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Dapagliflosin 10mg prescribed again

B

billhp49

Member
Messages
15
Location
Devon
Type of diabetes
Type 2
Treatment type
Tablets (oral)
In late 2023 my Hba1c was 48 and surgery stopped 40mg Gliclazide and replaced it with 10mg Dapa.
Within days my fasting tedt had gone from 5.6 to 8.5 and climbed steadily to 10 over the next weeks. Phone calls to surgery met with "wait fir 3 months. By Jan 2024 Hba1c had increased to 61 and I ended up being urgently referred to Eye Infirmary retinopathy problem had arisen.
Benn attending Eye Inf since for check ups and tests. Following reinstatement of 40mg Gliclazide and subsequently drop in blood sugar no further action. Final check up

Surgery phoned yesterday, two Hba1c tests have been 45 so they insist 10mg Dapa to be started and have prescribed.
My NHS record shows all the preceding and I am worried that the whole fiasco us about to kick off again. If blood sugar peaks do I face serious consequences. Diabetic nurse won't listen to my objections.

Anti shared experience?

Regards,
Bill
 
I wouldn’t be risking my eye sight by changing back to a med that had caused eye problems in the past. I would ask for a second opinion, maybe with a GP. My question would be why change something that’s working ie two consecutive HbA1cs of 45. If you get nowhere with that, a complaint to the practice manager might be called for.
 
Rachox said:
I wouldn’t be risking my eye sight by changing back to a med that had caused eye problems in the past. I would ask for a second opinion, maybe with a GP. My question would be why change something that’s working ie two consecutive HbA1cs of 45. If you get nowhere with that, a complaint to the practice manager might be called for.
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Agree, bug I wonder if diabetes only means a tick box for to complete. My experience suggests no real knowledge or understanding of what it really means to be diabetic. My 25 years of being type 2 has I believe given me a better insight of what works and what doesn't. However not having the "expertise" of an NHS computer and checklist means I am only a patient. I know I face a battle but am happy to monitor me and keep their Triage system busy for change.
 
billhp49 said:
Agree, bug I wonder if diabetes only means a tick box for to complete. My experience suggests no real knowledge or understanding of what it really means to be diabetic. My 25 years of being type 2 has I believe given me a better insight of what works and what doesn't. However not having the "expertise" of an NHS computer and checklist means I am only a patient. I know I face a battle but am happy to monitor me and keep their Triage system busy for change.
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I agree, there are a lot of tick boxes but we are the experts in our condition.
 
Rachox said:
I agree, there are a lot of tick boxes but we are the experts in our condition.
Click to expand...
Took multiple appointments, my prick test records for periods in 2023, and 2025 comparison, plus a comment from Eye Infirmary consultant and was represcribed Gliclazide. So am on the treatment which worked.
Dapagliflosin was actually prescribed without my agreement hence I really had to persist.
Thank goodness My Contour Plus downloads worked again. Another blood test in 6 months, can agree because I will know all the way how my Blood sugar is.
Should it really be so necessary to fight NHS presumtions?
 
billhp49 said:
Should it really be so necessary to fight NHS presumtions?
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I hate the assumption that patients can't possibly judge what's best for themselves, living their own particular life. It's not the 1940s when "Doctor knows best" was the rule.

Give us enough reliable information so we can make the right decision for us. I'm possibly a bit less in awe of medical personnel than most as my best friend from Uni is now a GP, and I *know* I'm capable of understanding anything she can!

Wishing you continued success with the Gliclazide. I too am expecting a fight at my upcoming review as I've been warned the diabetes team at my surgery will probably want me to take a 'flozin - Gliclazide is apparently "old-fashioned" even though it worked for me and I never came close to hypo.
 
Absolutely agree.

We can calculate likely Hba1c results from our prick tests, I get prepared for a "fight" with surgery as their blood test looms. Regrettably our surgery has a reputation of failed diagnosing of anything more than a boil or other visible infection ( other patients comments on wedsite).

Most diabetics do know how they feel and what has worked or failed previously.
It shouldn't be a matter of fitting an NHS scheme of things. I am regularly told other meds would save me having to test to meet DVA requirements because I'm on Gliclazide. I simply don't have hypos and would prick test for my own satisfaction about my Diabetes progress ( plus of course I don't consider one three or six monthly test is sufficient.

Good luck.
 
A further Eye Infirmary appointment arranged for 2nd Dec.

Apparently because of the mis-treatment I will be on 4 monthly tests for the rest of my natural!

So that's a 50 mile round trip, parking difficulties or stay overnight in a hotel to ease transport all because NHS know best. Despite damaging my sight I am told Dapagliflozin will protect my heart and kidneys - high blood sugar obviously won't damage anything!

Have had 2 heart attacks 2016 and 2020 followed by a pacemaker in 2020.
Asked Practice what are they seeking to protect, am close to 80 and controlling blood sugar makes me feel better and retaining my sight means I am able to drive (despite this government wanting all oldies off the road) and get about and be independent. Bluntly they say they are working the NHS priorities and guidelines.

What future is there with NHS with this attitude, God help us if Donald Trump gets NHS to privatise.
 
I have posted elsewhere about my troubles with dapagliflozin. IMO it should never have been prescribed to me when I am on a keto diet. I had a scare letter from the GP surgery which convinced me to stop taking it as it is so wrong for me. I phoned the surgery as instructed in the scare letter and was told to discuss it with my GP at my appointment in 2 weeks' time. So not taking it seriously then. Meanwhile my BG, previously stable in the 5s, has rocketed into the 7s, 6s yesterday, hope it carries on going down. Just what have they done to me with this medication. I was put on it while in hospital, with no notice taken of my keto diet, of which they were well aware.
 
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