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Confused About Advice, And What To Do Next.

murrayjohn

Member
Messages
11
Location
Lincoln
Type of diabetes
Treatment type
Insulin
Hi, my wife was diagnosed as type 2 diabetic two decades ago, and until recently managed by diet. If her blood sugar level goes slightly above 12, she frequently has diabetic seizures. We went to see our gp, who urgently referred her to a diabetic nurse, who said that her levels were normal. As you can imagine, my wife and I are a little upset, because we seem to be getting nowhere. The last time she was in hospital following a diabetic seizure, the specialist explained that some people are more sensitive to high/low levels than others. He referred her to a diabetic consultant who put her on metformin which she had adverse reactions to, and to glp1 inhibitors (or similar). I guess it's back to the gp again... Any help and/or advice would be extremely welcome.
Thank you
john
 
Hi, my wife was diagnosed as type 2 diabetic two decades ago, and until recently managed by diet. If her blood sugar level goes slightly above 12, she frequently has diabetic seizures. We went to see our gp, who urgently referred her to a diabetic nurse, who said that her levels were normal. As you can imagine, my wife and I are a little upset, because we seem to be getting nowhere. The last time she was in hospital following a diabetic seizure, the specialist explained that some people are more sensitive to high/low levels than others. He referred her to a diabetic consultant who put her on metformin which she had adverse reactions to, and to glp1 inhibitors (or similar). I guess it's back to the gp again... Any help and/or advice would be extremely welcome.
Thank you
john
After 2 decades, what changed? Menopauze maybe? What diet did she follow specifically? Was it low carb/high fat, and if so, is progressing to keto/intermittent fasting an option yet unexplored? Was 12 a usual number these past decades and are the seizures new, or are those high readings new? Sorry about all the questions, but stuff like that helps when giving advice (though we're not medical docs, and we can only make suggestions). If high readings are new after decades of being diet controlled, the diet could be looked at and re-evaluated. If readings like 12 have been common all this time she wasn't exactly controlled to begin with, and should have been on meds and/or a tweaked diet sooner. If the numbers are new, something else could be going on. Inflammation maybe? Or new meds like steroids pushing up the numbers? Can you tell us what a typical day's meals are? Snacks and drinks included. Maybe there's something to gain there... I've only been diagnosed a T2 for 2 years, but this place really helped in managing it. I hope we can assist you guys.
Good luck,
Jo
 
Hi @murrayjohn, The following is based on my experience as a diabetic and not given as medical advice or opinion.
I am sorry to hear of your wife's travails and the effect on them on you both.
It is possible for you to describe what happens when your wife has one of these 'seizures', how long they last and how they are treated/managed ?
And besides the comment you say was made by the diabetic specialist about some persons being more sensitive to blood sugar levels than others, has she had any tests performed to try to find out what is happening?
Best Wishes.
 
After 2 decades, what changed? Menopauze maybe? What diet did she follow specifically? Was it low carb/high fat, and if so, is progressing to keto/intermittent fasting an option yet unexplored? Was 12 a usual number these past decades and are the seizures new, or are those high readings new? Sorry about all the questions, but stuff like that helps when giving advice (though we're not medical docs, and we can only make suggestions). If high readings are new after decades of being diet controlled, the diet could be looked at and re-evaluated. If readings like 12 have been common all this time she wasn't exactly controlled to begin with, and should have been on meds and/or a tweaked diet sooner. If the numbers are new, something else could be going on. Inflammation maybe? Or new meds like steroids pushing up the numbers? Can you tell us what a typical day's meals are? Snacks and drinks included. Maybe there's something to gain there... I've only been diagnosed a T2 for 2 years, but this place really helped in managing it. I hope we can assist you guys.
Good luck,
Jo
@daisy1 , your starter pack wisdom please?
 
@murrayjohn

Hello John and welcome to the Forum :) Here is the Basic Information we give to new members and I hope you will find it useful. Ask as many questions as you like and someone will be able to help.


BASIC INFORMATION FOR NEW MEMBERS

Diabetes is the general term to describe people who have blood that is sweeter than normal. A number of different types of diabetes exist.

A diagnosis of diabetes tends to be a big shock for most of us. It’s far from the end of the world though and on this forum you'll find well over 235,000 people who are demonstrating this.

On the forum we have found that with the number of new people being diagnosed with diabetes each day, sometimes the NHS is not being able to give all the advice it would perhaps like to deliver - particularly with regards to people with type 2 diabetes.

The role of carbohydrate

Carbohydrates are a factor in diabetes because they ultimately break down into sugar (glucose) within our blood. We then need enough insulin to either convert the blood sugar into energy for our body, or to store the blood sugar as body fat.

If the amount of carbohydrate we take in is more than our body’s own (or injected) insulin can cope with, then our blood sugar will rise.

The bad news

Research indicates that raised blood sugar levels over a period of years can lead to organ damage, commonly referred to as diabetic complications.

The good news

People on the forum here have shown that there is plenty of opportunity to keep blood sugar levels from going too high. It’s a daily task but it’s within our reach and it’s well worth the effort.

Controlling your carbs

The info below is primarily aimed at people with type 2 diabetes, however, it may also be of benefit for other types of diabetes as well.

There are two approaches to controlling your carbs:
  • Reduce your carbohydrate intake
  • Choose ‘better’ carbohydrates
Reduce your carbohydrates

A large number of people on this forum have chosen to reduce the amount of carbohydrates they eat as they have found this to be an effective way of improving (lowering) their blood sugar levels.

The carbohydrates which tend to have the most pronounced effect on blood sugar levels tend to be starchy carbohydrates such as rice, pasta, bread, potatoes and similar root vegetables, flour based products (pastry, cakes, biscuits, battered food etc) and certain fruits.

Choosing better carbohydrates

The low glycaemic index diet is often favoured by healthcare professionals but some people with diabetes find that low GI does not help their blood sugar enough and may wish to cut out these foods altogether.

Read more on carbohydrates and diabetes.

Over 145,000 people have taken part in the Low Carb Program - a 10 week structured education course that is helping people lose weight and reduce medication dependency by explaining the science behind carbs, insulin and GI.

Eating what works for you

Different people respond differently to different types of food. What works for one person may not work so well for another. The best way to see which foods are working for you is to test your blood sugar with a glucose meter.

To be able to see what effect a particular type of food or meal has on your blood sugar is to do a test before the meal and then test after the meal. A test 2 hours after the meal gives a good idea of how your body has reacted to the meal.

The blood sugar ranges recommended by NICE are as follows:

Blood glucose ranges for type 2 diabetes
  • Before meals: 4 to 7 mmol/l
  • 2 hours after meals: under 8.5 mmol/l
Blood glucose ranges for type 1 diabetes (adults)
  • Before meals: 4 to 7 mmol/l
  • 2 hours after meals: under 9 mmol/l
Blood glucose ranges for type 1 diabetes (children)
  • Before meals: 4 to 8 mmol/l
  • 2 hours after meals: under 10 mmol/l
However, those that are able to, may wish to keep blood sugar levels below the NICE after meal targets.

Access to blood glucose test strips

The NICE guidelines suggest that people newly diagnosed with type 2 diabetes should be offered:
  • structured education to every person and/or their carer at and around the time of diagnosis, with annual reinforcement and review
  • self-monitoring of plasma glucose to a person newly diagnosed with type 2 diabetes only as an integral part of his or her self-management education

Therefore both structured education and self-monitoring of blood glucose should be offered to people with type 2 diabetes. Read more on getting access to blood glucose testing supplies.

You may also be interested to read questions to ask at a diabetic clinic.

Note: This post has been edited from Sue/Ken's post to include up to date information.
Take part in Diabetes.co.uk digital education programs and improve your understanding. Most of these are free.

  • Low Carb Program - it's made front-page news of the New Scientist and The Times. Developed with 20,000 people with type 2 diabetes; 96% of people who take part recommend it... find out why

  • Hypo Program - improve your understanding of hypos. There's a version for people with diabetes, parents/guardians of children with type 1, children with type 1 diabetes, teachers and HCPs.
 
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