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Closed loop medication nightmare

Darren Gardner

Newbie
Messages
2
Type of diabetes
Type 1
Treatment type
Pump
Hi Fellow diabetics, Since going onto this my diet has gone virtually carb free . I have found that the only way I can keep in range most of the time is by eating nothing else other than carb free food....I cannot touch anything with flour in or pasta, rice potatoes, if I do then I suffer for hours , alarms ringing telling me Im high, I have to constantly give myself more insulin and it does nothing , it makes me very angry and down . Its so boring and really effecting my life in a lot of ways. Most of the time Im OK with it but there are other times Ive had enough and switch it all off just so I can have peace and sleep if its happening during the night time. Does anyone else have these issues with closed loop medication ?
 
Also I have other things that raise my blood readings, the smell of food sometimes raises it and dreaming. I can go to bed not having anything to eat for 5 to 6 hours and 3 to 4 hours later when Im asleep my bloods raise and then sometime the alarm is waking up the house ....so annoying, I then have to give myself ghost insulin just so the alarm will stop ....most of the time I still wake up high around 12 but not high enough to set off the alarms. Does anyone else have this issue ?
 
Hi @Darren Gardner and welcome to the DCUK forums.

Can I ask which pump and closed loop system you are using?
 
Sounds like something is going wrong - a good closed lop set-=up should mean you can eat more normally.

If you have insulin resistance (bad absorption) or cannulas that don't work well (I had this problem with Omnipod sadly as I love them) or the insulin isn't suitable, its worth looking into.

What insulin are you using, how long have you been a T1, and are you injecting or inserting cannulas into the same site repeatably?

Once the loop is configured you should need to input only when you eat - then expect a rise which is treated quickly and bought back into line. If that not happening there is something not working right yet - so needs work (don't give up)!
 
I also have problems with Omnipod’s failing. I use Omnipod 5 with Dexcom G7.
Can I ask you what system you are on now?
 
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