Thank you Lamont. And you are right the dietitian isn't really much help as the foods that she recommends that i eat send me into a hypo. The truth is at the moment this all feels like hell. But i'm so ever thankful that i have peers who not only live the rh life but are also here to educate and teach us newly diagnosed. I'd like to thank both you and everyone here who as responded and shared their own experiences.I can only warn you that a dietician may not have encountered RH before and on my experience, she would have to understand that having RH is very similar to having a carb intolerance. I have since birth had a lactose intolerance and as this is quite common and the majority of doctors and dietician insist on avoiding it. However, because of text book treatment regarding RH, the intolerance to carbs is ignored! The textbook says it is carb laden meals that trigger the reaction but for me and many otheres, it does not matter how many carbs are in your meal wether high GI or low GI, the result is the same, carbs are carbs and carbs will trigger the reaction and the symptoms, the hypos!
Only a very low carb diet or being in or near being in keto levels will work for me! You may be different in some respects but it always comes back to carbs and sugars!
I hope you get your monitor for testing your BG levels, it is so important for those that are diagnosed, to discover which carbs are worse than others and how much you can tolerate without the reaction. I was told to keep a food diary with as much information about my intake and before and after two hours readings, as a baseline., Portion size, exercise, important stuff, including fasting BG readings. You get to know your body and what you can do to improve your health. It can be done!
Keep asking. Knowledge is important!
I came on here like you looking for answers and advice, why this condition has very little research or knowledge on how to treat it. Luckily I found a someone who had experienced RH for most of her life, she is still around, but between us, we set up with the admin and others to set up our own sub forum, as we both knew that there was others in a similar situation and very little sound advice from those who have RH itself and found a way to stop going hypo every time we had a meal, what would be termed a healthy diet, and don't believe I haven't tried everyone of them!Thank you Lamont. And you are right the dietitian isn't really much help as the foods that she recommends that i eat send me into a hypo. The truth is at the moment this all feels like hell. But i'm so ever thankful that i have peers who not only live the rh life but are also here to educate and teach us newly diagnosed. I'd like to that both you and everyone here who as responded and shared their own experiences.
I'm a type 1 for 14 years, and always had my 1st cup of coffee within the first 30 mins after waking up, and thus far, I have not seen any effects via my CGM (libre 1/2). My to-go coffee option is a brewed Turkish coffee (approx. 1 cup of 150-200 ml, 2 teaspoons grinded coffee). I usually drink 3-5 coffees a day, with no effect on my BG.Good morning all, Just a very concerning question. How many of you drink coffee in the morning just after waking? I have been drinking coffee for years and mostly to increase my hypotension (low blood pressure. But lately i have noticed that drinking coffee in the a.m. straight after waking is causing hypoglycaemia symptoms, mainly the headaches, blurred vision, dizziness and making me feel weak, tired and under the weather.
I had a read online and most of the information states that coffee indeed causes blood sugar spikes:-
How Does Coffee Affect Your Blood Sugar?
That cup of coffee, tea, or soda can affect blood sugar control. Here’s what people who have diabetes need to know.www.webmd.com
- Caffeine raises levels of certain stress hormones, like epinephrine (also called adrenaline). Epinephrine can prevent your cells from processing as much sugar. It may also keep your body from making as much insulin.
- It blocks a chemical called adenosine. This molecule plays a big role in how much insulin your body makes. It also controls how your cells respond to it. Caffeine keeps adenosine which plays a big role in how much insulin your body makes.
Coffee black for me and type 2 for some years and never a problem. Iv'e learnt a lot about my intake and now in pre-diadetic and find my black coffee is a great help.Good morning all, Just a very concerning question. How many of you drink coffee in the morning just after waking? I have been drinking coffee for years and mostly to increase my hypotension (low blood pressure. But lately i have noticed that drinking coffee in the a.m. straight after waking is causing hypoglycaemia symptoms, mainly the headaches, blurred vision, dizziness and making me feel weak, tired and under the weather.
I had a read online and most of the information states that coffee indeed causes blood sugar spikes:-
How Does Coffee Affect Your Blood Sugar?
That cup of coffee, tea, or soda can affect blood sugar control. Here’s what people who have diabetes need to know.www.webmd.com
- Caffeine raises levels of certain stress hormones, like epinephrine (also called adrenaline). Epinephrine can prevent your cells from processing as much sugar. It may also keep your body from making as much insulin.
- It blocks a chemical called adenosine. This molecule plays a big role in how much insulin your body makes. It also controls how your cells respond to it. Caffeine keeps adenosine which plays a big role in how much insulin your body makes.
i have liver disease and coffee is good but i mix tea and coffee .People dont realise that tea has caffeine in itI don't drink coffee! My tipple during the day is tea!
And it could be the lactose in the milk!
Quite a few have full fat milk or cream in their coffee a lot less carbs and more natural fats.
The question does highlight the reaction from coffee and tea, how the hormones do play a part in his our bodies cope with food.
That's really interesting, does it happen at any time of the day?I am a tea drinker myself and never have it with milk in it so there is absolutely no meaningful carbohydrate present. I do notice that drinking the hot fluid raises my blood sugar levels as does taking a hot shower. There are so many things that can affect our bodies that we often don’t consider.
@jabalka Having been Type 1 from 1959 - 2013, my BG management was never impacted by caffeine, and even now I drink a lot and my blood chemistry is exemplary (checked every 3 months) in spite of not being allowed to exercise significantly. It's fine to say "in my experience", but generalising is not helpful since we are all different.During this "black cloud" phase, I drank a lot of coffee to keep my brain active. However, I noticed that the insulin I injected stopped working for several hours after consuming coffee. After investigating, I found that my body fat percentage had exceeded 20%, and my lack of cardio exercise made it difficult for my body to process both coffee and insulin simultaneously.
Caffeine blocked the effects of insulin while it was in my bloodstream. Whether I drank coffee with or without milk (I prefer mine 50/50), my blood sugar would always rise—even with constant insulin injections.
So, every time I consumed caffeine, my blood sugar increased while my insulin stopped working!
This is a fact—at least for me. I am not surprised that even people on a diet experience blood sugar spikes from caffeine. If it happens to me while injecting insulin, it certainly affects those who do not use insulin.
@jabalka Having been Type 1 from 1959 - 2013, my BG management was never impacted by caffeine, and even now I drink a lot and my blood chemistry is exemplary (checked every 3 months) in spite of not being allowed to exercise significantly. It's fine to say "in my experience", but generalising is not helpful since we are all different.
Your post said you were getting symptoms of HYPOglycaemia which is the opposite of a spike. Do you actually measure your BS with either a CGM or finger prick to see what is actually happening? Without that all this advice is speculation.Today is the first day that i haven't had coffee. So far i'm not symptomatic, but in saying that i'll have to continue for a few days to see whether it helps or whether it's just a one off thing. I'm not sure why the coffee affects me so much since i only drink it black with no sugar/substitute sugar or milk/cream. So at this stage for me it's wait and see.
The problem is that you chose to word your personal experience in a very generalising way, speaking as if it's universal truth when many of us have different experiences.All I wanted to do was share my personal experience, as I clearly stated. I did not generalize but spoke mainly about my own observations regarding caffeine.
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