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Diabetes with J-Pouch &/or Whiples

Z

zen

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Liars, cheats,
I was wondering if anybody else on the forum with Diabetes has had a Whipples Op or has a J-Pouch. I would be interested in talking to them with regards to how they manage their diet to find the best compromise in order to keep BS levels down and avoid the obvious with regards the Pouch.

I've been told I have to cut down on the stodgy foods i.e. potatoes, pasta, rice. But these are the very things I need to be eating for better pouch management!?!?!? :roll:

Any advice would be greatly appreciated.
 
Sounds like one for a specialist dietician. Ask for a referral
 
Already see specialist dieticians at both hospitals. Problem is that my condition as so rare that there is little knowledge about this side of things where the two cross, hence me asking if there was anybody on the forum.
Some people have the J-Pouch as a result of Crohns or Colitis, mine however is a result of Gardiners Syndrome. Add to that a Whipples and that means I am missing my Large Bowel, Gall Bladder, Duodenum and only have a small chunk of Pancreas left and then Diabetes into the bargain. So you can see my dilema, trying to find the happy medium as one requires a low carb diet, and the other a high carb!!!
 
Hi Zen,

I don't have a pouch - however, I have had an ileostomy and, 4 weeks ago, I had my rectum removed so there is no going back for me.

I ended up diabetic because of very high doses of steroids which they tried to treat my ulcerative colitis with so I know how difficult it is to balance your dietary needs with lack of large bowel and diabetes.

Now, personally, I have found that unless I eat a reasonable amount of carbs with every meal (i.e. potatoes, pasta or rice) my sugars are very unpredictable. As you know, our food tends to just "visit" in comparison to someone with all their digestive system intact. My food is through my body within 6-8 hours. As a result, having a reasonably high amount of carbs tends to slow the progression a little and hopefully, my body can pick up a few extra vitamins or minerals along the way. I have numerous other health problems - in fact, for detail, I posted on here some time ago and I think the thread was "Anyone else suffer with multiple health problems?" or something similar. Just search for my posts under my user name and it should bring it up. Just looked it up and it was headed "Insulin Dependent and a host of other health problems ...".

If you have any questions which you would rather not air publicly (I am completely shameless and happy to discuss anything but I know other people can be more reserved!), please feel free to send me a personal message.

Jackie
 
zen said:
I was wondering if anybody else on the forum with Diabetes has had a Whipples Op or has a J-Pouch. I would be interested in talking to them with regards to how they manage their diet to find the best compromise in order to keep BS levels down and avoid the obvious with regards the Pouch.

I've been told I have to cut down on the stodgy foods i.e. potatoes, pasta, rice. But these are the very things I need to be eating for better pouch management!?!?!? :roll:

Any advice would be greatly appreciated.
Click to expand...


I know this is a terribly old post but I have just now come across it. I am diabetic, uncontrolled ( because my being a bad patient) and have had a j-pouch for 7 years. I had UC for 25 years before giving in to surgery and as a result had years of steroid treatment which spurred my genetically per-destined diabetes into being.

I am miserable. I was wondering if you ever found some help. My j-pouch requres consumption of starchy bulky foods to help slow things down, my diabetes requires the opposite, lots of veggies and fiber. I also have some heart abnormalities which requires me to keep my weight down. Here is a typical medical visti scenario.......

1) Go to gastroenterologist because I am having belly ache and loose stools, says bulk up foods to slow it down.....
2) Go to endocrinologist because blood sugar is very high...says eat fiber, increase insulin,
3) Increase insulin, weight goes up ....
4) Go to cardiologist says You have gained weight, takes out tape measure to measure my now bloated from fiber and insulin thick waistline.....I try to explain insulin makes me gain weight, I am advised that I am too anxious and that is not good for any of my conditions........

Has anyone any advice. I am really exhausted from it all.

Nancy :crazy:
 
I don't know anything about your non-diabetic problems, but just thought I'd say that eating a lot of fibre is not a necessity for a low carb diet IMO. I'm eating less than 20g of carb a day at the moment, and the only fibre I get is a little from very small portions of vegetables and a moderate salad each day. If grain fibre bloats you (as it does me), you clearly don't want to be eating it.
I eat quite a high proportion of fat (70-80% of total calories) each day, and 15-25% of protein. (5% carbs). I have no constipation or diarrhoea or digestive distress eating like this.
 
Hello Zen

My husband had the Whipple procedure in 2009- therfor our username :)

I will let him answer your question tomorrow, when he is back. Tough and challenging times, we have been through it all
 
Re: Diabetes with J-Pouch &/or Whiples

I had a whipple's procedure in1997 after diagnosing leiomyosarcoma (cancer). Amongst the various bits removed was about 2/3 of my pancreas. The part removed produced enzymes essential for digestion, but many tests over the past 15 years suggested that the part of my pancreas that produces insulin was still working. I have been taking pancreatic enzymes for 14 years to enable me to digest food. Over the past 18 months to 2 years, I have been losing weight, down from 11 1/2 stone in June 2011 to just under 10 stone June 2013. At 6 feet, I am borderline underweight. In practice, because of other after effects of cancer, I am the equivalent of maybe 1/2 underweight and so bony I can't sit comfortably. I am not peeing a lot or drinking a lot. I occasionally get blurry vision, but put that down to being 60 and working on the computer too much. I am exhausted much of the time and have cold hands and feet.
My GP has tested blood sugar twice this last month. My fasting level is 6. I should have had results on hbac1, but the test was messed up, so I am still waiting for an average figure.
In the meantime, gastroenterologist and dieticians previous advice (high calorie, low roughage, high fat, snack) seems likely to be in conflict with what seems likely to be a diabetic regime for me in the future.
If my weight loss is due to diabetes, that's better than a third bout of cancer!
However, has anyone else experienced my situation? Any advice? Is there a diet or regime I might follow that would keep me below 6.8 blood sugar?
Any comments welcome.


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Re: Diabetes with J-Pouch &/or Whiples

Jallsop
Our illnesses are different, but food rushes through me too. I take loperamide (diarrhoea treatment) two or three times a day and a drug called omeprazole which reduces bile production to compensate for my lack of a gall bladder. You might discuss this with your doctors to see if that could whelp you with digestive issues. Also pancreatic enzyme? Creon.


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