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Diabetic Life.

simply_h

Well-Known Member
Messages
201
Location
The north
Hello All,

Hope we are well.

This post is a bit of a random one. So I apologise.

Life as a diabetic is dam hard, I can only talk from a T2 point of view and a male aged in his mid thirties.

I have asked myself the “Why me?” many times and sometimes do blame myself, as 2 years ago I could eat like a horse and not put much weight on at all, I was always a 72 to 75kg guy, I could go out clubbing, drink like a fish and still be right as rain the next day ect…

But since that fateful day just over a year ago, that all changed, my life change once I was told I was Type 2 diabetic, I got the standard support from my Nurse and G.P, which was all **** and simply useless.

But I am thankful that it was picked up on my yearly blood tests, as it mostly likely will save me a lot of pain down and heartache down the line in years to come (I hope), as I was diagnosed with a HBA1C of 6.6%, which is not too bad, when all said and done I guess, not good either like. Lol.

I must say all the people on this forum old and new have been a lifesaver to me.

With regards to my levels, it does become quiet addictive to test away and sometimes if you are bad with foods, it does make me think is it worth it to eat all the so called nice food, only for your BS to shoot up and do me more harm than good.

As the so-called nice food, will only hurt me short and long terms, so it’s best to avoid them at all costs.

Being diabetic does never leave my mind, from when I wake up to when I go to sleep, is a constant sentence hanging over my head all the time, which can really get on my nerves, when I do get a bad result from my meter, it can get me down, but then I just run up and down stairs for 5mins or go for a 10 to 20mins walk, I am sure some of the neighbours find this strange, but who knows. But when I get a normal / good results it put a big smile on my face.

Its been a massive learning curve, day by day I am learning more and do feel that I am slowly getting there.

As I am getting better with the Low carb thing, as I have started to get the confidence to experiment with new foods, as before it was becoming rather boring eating the same foods all the time and was scared to eat or did not know what to eat, as I used to think it was all I was allowed, but now I eat strawberry and raspberry most days, anything that ends in berry ect.

I am also into steamed vegetables these days, but do love the chicken, fish, lamb, eggs, cheese, it’s a good job I am not a vegetarian, else I would be well snookered. Lol.

But what I do miss is bread, more specifically, hot white / brown bread, with lots of butter, but Nimble bread will have to do I guess.

Well its getting late and I am sorry for random post, but I must say its helped me to actually write it and who knows my even get a good debate going.

Cheers

Simply_h
 
Hi Simply h,
Just wanted to say that I totally understand where you are coming from. It's at 3.44am in the morning...and I'm on here, what does that tell you lol.....I have only recently been diagnosed type 2, however having tests for type 1 now as they can't work out which one I am...Diabetes consumes me!!! I am sure my friends are all bored senseless with it all, infact I bore myself sometimes lol. I hope it will get easier but at the moment I can't see a light at the end of the tunnel. Maybe when I know which type I am I can move forward? I am unable to eat very much at all without my BG's going into double figures, I am constantly out on my bike or running or walking....being only 6 stone 3 I think most of my neighbours think I am annorexic!. but just like you when I see those levels come down ....I feel normal again....for just a little while. :)
It's hard when my family are eating all the lovely things that I can't :( I to love hot crusty bread with lashings of marg!! omg heaven lol. Or a big fat burger and chips...occasionally, all these things I chose not to indulge in b4 as I was pretty strict with my diet prior to diagnosis.....and it was my choice.....but now the choice has been taken away I want them so bad lol.

Thank God I can still have the odd cheeky drink :) I find that brings my BG's down, however I must make sure I don't use this as an excuse lol.

I also blamed myself, kept thinking I must have done something, but everyone on here will tell you it's not you! these things just happen sometimes. However saying that I think I am still slightly in denial. Not sure how long it will take to come to terms with really. Some days I just sit and cry......it's not been a bad day today though, so that's a good :)

I hope you feel better soon hun.

Take Care
Lorri
 
hi simply h

Totally agree. I think I may be starting the acceptance stage of this thing.

I'm not thinking about it so much and good decisions are made 99% of the time.

the most interesting thing for me is eating because I want food. Not eating because I'm bored or not sure what time dinner will be so will have a snack 'just in case' - heaven forbid I might feel hungry lol

Well done and keep it up

Mary x
 
It sucks so yes i totally understand you!

I wish i had been informed better when i was diagnosed...7 years ago...i wish i had been better...i am beyond the point of no return i think.

at least you are not overweight and yes the D word is always there.!!!!
 
Hi There,

I can identify with things that you have all said. As a child/young adult I weighed 7 st and could eat what I wanted and didnt put weight on and I wanted to got fed up with people saying " arn't you thin "

I had thyroid probs from the age of about 29. Then Diagnosed Type 1 aged 36 ( 6 yrs ago )

I must admit that I have thought is this payback time for when I could eat what I wanted. Silly I know! I also find it difficult to tell people I am diabetic and have found this site liberating ( probabaly why I waffle so much ) I have realised that to a certain degree I must not worry about others as the main thing is getting to grips with this thing.

Things havent been fantastic control wise the last 6 yrs but I have discovered carb counting on BDEC and may be able to get on a course at a hopital nearby, so things are looking very positive.

At the end of the day we can't cahge how or why we have diabetes but we can alter the way we live with it in a positive and proactive way.

Chin up Guys

:) :) :)
 
Hi Shop, I have noticed a few people mention thyroid problems, does this happen alot with Diabetes or is it a separate thing?

I hope I can start to be more positive about things like you soon :-)


Lorri
x
 
Hi Lorri,

I cant say if it happens alot with diabetes on the whole but yes there seem to have been a few of us posting on here. A DR did say to me once that T1 and thyroid are both autoimmune. Having said that the posts arn't just from T1,s it seems to be both T1 and T2. I know that they are both to do with the endocrine system.

As for feeling positive I suppose I feel I have to or Its going to win. I have had alot of things in my life that haven't been ideal. But it made me thankful for what I have. I suppose I just count myself lucky. So many people are so much worse off.

Also I got diagnosed and seen to pretty quickly and not messed around. It must be horrid not knowing and being kept hanging!

We are all here to support you and to listen when you are fed up.

Big Hugs and positive vibes being sent.... :thumbup:
 
Hey Shop, You're are great thanks!. I have been overwhelmed with all the support so far :D . You are all such caring people.

It is horrible not knowing, I have decided to try the private route also, depends on how much it's gonna cost as I don't have private health care but if it gets me sorted quicker then it may just be worth it, we'll see?

I find I am worrying about every little twinge :( almost becoming paranoid as to what this is doing to me. Even to the point that I think my heart may be suffering? all this exercise, little food and low BMI.

BUT....I'm feeling the positive vibes being sent though :thumbup:

Thank you Shop. x

Lorri x
 
Lorri your Welcome :) Your LADA is that right? Is that the same as T1.5? I Have noticed there are a few of you on here who are being kept waiting for either a firm diagnosis ( T1, T2 or T1.5 or to see what treatment you need ?!?! Is LADA new or are they so under staffed that people are not getting seen quick enough? So I can certainly understand you going the private route.

Try not to worry as stress can raise blood sugars. I know sometimes easier said than done!!

You are right there are some real supportive people on here. It does make a difference. I have found it great just to find people who have the same thoughts etc. When you are surrounded by non diabetics you dont even try to discuss it.

Glad your feeling the vibes...xxx
 
Yes LADA and T1.5 are the same... there is another one called MODDY... Yes under active thyroid, also Addison's disease are all linked in with T1 due and autoimmune diseases, some T1's get clomped with all 3...

I have actually got slow onset T1, which really means that my T1 was picked up pretty early, being diagnosed at an early stage did cause me a lot of problems and a misdiagnoses...

You do eventually get used to being diabetic, it's harder when things are unsettled as this does make you think about it more.. Some tips..

You need to take ownership of it... It lives with you, and you don't live with it..

Routines, building routines such as taking your BG's just before you get out of bed in the morning etc.. After a while it becomes automatic and you do it without thinking about it... You can do the same with keeping diaries, reviewing your bg data etc...

It's worth the effort getting your head around carb counting and keeping up with it, yes it's time consuming but once you do get to know the carb amounts for foods you regularly eat, you then find that you only have to do the weighing in etc just to keep your eye in (I've got written out on a piece of paper, my main foods carb counts and stuck on the inside of the cupboard door in my kitchen, for quick reference if needed)

Never look back, as you can't undone the past, so if you get a bad BG yes work out the reasons why it might of happen (miss calculation, exercise not factored in etc) then move on... Also don't look to far ahead as all you do is worry...

I see that sometimes you do extra exercise to get your BG down, if this is happening regularly then it's like something needs changing, either food or within your medication regime...

A lot of my control now is all done sub-consciously as things like testing, calculating carbs etc are done automatically without a second thought... So doesn't impact onto my life as such I only really think about it when I faced with a new situation or a situation I haven't dealt with for a while, so got to think about the best way to manage my insulin pump to maintain control..
 
Thanks Jopar for the explaination.

Before coming on here I was only aware of T1 and T2. What you say about Autoimmune diseases. Just out of interest my situation is this...... Overactive thyroid about 12 yrs ago, treated with carbimazole for a year. Normal Thyroid function for a year. Another 4 mnths carbimazole then radio iodine treatment. Consequently then went underactive. Diagnosed T1 6 yrs ago. I developed blurred vision all of a sudden one morning, ridiculous thirst, going to loo. Weight loss particularly muscle wastage. ( I recognised this from being Underactive) Went to optition she sent me with letter to GP to cut story short was injecting insulin within 2 wks. Is the overactive thyroid also autoimmune?.................Sorry to babble just curious!
 
As to over active thyroid I'm not 100% sure what lays behind it to be honest..

The muscle wastage would be the diabetes, not under reactive thyroid as with this you put on weight.

It sounds as though the radio iodine treatment, might have knocked out too much of your thyroid, I know a friend of my had part of her thyroid surgically removed, and she was told that it was partly a guess to how much they needed to remove, and if they removed too much then she would have to go onto thyroxine treatment...

If this is the case then it's likely that your T1 isn't linked to your under active thyroids in a autoimmune sense..

My sub-clinical under active thyroid, was picked up about 5 years before my diabetes was diagnosed, but in my case my thyroid functions does go up and down though, which apparently isn't common!

Not all T1's get under active thyroids, my hubby's thyroid function is fine never had any problems, in our area we are lucky has thyroid function has always been checked as part of the standard diabetic bloods...
 
Hi Jopar,

Thanks for your reply.

I see now that I did a typo as I meant to say that I recognised the muscle wastage from being overactive not underactive and yes the at that point it was as a result of diabetes. ( does get a bit confusing sometimes :twisted: :? ) My thyroid has been known to go up and down since being on thyroxine and a change in dose has been required. Like you My 6 mnthly hosps always check my thyroid function ( apart from this one coming up, but it was done in January and was OK )

I admire your forward way of thinking and general attitude to diabetes and am determined to get to grips with it maybe with odd wobble along the way... :)
 
hi Simply.... yep hear ya 8) I've been living with it since 1998 and although I've learnt to live with it... I still find it to be a big thorn in the butt. It's no fun having to stab & jab day in day out. I've been on all the control methods and although I detested the idea of insulin at first, it's finally got me on better control... but not just for the sake of it, but because I have to due to not enough of my own insulin. So with diet and exercise it does work well for some time for most... but don't get too surprised if you need help down the track. I guess coming to this forum is one way to ease the burden for you. :)
 
Hi all.
Yep there is a link with underactive thyroidism and diabetes ! [impact on the bodys metabolisms and energy sources]
Diabetes will never give us a day off "or" a holiday from it . . . :thumbdown:
It is with us 24/7 ... I have learned to make it my best friend and no longer the enemy to fight with ... :P
It does take time to learn knowledge of it , plus of your own self , adapt a suitable new routine [eating n active lifestyle plans] for "both" of YOURSELF and the DIABETES.
It does get easier over time testing, meds insulin therapy, meal planning ahead etc... Found new routine establish around own life a gradual thing !
Taken myself over 2 yrs to finally RELAX and chill trusting the combinations of insulin therapy, testing regularly, my own
suitable meal and active life plans to control things better.
It HASNT been easy - but it IS do'able ... :)
I did take time to look for help here, ask questions, use the advice given from fantastic forum members,juggle things around,became more disciplined and was determind to get improvement on my blood sugar levels.
It IS a long hard at times 'journey' living with diabetes... Some good days n some not so good days eh .
We have to learn to 'balance' with it all :thumbup:
Something we never actually do until 'D' day !!!!
Hope this helps, do totally get where you coming from :wave:
Anna.x
 
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