Hi everyone,
Hope everything has been going well with you all.
After reading about pump therapy on here, I spoke with my DNS on friday when she returned from annual leave and mentioned the 'pump' and how I have come across parents who's children undergo pump therapy and she was so nice and informative about it.
And she said that my son is eligible for a pump yaay !! , from what I gathered it seems like the ideal for young children, because of the flexibility and also the fact that the pump can have a hypo alert , how genius is that. I am worried about the canular bit but as hes had a CGM before in the winter, and that was really good he barely noticed it I feel a little bit more upbeat about it. He will be having another CGM in a few weeks as the hospital has got 3 more coming in.
As we are faced with our 1st summer with diabetes its become quite hard to control things, hes had a few hypos as low as 1.8 , I am having to test so much, its starting to annoy the little one aswell. He's also running away when I want to inject him, hiding behind the sofa, no tears but almost fed up of it if I am making sense ..
Appetite hasnt been great either, he just wants to eat small bits all day long, some fruitsalad here, abit of toast here, and a bit of milk there.. and the other night, I was asleep and something just made me get up at like 3 am and test him, I felt very uneasy about just continuing my sleep and when I checked him his bm was 2.7, I experienced relief, and horror at the same time.
Since then, I make a mental note of testing him through the night if hes had a active day which he had that particular day.
Ive got a appointment scheduled to talk about the pump some more with our DNs , but the sad thing is that we will have to transfer care which I dont want, our diabetes team have been so brilliant, especially the consultant the man came into hospital on his day off (sunday afternoon to be specific) when my little boy was admitted after a nasty infection which had his sugars dipping way too low last winter.
But the good thing she mentioned was that if we wanted once our hospital gets the pump therapy going at some point towards the beginning of next yr we could always come back.
I dont know really guys, I know I can deal with the educating myself bit regarding pump therapy, I can also understand it will be difficult at the beginning. My only worry is having to change the cannular (would you need 2 people to do this), the fact that he will have to carry the monitor bit he's quite active at times, and having to deal with explaining it to the family etc as they will make their judgement based on the fact that they see a tube attached to his body :shock:
I know I am going on abit here but ill be quick (this forum is so therapeutic ), his dad doesnt want him to have the pump because he is saying that our son is too young for it, the tubes and what if it comes off bla bla, I on the other hand find this a incredible thing for managing his diabetes, the hypo alert, the ability to give small doses on insulin, the fact that it takes into account any insulin which is already in his system etc.
As I mainly deal with my baby's diabetes, come to think off it until recently I did everything I think it will be a good thing, I am just not so sure what to expect in all honesty.
Any advice would be appreciated greatly,
Love to you all, and the kiddies
Hana -mum to 2yr old T1 since nov 09
On novo and lantus injections
Hope everything has been going well with you all.
After reading about pump therapy on here, I spoke with my DNS on friday when she returned from annual leave and mentioned the 'pump' and how I have come across parents who's children undergo pump therapy and she was so nice and informative about it.
And she said that my son is eligible for a pump yaay !! , from what I gathered it seems like the ideal for young children, because of the flexibility and also the fact that the pump can have a hypo alert , how genius is that. I am worried about the canular bit but as hes had a CGM before in the winter, and that was really good he barely noticed it I feel a little bit more upbeat about it. He will be having another CGM in a few weeks as the hospital has got 3 more coming in.
As we are faced with our 1st summer with diabetes its become quite hard to control things, hes had a few hypos as low as 1.8 , I am having to test so much, its starting to annoy the little one aswell. He's also running away when I want to inject him, hiding behind the sofa, no tears but almost fed up of it if I am making sense ..
Appetite hasnt been great either, he just wants to eat small bits all day long, some fruitsalad here, abit of toast here, and a bit of milk there.. and the other night, I was asleep and something just made me get up at like 3 am and test him, I felt very uneasy about just continuing my sleep and when I checked him his bm was 2.7, I experienced relief, and horror at the same time.
Since then, I make a mental note of testing him through the night if hes had a active day which he had that particular day.
Ive got a appointment scheduled to talk about the pump some more with our DNs , but the sad thing is that we will have to transfer care which I dont want, our diabetes team have been so brilliant, especially the consultant the man came into hospital on his day off (sunday afternoon to be specific) when my little boy was admitted after a nasty infection which had his sugars dipping way too low last winter.
But the good thing she mentioned was that if we wanted once our hospital gets the pump therapy going at some point towards the beginning of next yr we could always come back.
I dont know really guys, I know I can deal with the educating myself bit regarding pump therapy, I can also understand it will be difficult at the beginning. My only worry is having to change the cannular (would you need 2 people to do this), the fact that he will have to carry the monitor bit he's quite active at times, and having to deal with explaining it to the family etc as they will make their judgement based on the fact that they see a tube attached to his body :shock:
I know I am going on abit here but ill be quick (this forum is so therapeutic ), his dad doesnt want him to have the pump because he is saying that our son is too young for it, the tubes and what if it comes off bla bla, I on the other hand find this a incredible thing for managing his diabetes, the hypo alert, the ability to give small doses on insulin, the fact that it takes into account any insulin which is already in his system etc.
As I mainly deal with my baby's diabetes, come to think off it until recently I did everything I think it will be a good thing, I am just not so sure what to expect in all honesty.
Any advice would be appreciated greatly,
Love to you all, and the kiddies
Hana -mum to 2yr old T1 since nov 09
On novo and lantus injections