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Diabetic maculopathy

Discussion in 'Ask A Question' started by Kayleighlouise, May 2, 2020.

  1. Kayleighlouise

    Kayleighlouise · Member

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    Hello I just want some advice really, I’ve been diabetic type 1 for 12 years now
    . I went for my eye test and got a letter that I am starting to show signs for diabetic maculopathy. I’ve never had any problems with my eyes before. They’ll see me again in 6 months. I’m super anxious and really scared. Thank you
     
  2. dancer

    dancer Type 1 · Well-Known Member

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    A couple of years ago I received a letter saying I had diabetic maculopathy, and was told I would receive an appointment to see an eye specialist. Months later I saw the specialist who told me that whatever the eye screening had picked up had disappeared. There has been no problem since.
    Fingers crossed, the same happens to you. Good luck.
     
  3. Grant_Vicat

    Grant_Vicat Don't have diabetes · Well-Known Member

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    Hi @Kayleighlouise These letters should never have been made standard. They must have caused incalculable stress over the years. I even had one 20 years ago from the Eye Screening Service that caused a referral to the biggest hospital in eastern England, claiming that there were new signs of deterioration. I went to the appointment and was told by the top ophthalmologist that what they had seen was scarring from between 1979 - 1983! I had another from them claiming I had never attended an appointment. As I carefully keep ALL medical paperwork, I threw it back at them and reminded them of this particular episode. Screening and checks are vital - I owe it to them that I can see what I'm typing very well. But they should be more careful with what they send out. I hope you steer clear of any deterioration.
     
  4. Dark Horse

    Dark Horse · Well-Known Member

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  5. Kayleighlouise

    Kayleighlouise · Member

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    Just wanted to update you all I have been told it’s got a lot better from my last eye test in January
    I have very good eye sight.
    They’ll see me again in 6 months
    But they aren’t concerned as it’s improved
     
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  6. zed

    zed · Active Member

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    Hi

    I am in a similar situation I got my letter yesterday. I feel really concerned. My blood sugars are controlled well but this wasn’t the case in my teens.

    Did they do anything different at this eye screening you went to ?

    Thanks
     
  7. lessci

    lessci Type 2 · Well-Known Member

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    I had similar at my screening in 2019, was seen at the hospital within 8 weeks for a follow up - the specialist took a quick look, their student a slightly longer one, and said "I don't know why they've refered you I can't see anything at all" but I'd much rater that the screening service erred on the side of caution, and I had a few worried weeks than they ignored something and I lost/damaged my sight. My sister has a chronic eye condition because a GP took a quick look at her eyes and prescribed antibotic eye drop for what was shingles on her optic nerve.
     
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