Mrs HJG
Well-Known Member
- Messages
- 328
- Type of diabetes
- LADA
- Treatment type
- Tablets (oral)
Has anyone had experience of being graded before seeing an endocrinologist and whether my 'presentation' would class me as 'urgent' or 'non-urgent'? Please excuse my lack of knowledge if this happens to everyone.
Brief recap - HbA1c 129.5 mid December - told suspected T1 by local diabetes nurse, put on 8 units/day insulin immediately, then reverted to T2 the following week by the hospital team but C-Peptide and GAD tests requested. Metformin started and changed from Levemir to Humulin M3.
BG reduced in 3 weeks to 'normal levels' with 8, 10 then 6 units of insulin/day and 2 Metformin, so insulin stopped as frequent low 4s, then C-peptide result 'confirmed' day after as T2 before New Year.
BG still generally in 4s, 5s and the odd low 6 on 4 Metformin, reduced carbs (100-150g/day) and increased walking exercise only. Testing again 5 times a day, (before meals and bed, and 2 hours after tea).
However all autoimmune results came back positive last week, so back to probable T1/not T2, still only on Metformin and I have no idea if I will make it onto the 6 week, or 6 month wait list and won't know for at least another week or so according to the hospital secretaries. Driving myself round the bend waiting.
I suspect LADA. Been told by the nurse that only a consultant can make a genetic diagnosis, so I must wait; it obviously feels all-consuming and urgent to me, but in the wider scale of things maybe not so much? DVLA still think I am on insulin as I haven't been able to get through to amend, so not urgent to update them again, so don't think I need to do anything else at the moment.
Both blood and urine were simply overnight fasting as not asked to do anything different:
C-peptide 7.52
Creatinine 9.5
Ratio 0.79
GAD Ab 220.8u/ml
ZnT8 Ab 895.6u/ml
1A2 Ab 1664.1u/ml
Words of wisdom much appreciated. - feels like this is the only place anyone is listening, thank you.
Brief recap - HbA1c 129.5 mid December - told suspected T1 by local diabetes nurse, put on 8 units/day insulin immediately, then reverted to T2 the following week by the hospital team but C-Peptide and GAD tests requested. Metformin started and changed from Levemir to Humulin M3.
BG reduced in 3 weeks to 'normal levels' with 8, 10 then 6 units of insulin/day and 2 Metformin, so insulin stopped as frequent low 4s, then C-peptide result 'confirmed' day after as T2 before New Year.
BG still generally in 4s, 5s and the odd low 6 on 4 Metformin, reduced carbs (100-150g/day) and increased walking exercise only. Testing again 5 times a day, (before meals and bed, and 2 hours after tea).
However all autoimmune results came back positive last week, so back to probable T1/not T2, still only on Metformin and I have no idea if I will make it onto the 6 week, or 6 month wait list and won't know for at least another week or so according to the hospital secretaries. Driving myself round the bend waiting.
I suspect LADA. Been told by the nurse that only a consultant can make a genetic diagnosis, so I must wait; it obviously feels all-consuming and urgent to me, but in the wider scale of things maybe not so much? DVLA still think I am on insulin as I haven't been able to get through to amend, so not urgent to update them again, so don't think I need to do anything else at the moment.
Both blood and urine were simply overnight fasting as not asked to do anything different:
C-peptide 7.52
Creatinine 9.5
Ratio 0.79
GAD Ab 220.8u/ml
ZnT8 Ab 895.6u/ml
1A2 Ab 1664.1u/ml
Words of wisdom much appreciated. - feels like this is the only place anyone is listening, thank you.