diabetes burnout

Niamh1 said:

I am currently feeling very upset about diabetes worried that things will never be the same worried about what I eat and worried about getting complications. I tend to forget about everything but recently i have started to feel like this. i have no idea why. i just don't know what to do any advise will be great

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Just try your best! It's simple but that's all we can do. Keep in range as much as possible. Then maybe the bad stuff won't happen. I'm 10 months in so what do I know. Just hope I'm right

Hello @Niamh1 I think it's perfectly natural to feel this way, I too have had the same worry with living with t1 in the past, I try to focus on the present though so just doing my best each day to keep my t1 in check. We cannot predict the future and have no idea how things will turn out but if we live mindfully in the present then we are doing our best to ensure a better outcome for the future.

I've had type 1 for 58 years. I developed a thyroid problem about 9 years later, but the over-active thyroid issue in the family was known already. I've never developed any other conditions said to be common in type 1.

I think you need to look at the positives. First, you are still here, alive and kicking. You have a working brain and while type 1's unpredictability can drive you up the wall, you need to refuse to let it. Do the things that make you feel good. Go to the theatre with friends, book tickets for a concert, read another of your favourite crime novels, eat something you really fancy and adjust your insulin as needed. You can't just sit waiting to be diagnosed with something else. It may never happen or it may happen in 60 years time. You could get run over by a bus next week come to that, but so could any of us ! We can't predict the future, but we can exercise control over what we do now. It's your choice. It really is.
We all have patches of feeling down. That's part of being human, as far as I'm concerned, not a consequence of being diagnosed with diabetes. Hope this is helpful. It always takes time to adjust to the new reality of living with type 1, but continued research and improving technology must continue to make our lives easier. I was diagnosed at a time when a urine rest was the only test you could do at home to check your BS level. That was not much help at all.

It's pointless bemoaning things you can't alter, but the medics sometimes find it easier to blame the patient than consider seriously why their advice isn't having the desired effect. The fact is we are all different. Advice that works for one of us, doesn't work for everyone else, but may help some. Lots of people give vent to general fury about type 1 on here. I've done it too. My pet hate is being asked if I smoke every time I set eyes on the practice nurse. (Never have, never will !) Fight back. You're more than a person with an annoying disease. You have a life that is of value. You can still live your life and make your own choices. Make sure you do. Good luck with the future. You have got one.

Niamh1 said:

I am currently feeling very upset about diabetes worried that things will never be the same worried about what I eat and worried about getting complications. I tend to forget about everything but recently i have started to feel like this. i have no idea why. i just don't know what to do any advise will be great

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i have a booklet on dealing with t1d burnout that i can send to you if you want.

the most important thing is not to try and struggle alone.... talk to friends or family or your care team or on here or message me.............please don;t struggle alone xx