hospital but don't be afraid to call 111 if your bgs and ketones stay high, you really don't want to go back into DKA,
Lots of virtual hugs.
An hba1c of 16 suggests an average blood sugar of 23mmol/L so it's not surprising you are feeling unwell. Have your clinic made any suggestions about what you should be doing to better control your bgs? Individual dosing amounts for insulin can vary wildly so I am wondering whether they need to have another look at your dosing amounts . (You could try asking to go on a DAFNE course?)
And if you are underweight that is another red flag for something being off on the dosing front. In your position I would be pushing my team hard for more dosing advice.
Have a read of those sick day rules. I know you don't want to go back to hospital but don't be afraid to call 111 if your bgs and ketones stay high, you really don't want to go back into DKA,
Lots of virtual hugs.
- Messages
- 18,788
- Type of diabetes
- Type 1
- Treatment type
- Insulin
Good point on basal. @Jasont1d , with consultation with a member of your diabetic team. This may help you with regards to tweaking any basal needs? https://www.mysugr.com/en/blog/basal-rate-testing/
