• Guest - w'd love to know what you think about the forum! Take the 2025 Survey »

Concerned girlfriend..

Stellar_bella

Member
Messages
10
Hello my name is Sarah. I have been with my partner for 5 months now. He is a type 1 diabetic and has been since he was a child.

Unfortunately, he has suffered 5 fits in his sleep since I have been with him. I think the term for this is nocturnal hypoglycaemia.. I've had to inject him with his emergency needle twice and called the ambulance the first time as it scared me so much and I hadn't been told what to do.

I'm wondering if 5 fits in 5 months is something to be really concerned about? I've spoken to my partner, but I am just wondering what the overall consensus is.

I unfortunately suffer from anxiety and find his fits very distressing and it takes me days to recover. I just want to know if this is something I just need to get used to, as it's part of a type 1 diabetics life. Or if it may improve and his fits may become less frequent..

Thanks for you input :)
 
Sarah, it's not something you or your partner should get use to and he needs to urgently address why he is having so many hypo's in his sleep, has he discussed these hypo's with his diabetes team with a view to reducing his insulin?......a little background information about his diabetes control would be useful here so that members can offer you some advice.
 
He doesn't have a team :( he refuses to see the specialist because they haven't been much help in the past.. He hates that he is diabetic and so he almost revolts against it.. Which is futile because he will suffer in the end..

He only tests sporadically, telling me he can tell from his body cues what his levels are.. I just don't know what to think or do because I'm so new to this :(


Sent from the Diabetes Forum App
 
Sounds as though he is in denial that he has diabetes, while I am type 2 I can tell when I am going very high or low. But to say I could tell you what my general BS levels are by how I feel I don't think so, there's a range of BS levels where I would not know what my BS is.

Sounds like that he might of come across the post code lottery of if he gets good support or not. I don't know what the answer is but he needs to seek help or at least advise on what's going on with him.

Would he be approachable to let you (if your willing) test his BS before and after meals in the thinking you want to learn more about diabetes and the effects of food and the amount of insulin he takes to bring his levels back into normal range.
 
That might actually be a good angle to go in at. Testing for my understanding and education around diabetes instead of "checking up on him" so to speak. I tested him after his last fit and he let me. Just so I could see his levels were high enough that he wouldn't drop and fit again. I'm always scared he will fit again, even though I know it's highly unlikely after injecting him with his needle.

Thanks for that idea :)


Sent from the Diabetes Forum App
 
Hi Sarah and welcome to the forum :)

I think it is important that you be as well informed about diabetes as possible so you can help your partner. Here is the information we give to new members which I hope you will find useful. Ask plenty of questions and someone will be able to answer you.


BASIC INFORMATION FOR NEW MEMBERS

Diabetes is the general term to describe people who have blood that is sweeter than normal. A number of different types of diabetes exist.

A diagnosis of diabetes tends to be a big shock for most of us. It’s far from the end of the world though and on this forum you’ll find well over 30,000 people who are demonstrating this.

On the forum we have found that with the number of new people being diagnosed with diabetes each day, sometimes the NHS is not being able to give all the advice it would perhaps like to deliver - particularly with regards to people with type 2 diabetes.

The role of carbohydrate

Carbohydrates are a factor in diabetes because they ultimately break down into sugar (glucose) within our blood. We then need enough insulin to either convert the blood sugar into energy for our body, or to store the blood sugar as body fat.

If the amount of carbohydrate we take in is more than our body’s own (or injected) insulin can cope with, then our blood sugar will rise.

The bad news

Research indicates that raised blood sugar levels over a period of years can lead to organ damage, commonly referred to as diabetic complications.

The good news

People on the forum here have shown that there is plenty of opportunity to keep blood sugar levels from going too high. It’s a daily task but it’s within our reach and it’s well worth the effort.

Controlling your carbs

The info below is primarily aimed at people with type 2 diabetes, however, it may also be of benefit for other types of diabetes as well.
There are two approaches to controlling your carbs:

  • Reduce your carbohydrate intake
  • Choose ‘better’ carbohydrates
Reduce your carbohydrates

A large number of people on this forum have chosen to reduce the amount of carbohydrates they eat as they have found this to be an effective way of improving (lowering) their blood sugar levels.

The carbohydrates which tend to have the most pronounced effect on blood sugar levels tend to be starchy carbohydrates such as rice, pasta, bread, potatoes and similar root vegetables, flour based products (pastry, cakes, biscuits, battered food etc) and certain fruits.

Choosing better carbohydrates

Another option is to replace ‘white carbohydrates’ (such as white bread, white rice, white flour etc) with whole grain varieties. The idea behind having whole grain varieties is that the carbohydrates get broken down slower than the white varieties –and these are said to have a lower glycaemic index.
http://www.diabetes.co.uk/food/diabetes ... rains.html

The low glycaemic index diet is often favoured by healthcare professionals but some people with diabetes find that low GI does not help their blood sugar enough and may wish to cut out these foods altogether.

Read more on carbohydrates and diabetes

Eating what works for you

Different people respond differently to different types of food. What works for one person may not work so well for another. The best way to see which foods are working for you is to test your blood sugar with a glucose meter.

To be able to see what effect a particular type of food or meal has on your blood sugar is to do a test before the meal and then test after the meal. A test 2 hours after the meal gives a good idea of how your body has reacted to the meal.

The blood sugar ranges recommended by NICE are as follows:

Blood glucose ranges for type 2 diabetes
  • Before meals: 4 to 7 mmol/l
  • 2 hours after meals: under 8.5 mmol/l
Blood glucose ranges for type 1 diabetes (adults)
  • Before meals: 4 to 7 mmol/l
  • 2 hours after meals: under 9 mmol/l
Blood glucose ranges for type 1 diabetes (children)
  • Before meals: 4 to 8 mmol/l
  • 2 hours after meals: under 10 mmol/l
However, those that are able to, may wish to keep blood sugar levels below the NICE after meal targets.

Access to blood glucose test strips
The NICE guidelines suggest that people newly diagnosed with type 2 diabetes should be offered:

  • structured education to every person and/or their carer at and around the time of diagnosis, with annual reinforcement and review
  • self-monitoring of plasma glucose to a person newly diagnosed with type 2 diabetes only as an integral part of his or her self-management education

Therefore both structured education and self-monitoring of blood glucose should be offered to people with type 2 diabetes. Read more on getting access to blood glucose testing supplies.

You may also be interested to read questions to ask at a diabetic clinic

Note: This post has been edited from Sue/Ken's post to include up to date information.
 
Hi Sarah

You're in a tough place with this situation..

A type 1 should try to keep their levels between 5 and 8.

Does your boyfriend drive. If he does, them by law he should be testing before he drives. This may be something that you could ask for him to do if he drives and you are getting in as the passenger.. If he does drive... Them having that high quantity of night time hypo's.. If the dvla knew.. He would lose his driving licence (even though they were night hypos).

How did he manage before you? If you are needing to assist him.. Did he have someone else helping previously?

Do you know how high his levels are going?
 
Thanks very much for the basic info :)

I have no idea what his normal levels are, as he basically never tests them. He has already had his licence revoked once and only very recently got it back. I think your idea about testing before I get in the passenger seat is a great idea! :) he should be able to accept that it's my right to ensure my safety when travelling with him. And since he likes to be the driver, it might help get him back into the process of regularly checking.

He lives at home with his parents still at the moment and they have been helping him. I think they gave up pushing the point with him because he is so stubborn and hates talking about his condition or letting it make him different.

I'm really concerned about his long/short term health. If we end up together for a long time I'm going to heed him to be more proactive and supportive. I'm scared he will just leave me if I'm too forceful and stand my ground with regards to his health (testing levels, doctors visits, a good diet).


Sent from the Diabetes Forum App
 
Stella

You seem to be more worried about his health than your own. If he is so pig headed as to not think he has to take responsibility for himself and instead be a spoilt brat then why should you push yourself over the edge with anxiety. I understand that you care about him a lot but really if he feels it is acceptable to disregard your anxiety problems so he can feel normal then you should consider whether this the right guy for you. This is not a diabetes problem this is a problem of one selfish individual who cares not one bit how he affects the lives of others. He has diabetes not you. He has to take care of it and you can only support him. Not the other way around.
 
Andy I think your last few sentences sum this up pretty well. I can't do it for him and be keeping out of it and not trying to rock the boat, I'm just allowing him to continue his negative patterns.

I think I am going to ask him to test around meal times and before he goes to bed. So we both have a better understanding about it. And I'm going to refuse to get in the car with him unless he tests. And I mean that, I just won't get in until I see his reading. That us stubborn too, but it's my safety as well.

If this is all to much for him and he wants to stay in denial, then I may have to deeply consider my next move :(


Sent from the Diabetes Forum App
 
Well done Stella sounds like the right idea.
Don't get me wrong I can see where he is at but he should not let it get into your head. Its a relationship and they are two way things not one way.
 
Thanks for the support everyone :D it's the first time I've used this forum, and I am really so happy with the responses I've received. It has reassured me that I'm not alone and that my concerns are valid. Thanks for the information and ideas as well, they are very helpful :))


Sent from the Diabetes Forum App
 
Sarah
You say boyfriend has had licence revoked before....do you know much about that, and how he got it back? Its just that the dvla rules have changed, any person having insulin MUST test before driving, and supposedly they must be able to prove 3 months readings, and WITHOUT MORE THAN 1 assistance from another person....

Its not just for him that you must get him to test before driving, its for your safety too!!! And others.. It could be a starting point.

He must never be under 5 when driving...but something makes me think your boyfriend will be having big swings in his blood readings and could be above 10.

Its early days in any relationship to have to take on the problems of somebody elses diabetes.. Do you really think you have the strength of personality to take on this challenge, whenit looks like his parents have failed? It is really hard to change people's attitudes towards their diabetes... So many people have to have serious medical complications before they turn themselves around to care about themselves... We'll support you anyway we can... I dont think it is going to be easy to turnround though tbh....
 
Stellar_bella said:
He doesn't have a team :( he refuses to see the specialist because they haven't been much help in the past.. He hates that he is diabetic and so he almost revolts against it.. Which is futile because he will suffer in the end..

He only tests sporadically, telling me he can tell from his body cues what his levels are.. I just don't know what to think or do because I'm so new to this :(


A very difficult position to be in Sarah, if he refuses to see his diabetes team and only tests sporadically then his diabetes is going to be difficult to control, no matter how clever someone is they cannot tell what their bg levels are without the need to test, this is particularly so in type 1's who have no or little pancreatic function and need to inject insulin.

As I said earlier he needs to start testing and speak with his diabetes team about reducing his insulin doses to stop the hypo's and fits, by the sounds of it your partner has lost his hypo awareness symptoms which is a cause for concerns and probably means he is experiencing more hypo's than he is letting on, the very fact that he has needed assistance from you on two occasions and once by an ambulance in the last 5 months now means he must inform the DVLA who will suspend his license for 12 months until matters improve.

At the end of the day you can only help those you want to be helped, being in denial and rebelling against diabetes is something that quite a few of us have been through at some point, help is available out there but the patient needs to make the first move and approach their gp or diabetes team and talk things over, the sooner he does this the better as he is storing up potential problems which may come back to hurt him one day in the future.

Therefore Sarah do persuade him to seek help, once his diabetes is under control he will feel so much better with life and hopefully won't experience those awful hypo's you have described, it will also take a huge burden off your shoulders as you do not need this when suffering from anxiety problems yourself.

Good luck and I wish you both well!
 
Thanks very much for the info guys :)

I've spoken to him today and he is going to start testing at bed time and before he drives me anywhere. I knows that's not perfect but it's a start! I hoping some of the readings surprise him and therefore encourage him to test more regularly.

He has to keep a log book of tests he has done to meet license requirements, so he is going to do that as well.

I really hope through this process he takes a bit more interest and responsibility for his health. But only time will tell!!

Thanks for the well wishes :)



Sent from the Diabetes Forum App
 
Stellar_bella said:
Thanks very much for the info guys :)

I've spoken to him today and he is going to start testing at bed time and before he drives me anywhere. I knows that's not perfect but it's a start! I hoping some of the readings surprise him and therefore encourage him to test more regularly.

He has to keep a log book of tests he has done to meet license requirements, so he is going to do that as well.

I really hope through this process he takes a bit more interest and responsibility for his health. But only time will tell!!

Thanks for the well wishes :)



Sent from the Diabetes Forum App

I've been following this but not posting, but now I just had to step in and say yey! Now he's starting to test he might see the benefits in it and hopefully will spur him on to do more. It will put your mind at ease for going to bed. My DSN says if my BG is below 8 at bedtime I should have a snack. I choose a small scotch pancake at roughly 14g carb, toasted with butter. Tastey! Might be an idea to suggest something similar? No point in testing if he doesn't react to the readings

Do you know if he's on mixed insulin, or a slow acting background insulin and then a fast acting for when he eats?

If you want to know more I highly recommend a book called "think like a pancreas". It's taught me everything I know and is written is a kind of funny way which makes it an easy read. It explains everything in an easy way. And you never know, once you've finished it your boyfriend might want to borrow it!
 
Thats brilliant Sarah.. A good start.. Wouldnt make it a big issue that he starting doing tests in front of his parents tho.... The'lll be pleased, but parents can then start to nag, or ask what readings are etc.. Let him take control in front of you first...

Well done. Dont get into car if readings less than 5 unless he eats first.....
 
Make sure he has hypo stoppers in car where he can get to them quickly...
 
donnellysdogs said:
Thats brilliant Sarah.. A good start.. Wouldnt make it a big issue that he starting doing tests in front of his parents tho.... The'lll be pleased, but parents can then start to nag, or ask what readings are etc.. Let him take control in front of you first...

True! I HATE when my mother asks me what my readings are. She even phone sometimes and asks! I'm 23 for christs sake! They only do it because they care, but my god is it irritating.....
 
Thanks so much for the book info hale710 that's really helpful! Because I have no idea what I'm supposed to be cooking for him :/ I made vegetable soup n toast for tea last time he had a fit and I felt terrible because I thought I didn't make the right food for dinner :((


Sent from the Diabetes Forum App
 
Back
Top