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Continuous Glucose Monitoring (CGM)

Discussion in 'Type 1 Diabetes' started by Tjb, Oct 19, 2013.

  1. Tjb

    Tjb · Member

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  2. Tjb

    Tjb · Member

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    *BUMP*

    No-one?.. A few years ago, I had the use of the local Diabetes Hospital’s CGM machine for 3 days. There was no display - it was more like a ‘blackbox’ data recorder – and the data had to be analysed by the specialist after downloading. (At the time, it merely proved that I wasn’t going hypoglycaemic in the middle of the night.)

    So I gather that nobody else has had a similar experience with the NHS?

    I’m really trying to gauge the interest in these current-day devices; speaking as somebody whose fingertips of the left hand look like the proverbial ‘pin cushion’, I’d really prefer to switch to a 10-day canula.

    But these things aren’t cheap – anybody else had the ‘Groupon-type’ of idea? (Maybe we could club together and get a group discount?)
     
  3. pumppimp

    pumppimp Type 1 · Well-Known Member

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  4. pumppimp

    pumppimp Type 1 · Well-Known Member

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    Hi, I think nobody has replied as there have been quite a few similar posts over the last few days about what type how do they work how much do they cost etc. Lots of other threads to read just type cgm into the search bit and you should get plenty of info.
    I'm getting one for Christmas this year. As far as I can tell from various posts this year and other research I've done it's the most accurate and doesn't have much of a lag compared with the others and when it's paired with the pump I have it's cheap as well (compared to the others it's definitely not plain cheap!), I only have to purchase the transmitter and sets £500 for that and 4 sets. My pump company suggests 1 weeks use from them, the manufacturers suggest 2 weeks use but I've read people getting up to 4 weeks use if you put new sticky stuff on so they don't fall off. For me it's worth the cost of the £50 a month or so it will cost, to improve my HbA1c and the less hassle of having to get my tester out strip down wash my hands test correct then get suited back up again (I work in a lab with microbes not easy for me just to stop and start) but with this it should alarm if I go past certain pre set levels and if my levels are still within range but jump suddenly up or down. I'll just have to press the top button on my pump to see where I am and what my trend is. Also it will help me organise basals for these pesky hormones and help with bolus timings which I'm getting a bit lazy about.
    Laura
     
  5. Sabantha

    Sabantha · Well-Known Member

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    I've only ever used a cgm for a week at a time (several times during pregnancy) I LOVE the idea of them just wish it was not quite as expensive. I'm getting my pump on Friday (woohoo excited) and I know my hospital has a cgm they loan out from time to time that (I assume) connects with pump. There has been lots of threads on prices ect In last few days your right, think every1 is after a cgm haha x


    Sent from the Diabetes Forum App
     
  6. SewK8

    SewK8 · Well-Known Member

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    Hi
    I had one for a week, little black box thingy! I wish I could have one full time as I have no hypo awareness. Hospital can't fund cgms at the moment but I hope to have one one day!
    Kat



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  7. DunePlodder

    DunePlodder Type 1 · Well-Known Member

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    DiabeticDave has a blog about his experiences with CGM:
    http://diabetescgmblog.com/
    It highlights the positives & negatives.
    There's an entry about his costs over a year which is interesting..and eye watering!
    Robert
     
  8. AnnaCollis

    AnnaCollis Type 1 · Member

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    Hi, I was on a trial for insulin pumps and I used CGM for two years. I loved them, although not always accurate they gave me confidence for the first time in 32 years. However since the trial ended I have not had them. I rang Medtronic who charge £525 for a months supply. This charge is beyond my means and my clinic do not supply sensors on the NHS. I believe that the trial team have seriously let me down because they have not made contingency plans for those who wanted to continue to use CGM.
     
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