Type 1 Charcot foot

[Angela76]

Has anyone experienced a charcot foot? I have a cast on which is due to be taken off after 3 months and I wondered if I will be able to walk properly afterwards? Please let me know any tips you have thanks

 

[Celsus]

Has anyone experienced a charcot foot? I have a cast on which is due to be taken off after 3 months and I wondered if I will be able to walk properly afterwards? Please let me know any tips you have thanks

Dear @Angela76 , the answer to your question will clearly depend on what area(s) of your foot has/have been treated and how severe and potential complex your situation is. The right person(s) to answer your question would in any case be the healthcare professionals that have been the ones treating you.

 

[DCUKMod]

Has anyone experienced a charcot foot? I have a cast on which is due to be taken off after 3 months and I wondered if I will be able to walk properly afterwards? Please let me know any tips you have thanks

Hi Angela, I don't think anyone here can answer your question, although you may encounter others who have recovered from charcot and have some experiences to share. I can't think of any specific member to tag for you, unfortunately, but I wish you the best of luck for a complete recovery.

 

[Angela76]

Dear @Angela76 , the answer to your question will clearly depend on what area(s) of your foot has/have been treated and how severe and potential complex your situation is. The right person(s) to answer your question would in any case be the healthcare professionals that have been the ones treating you.

thanks celsus ill let you know how I get on

 

[Angela76]

Hi Angela, I don't think anyone here can answer your question, although you may encounter others who have recovered from charcot and have some experiences to share. I can't think of any specific member to tag for you, unfortunately, but I wish you the best of luck for a complete recovery.

thanks so much keep your fingers crossed for me

 

[Grant_Vicat]

Has anyone experienced a charcot foot? I have a cast on which is due to be taken off after 3 months and I wondered if I will be able to walk properly afterwards? Please let me know any tips you have thanks

Hi @Angela76 I hesitated to reply at first for the reasons given above. I can only tell you my experience, which may not match yours. After a successful kidney/pancreas transplant in August 2013, I started to get progressive oedema in my right foot in October 2013. I was seen by the diabetic foot consultant at Addenbrooke's Hospital Cambridge, who gave me several Xrays and 2 MRI scans, and said that it was not easy to see an obvious problem, but that they would treat it as most likely Charcot. I did have a needle like pain shooting through at the very rear of the top of my foot straight through the arch. I was put in an Aircast boot and then plaster for a total of 10 months. By August 2014 I was out of a wheelchair and the swelling had gone right down so that my tendons were at last visible. I was advised not to run, dance, skip or jump ever again! Occasionally I forget, especially running, and a slight twinge appears. I saw a doctor last July who could not believe I had had Charcot issues. It is quite possible to regain total foot strength, but obviously I am unable to comment on your own foot. In general terms, I can walk properly, although my leg muscles had wasted considerably in that time. I presume you have been told never to wear Crocs or flip-flops or Dr Scholl' wooden mules etc but I have been supplied with a pair of orthotic shoes and a pair of orthotic boots which exactly match my arches (which are different) on each foot. I have also been told that wearing my ordinary leather shoes once a week is probably a good idea. I wear firm soled slippers at the both ends of the day. All I can say is that I hope your feet come back to normal as soon as possible. A balanced regime is crucial.
Good luck!

 

[Angela76]

Hi @Angela76 I hesitated to reply at first for the reasons given above. I can only tell you my experience, which may not match yours. After a successful kidney/pancreas transplant in August 2013, I started to get progressive oedema in my right foot in October 2013. I was seen by the diabetic foot consultant at Addenbrooke's Hospital Cambridge, who gave me several Xrays and 2 MRI scans, and said that it was not easy to see an obvious problem, but that they would treat it as most likely Charcot. I did have a needle like pain shooting through at the very rear of the top of my foot straight through the arch. I was put in an Aircast boot and then plaster for a total of 10 months. By August 2014 I was out of a wheelchair and the swelling had gone right down so that my tendons were at last visible. I was advised not to run, dance, skip or jump ever again! Occasionally I forget, especially running, and a slight twinge appears. I saw a doctor last July who could not believe I had had Charcot issues. It is quite possible to regain total foot strength, but obviously I am unable to comment on your own foot. In general terms, I can walk properly, although my leg muscles had wasted considerably in that time. I presume you have been told never to wear Crocs or flip-flops or Dr Scholl' wooden mules etc but I have been supplied with a pair of orthotic shoes and a pair of orthotic boots which exactly match my arches (which are different) on each foot. I have also been told that wearing my ordinary leather shoes once a week is probably a good idea. I wear firm soled slippers at the both ends of the day. All I can say is that I hope your feet come back to normal as soon as possible. A balanced regime is crucial.
Good luck!

I'm doing my very best to keep things balanced, you have given me some hope thanks so much I hope you are feeling ok now

 

[Grant_Vicat]

Glad to be of help! Going to play the organ for Palm Sunday at 09.30 tomorrow. Unthinkable during that 10 months, which now seems eons ago.

 

[Angela76]

Glad to be of help! Going to play the organ for Palm Sunday at 09.30 tomorrow. Unthinkable during that 10 months, which now seems eons ago.

Hi Grant, how was the organ playing? I just thought I'd let you know I had my cast off this week, the nurses say I'm not out off the woods yet and I now have a storm trooper type plastic boot that pumps up so it's going in the right direction! Thanks again for giving me some hope its nice to know someone else out there has been through this, happy organ playing ;^)

 

[DCUKMod]

Hi Grant, how was the organ playing? I just thought I'd let you know I had my cast off this week, the nurses say I'm not out off the woods yet and I now have a storm trooper type plastic boot that pumps up so it's going in the right direction! Thanks again for giving me some hope its nice to know someone else out there has been through this, happy organ playing ;^)

Great news on your cast, Angela. Fingers crossed it all stays positive for you.

 

[Grant_Vicat]

Hi Grant, how was the organ playing? I just thought I'd let you know I had my cast off this week, the nurses say I'm not out off the woods yet and I now have a storm trooper type plastic boot that pumps up so it's going in the right direction! Thanks again for giving me some hope its nice to know someone else out there has been through this, happy organ playing ;^)

Taken a fortnight before release! Organ playing went very well thanks, including 2 churches on Easter Sunday.
Another 2 tomorrow. Very best of luck with yours!

 

[Angela76]

View attachment 26111
Taken a fortnight before release! Organ playing went very well thanks, including 2 churches on Easter Sunday.
Another 2 tomorrow. Very best of luck with yours!

snap! Same boot you're brave going on the sand with it, I haven't left the house, I thought they told you not to wear crocs?! Ha ha just kidding good luck tomorrow

 

[Grant_Vicat]

snap! Same boot you're brave going on the sand with it, I haven't left the house, I thought they told you not to wear crocs?! Ha ha just kidding good luck tomorrow

Quite right. they DID tell me not to wear them, but leather and sea don't mix very well! My Granddaughter, (aged 2 and 8 months in the picture) used to love being a semi-stormtrooper! From my experience you will probably need to pump the boot up occasionally and this will be more comfortable. I also discovered that you need to be really careful cleaning them since water causes the airbags to part company and become useless. I ended up using babywipes. All the very best.

 

[Katie Pod]

Angela76,
I agree with others who have said that the best people to discuss this with are those Healthcare Professionals who have been treating you.
Charcot Foot is a complex condition so you should follow the advice of the Diabetic Specialists.