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Clinical Trial

C-Mack

Well-Known Member
Messages
52
Type of diabetes
Type 1
Treatment type
Insulin
There is a trial on https://www.diabetestrialnet.org/ where I can take my two children to the Children's Hospital and get them tested for the antibodies for type 1. The research group emailed back saying that children over 12 have to consent to the test.

My daughter will be 13 at the end of the month and my son is 14. She will say yes and he says no.

I think it would be good to know and then if they do have the antibodies they can choose to participate in a study to try to preserve or delay the onset. Not only would it help them, but maybe others. And it will set my mind at ease because there's a good chance they are perfectly fine.

So that being said... Should I try to convince my son? And if you could have know before hand that there was a chance you could end up with type 1, would you have wanted to know?

Candace
 
Hi I personally wouldn't of wanted to know that I was going to be diagnosed as a diabetic, I was only 11 years old so I think finding out before may have been a bit more stressful for me. Getting it is like being thrown in at the deep end and you have no choice but to step up and do what you need to. Finding out gives you a chance to rebel. Also, if I was in your position I would definitely not try to persuade him either way. I'd sit down with both your daughter and your son and explain the facts i.e what will happen, how many people it could help, how many children at their age are diagnosed p/y
Whatever you choose to do though I'm sure will be right for your family.
Good luck x
 
I would ask your son just to cone along and see what happens with his sister then decide.
I wouldnt try to persuade him either way but explain how much of a good thing he would be doing to help so many people.

I for 1 would definitely have went for the test/trial at that age (I was diagnosed at 3y/o)
 
My 2 daughters (13,15) have been in this trial for a few years. In the beginning I just told them that it may help find a cure and they were happy to help.
However, I wouldn't push them into it if they didn't want to. We all know the signs of T1 now so I'm sure we'd pick it up pretty early if they were showing symptoms.
I do give a huge sigh of relief when the results come back -ve.
 
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