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whatnext51

Member
Hi all
Im quite angry at the minute. I have not been the same since a course of prednisalone in 2014 which seen my weight increase by 5st. I admit I never helped myself and ate like there was no tomorrow. The Gastro dept sent me to every clinic in the hosp with my numerous symptoms and I was diagnosed with sleep apnea and osteoarthritis along with indetermened colitis.
After recent blood tests my prolactin hormone levels were high (1040) and my GP ref me to a endocrinologist. Im 51 and not pregnant lol.
This rather obnoxious rude man told me I had type 2 diabetes and hypertension and I needed to take this serious before any MRI test would be done to seek tumours? He said I was an ill woman and could have a stroke anytime. I then received a phone call from my surgery asking me to attend as the GP had received a letter from hosp.
I attended my GP and he didnt know why I was there and after I explained he'd requested me to come and see him he said he could not recollect. Eventually after telling him my feet where numb he gave me metformin and told me to see the nurse (appt now booked 1st July). Receptionist was as confused as I was (my GP is very young so hes not senile).
Next day I receive a copy of the letter and found it to be very rude in the description of me and blaming my life style for diabetes 2 as I stopped steroids in 2014 and this couldnt possibly have any connection (Iv had symptoms since then and was even admitted to a stroke unit for 3 days after a CT scan but later told it was medication related and I hadnt had a stroke?). It also mentions my numerous clinic visits to different depts (I was ref to all of these by gastro clinic yet hes made out Im some sort of hypocondriac).
Im feeling rather misunderstood and weepy. I work full time, Im exhausted and climb into bed most nights an hour after Im home from work. Iv got pains in both legs and numbness in hands and feet. I now feel I shouldnt bother going the drs anymore as everyone is treating me like Im a mad moaner. Sorry for the long post its all just matter of factly being thrown at me and Im feeling lost.
Does anyone else get this treatment like your a lepper?
 
My advice to you, and it is only my opinion, is to take the metformin as directed, get a blood glucose meter and learn how and when to use it, cut most of the carbs out of your diet, (you can add back later as you figure out what your body tolerates) and read "blood sugar 101". This is not your fault and you have been treated badly. The only one, however, that can get control over this is you. This forum is an awesome place to ask questions and get support. I would also start going through the type 2 threads and reading them. The sooner you get a handle on this the sooner you will feel better and the better your chances of improving the neuropathy although this takes time. If the nurse tells you to eat a diet with more than 30ish grams of carbs a day just smile and nod and then don't do it. And again "BLOOD SUGAR 101" !!!!!!!! Maybe someone on here could put up a link for you but a google search should get you to it. I wish you well and please let us know how you are doing, and remember that just because the medical system has let you down does not make you a bad person and THIS IS NOT YOUR FAULT!!!!
 
You can of course get angry (sounds like you have every right to), and get so down that you just abandon any attempt to get things under more control (ie. feel better) but neither will help you in the slightest, yeah? What you need to do, whether your nurse, doctor or anyone else is a pain in the backside, is to get as informed as you can be and put yourself in control of your health wherever you can. A low carb diet will reduce blood sugar levels and help with weight loss.

As for the rubbish or lies you have been told regarding this steroid as a cause of your diabetes, it may be worth noting the following :
I was diagnosed with Type 2 after two months on Prednisolone following a kidney transplant. I was warned in advance by all the renal doctors, two pharmacists and one nurse on the ward that this drug could increase my blood sugar levels and lead to Type 2 diabetes (particularly because I would be on the drug for a long time). over a year on and the kidney is good and my blood sugar is managed well with diet alone (I was originally on Gliclazide). I have had several doctors since (at regular clinics) confirm that Prednisolone caused my diabetes. I'm fine about this as I'd rather have diabetes than have to face dialysis for the rest of my days (and I was well aware of the risk in advance..and I'd make the same decision again). Some doctors like to say that so called Steroid Induced Diabetes (yes that's what it is called) only triggers a predisposition to diabetes due to lifestyle or family history. I have never been overweight and no-one in my family ever had diabetes (except my brother..who recently had a similar transplant and got diabetes..from the same steroid!). My renal doctors agree that the steroid was directly responsible, and having greatly reduced the dosage, my spikes have dramatically lowered. The advice is that if someone takes certain steroids (particularly Prednisolone) for a short period, increased blood sugar may well return to normal levels on stopping. if, however, you are on a course for a couple of months that is less likely and the longer the course..the higher the risk that blood sugar will not return to normal just because you have stopped the drug. In your case, what is important- to know whether the drug caused (or triggered) the diabetes is a] how long did you take it for, and b] was your blood sugar tested at that time? Bottom line, anyone telling you that Prednisolone could not have caused it simply because you no longer take the drug is either needing to update their own knoweldge of that drug and its side effects, or they are avoiding the issue. Be very sure, a lot of diabetes nurses do NOT know the side effects of Prednisolone and most people they see will have diabetes due to lifestyle. Regardless of that fact...there is no excuse for them blaming you. Their job is to help, and that included motivating rather than the opposite. Further, even if your lifestyle did cause it - who makes all the grub full of carbohydrates? You? Me? Or big corporations that couldn't give a monkeys. Anyway - it's almost irrelevant what did cause it now, as is the attitude of an incompetent professional. All that count snow is how to ge tit lower..and that, my friend is down to diet...and when you succeed - you will feel pretty good about yourself. Focus on getting informed by people who count - other diabetics. This site is superb for that. Good luck.
 
Thank you all so so much, just hearing the words that you have experianced similar is enough to know I am not alone or crazy and you have lifted my spirits. Time for me to get reading, cheers everyone xxx
 
Oh for the record Pleinster I started intra - v for a week then 40mg tabs reducing 5mg a week for 8 weeks (9 weeks in all). I dont know what my blood sugar was at the time though but it was 5.1 that year its now 8.1

I wish you well and your so brave having a transplant and I am glad it went for you. Once again thanks to you and Chalup for your encouraging support xxx
 
whatnext51 said:
Oh for the record Pleinster I started intra - v for a week then 40mg tabs reducing 5mg a week for 8 weeks (9 weeks in all). I dont know what my blood sugar was at the time though but it was 5.1 that year its now 8.1

I wish you well and your so brave having a transplant and I am glad it went for you. Once again thanks to you and Chalup for your encouraging support xxx
Click to expand...

When you find the right approach, that 8.1 will come right down. As for my bravery in having a transplant - more fear of having my life dictated to by the need for dialysis. But thanks. x Paul
 
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