Hiya Ellie,
Thank you
.
I'm really sorry, I should have added that it was a year ago that I stopped my insulin due to non stop hypos.
I got a new specialist who I begged and pleaded to to help me and try to look into my diabetes a bit more as I couldn't cope any more with the almost daily hypos.
Previous Drs had just been dismissing me, telling me I was not monitoring my diabetes correctly,, or that it was my mental health and related to panic attacks putting me on anxiety and anti-phsychotics, one occasion when I had a seizure and went unconscious the hospital wouldn't discharge me until the mental health team had assessed me as they believed I'd took an insulin overdose purposely (I hadn't) so it was amazing to finally be listened to. But I had no idea that it was going to come back with no diabetes at all. I thought it was going to be that I was a different kind.
She got my notes from time of diagnosis and all the cpeptide and gad tests they did came back saying I did not have diabetes but for some reason I was diagnosed anyway.
Obviously the new Dr apologised but as she said, she wasn't there so can't comment on why they decided to ignore my test results.
Last time I had DKA I arrived at A&E and told a nurse walking past my ketones were 9 and bm 1 and I needed help immediately as was going to lose consciousness. She gave no reaction, carried on walking and i overheard her tell her colleague I had them the wrong way around and was probably trying to push in so I repeated my finger prick and showed her my machine and was thankfully given somewhere to sit down and an energy drink.
I've been lost in surfing the Web like mad and there's a few different reasons why ketoacidosis happens, I just need to see if the hospital will help me work out what as the Dr was keen to discharge me today.
I
don't know if it's related but I saw my GP this afternoon and as I got home he called me to tell me not to take the tablets he'd just prescribed me as he happened to notice that an ECG I had in 2021 when in hospital with (apparently) DKA had changes on it and should have been dealt with but it fell through the net somehow so he'd rang the hospital and they were expecting me to do a repeat. I remember at the time telling the nurses I felt like I was having a heart attack and couldn't breath but was dismissed. I've found all sorts of stuff online , worst thing to do i know so I've probably been a bit silly, but there's something called respiratory ketoacidosis so I'm wondering if it could have been something like that on that occasion. There's also starvation ketoacidosis. I must have been in hospital and treated for dka a minimum of 20 times. I was diagnosed on Christmas eve and the next two Christmas weeks were coincidentally spent in hospital.
It's all a bit of a mess.
Thank you ever so much for your time Ella, it's really comforting to have someone, who is one of the real experts, take notice and give advice.
Xx