I have CFS and I do not have severe pain. Not everyone with it has pain, some of us do not have fibromyalgia as well.Hi Tony and welcome I have chronic fatigue syndrome and fibromyalgia as well as being type 2 . With chronic fatigue syndrome it can affect you at any time day or night with no warning and belief me I wouldn't wish this on my worst enemy.
One of the signs of CFS is lack of sleep I can go days without any sleep and it is very draining on your body . You can also drop of to sleep at anytime without warning, but the worse sign of CFS is the pain , thing of the worse pain you have ever felt and times that by ten and if you have that it's is CFS. But it sounds like to me that your body is adapting to your new diagnosis and the meds and that's why your GP has recommended going back if no change after three months. When you were given the Metformin did you go straight on maximum dose or was it built up overtime ?
It is also possible that a lot of this is your mind giving these symptoms after the shock of being diagnosed it does happen .
I hope you don't suffer for to long Tony and ask as many questions as you like no question is a stupid question .
Ron
I'm glad you don't have pain like I said I wouldn't wish it on anyone.I have CFS and I do not have severe pain. Not everyone with it has pain, some of us do not have fibromyalgia as well.
Ive been diagnosed a little over two years now so i dont think it will be the meds and i've had this almost a year now bar a couple of months they blood test me with no results my blood sugars had reduced from about 68 down to 59 so i then stopped seeing the hospital led diabetic nurse she stopped it not me by the way i was a little reluctant to do it but then ive been unable to get a satisfactorily eye test because of fluctuations in my sight thats been for 18mths now,i too have depression with PTSD but that so far has not been suggested a diabetic heart problen for which ive had open heart surgery again no suggestion it may be related so thats why i thougt i would ask on here...Hi Tony61. Welcome.
I was diagnosed with type 2 diabetes on July 6th. I started several medications, a low-carb diet, and swimming every second day.
While I feel so much better (BG majorly decreased, more energy) every few days I am massively exhausted. This is purely a physical exhaustion, not depression (which I have). I can't stay awake. My head droops, my eyelids close. I have to go back to sleep. Sometimes I sleep for over 12 hours (with restroom breaks).
I don't know if it's a medication side effect or the result of eating less carbs or what. I saw my doctor yesterday and apparently I have low blood pressure now, and she said it could be that.
I'm hoping it'll go away as my body gets used to everything, but yes I'm having episodes where I'm nodding off in my tracks.
Does any one else suffer with this,I'm type two diabetic and the fatigue really takes it out of me,i struggle with getting out of bed,but i do get up despite feeling worse than i did before i went to bed,within minutes of being up it kicks in,fighting it become a nightmare and 50% of the time i give in to to it and crash out
Yes i have been tested twice now and came back as normal on both tests,thyroid tested twice,but thanks for your help...Hi @Tony61,
Metformin can cause low serum B12 with anaemia, tiredness and other symptoms. I presume the doctor has tested you for this ?
I have read that the size of the red blood cell, a measurement called MCV (mean corpuscular volume) maybe elevated in b12 deficiency) BUT that a normal MCV readings does not rule out low serum b12 completely. Best Wishes !!
Thank you...I don't think i have chronic fatigue syndrome but i do suffer with insomnia which isn't that great so i understand the fatigue. I first put it down to the diagnose with diabetes in February this year but after 6 months i can still be incredibly tired most days. I was on metformin in the beginning and was so tired i couldn't continue with it. So i really feel your suffering and hope they get to the bottom of it all. Good luck.
Thank you just a few options for me to present to the doctor,at the moment it all feels very complex and complicated,and difficult to take in whie fatigued...I have experienced this level of fatigue for 20 years, it triggered the pre-diabetes. It is extremely debilitating. Many days I can barely cope with using a knife or fork, washing and other daily tasks. Shifting to burning fat instead of glucose for fuel does help (i.e. low carb or keto) but then I overuse the energy and completely crash, and end up back using simple carbs for fuel because they are the only thing that works at that point except for complete bed rest (not easy to do without a maid, cook and housekeeper).
Currently for me there is hope on the horizon for diagnosis, I happened to have the complete gamut of autoimmune antibody blood tests (ANA, SMA, Lupus...), and they found something. For me it looks like I have autoimmune attack on my bile ducts. Also this particular disorder is renowned for debilitating fatigue that is often the first and long term symptom before they discover the disordered liver function tests or get around to doing the autoimmune antibody tests or ct/mri.
It took them 20 years to decide to do the autoimmune antibody test, they were checking for Lupus and found a biliary disease, but I’m very glad they did. I’ve no idea at all if this is involved in your case, but, especially if there are other obvious autoimmune conditions (like excema, asthma...), it might be worth considering, if they have not already.
Hope you get some answers, take care. Xx
It all seems to be very complicated,but they are all possibiltys i can pass on to my doctor when i visit,i think i have some b12 tablets which wont hurt to to take in the mean time,and once again thank you...Hi again @Tony61, On another thread, one about a person with T1D and CFS, I recall noting that I have friends who were diagnosed as suffering from CFS, one turned out to have Obstructive Sleep Apnoea (he was T2D and apparently quite a % of T2Ds have this condition and not all are overweight either), and with treatment lost his fatigue symptoms; another was able to recover once a past history of childhood abuse was discovered and she received suitable therapy; and a third had a chronic post-infection syndrome, which responded to a less conventional treatment. And another person has a serum B12 in the lower end of the normal range and responded to oral supplements of B12. One specialist I know opined that serum B12 needs to be 700 ng/l plus to be adequate.
( an off the cuff remark )! A delightful cleaning lady I knew was fatigued with many aches and pains and finally was discovered to have a condition called Polymyalgia Rheumatica (PMR), for which she received treatment.
My endocrinologist says he was able to rescue a lady from her nursing home placement by proving she had Addison's Disease and successfully treating her.
Since CFS is a condition diagnosed by elimination of all known causes of the symptoms (see Wikipedia) it can take sometime to reach such a diagnosis. Hopefully along the way a test which was initially negative might become positive, or a new sign or symptom helps to narrow the diagnostic field, or the result of a new test reveals a cause or direction to follow.
Again Best Wishes !!
Porridge is something i have most mornings,bread i do eat wholemeal but only in moderation its not a daily thing,juice is not a huge amount something i could dilute a bit more,but i have that because i find i hydrate a lot through the night i get very dry and daytime if i do anything physical the sweat just soaks me and its very wet including my top so i have to replace what i loose this is a daily occurrence,but that could be due to i have a heart condition and had surgery last year so I'm still healing from that with still lots of ache's and pains so its all very confusing trying to pinpoint one from the other,but thank you for your advice it will be useful and I'm learning every day...Is it possible you need to cut down on your carbs? I noticed that you were eating porridge and bread, and the juice may be contributing a little if you drink a huge amount or it is not very dilute..
I suffer from horrendous fatigue if I eat carby foods - as soon as I cut out the bread and starchy foods like potatoes etc I feel like a different person. When I got diagnosed this year with Type 2 I was barely functioning and the HbA1c was 82. I brought my sugar down to normal levels with diet by cutting out bread, potatoes, and all starchy and processed foods. I had a lapse in my diet recently due to stress, where I went back to eating bread and sugar again, and after a week I felt dreadful and could barely keep my eyes open.
Until I got diagnosed and came on this forum, I had no idea that a carby diet was causing me so many problems. If you blood is still at 59 that suggests your average blood sugars are still quite high. I wonder if you are experiencing big ups and downs in the blood sugar?
Have you tried cutting out all processed and starchy foods? I eat eggs, fish, meat, nuts and some full fat dairy, drink lots of water, and eat some salad and non-starchy veggies. If I eat like this I feel normal, and have plenty of energy.
We use cookies and similar technologies for the following purposes:
Do you accept cookies and these technologies?
We use cookies and similar technologies for the following purposes:
Do you accept cookies and these technologies?