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Diabetic Retinopathy op

Trachet

Well-Known Member
Messages
1,564
Location
Portsmouth
Type of diabetes
Type 2
Treatment type
Insulin
Dislikes
Curry. Rude people.
Hi, I had a pre-op at my hospital yesterday. In January I found out I was suffering from a neovascular glaucoma, bought on by diabetic retinopathy and since then I have had numerous injections, laser treatment eye drops and surgery. At the moment I have no sight in my right eye. I have suffered depression for a long time. This, and the lack of communication from the Drs have caused me to plummet even lower.

3 weeks ago I received a letter saying that I have a pre-op on the 27 October. This was a shock as no one had told me I had to have another op. Also no one, when I phoned up was able to tell me what the op was for. This may sound odd, but it what I have come to expect this of the eye dept.

They had lost my file so I found myself having to tell them things like the reason my eyes are blood-shot was that I had Lucentis injections in both my eyes last week. (£1000 each - thank goodness for the NHS!) For the first time the consultant, who I'd never met before talked to me like a human being. He told me that I will be sedated so I will not know what's going on. The problem is he is operating on my good eye. After the surgery he explained that the eyelid will droop. This means that I will have very little vision. I will be kept in for a few hours and then they want me to go and be looked after with someone. I live alone.

He said that he wants to do the op on Friday. He said that the hospital would contact me to confirm, but I've not heard a thing. If it is Friday no one at the moment can look after me. A friend that said she would always look after me is having emergency surgery next week and is not up to it. My brother and sister-in-law who looked after me after my last op can't because I do not know the exact times of the op and when I will be released. They need to go to the crem as it's the anniversary of her Mum's death. (The crem is halfway between their house and the hospital).

I hate being dependant on people. All my other friends live in single bedroom flats, they are at work, have families or they are not the type of people you want to be around when you are not well. I am so tired of all this treatment. The numerous drops I have to take everyday, the not being able to see and feeling so lonely. Just tired of coping.
 
That sounds horrendous Trachet. Can you contact your Diabetes Nurse or clinic to see if they can offer some support? Is it a day procedure? Maybe they could keep you in if you are unable to look after yourself and don't have support at home?
 
Hi
That sounds horrendous Trachet. Can you contact your Diabetes Nurse or clinic to see if they can offer some support? Is it a day procedure? Maybe they could keep you in if you are unable to look after yourself and don't have support at home?
Hi, thanks for the idea. The problem is I do not know if it is definitely going ahead tomorrow, or times etc. I hate this waiting for news. Another moan to add to the list of complaints,:rolleyes:.
 
I would just state uncategorically ( politely :) ) tomorrow before the op that you live alone and cannot be discharged until you can see well enough to resume your normal caring for yourself duties at home. ( testing and injecting mainly )
 
I would just state uncategorically ( politely :) ) tomorrow before the op that you live alone and cannot be discharged until you can see well enough to resume your normal caring for yourself duties at home. ( testing and injecting mainly )
Thank you. My family and friends can't cope with 3 days notice!
 
Hi, had ops on both eyes. Was sedated as I finally found friends to accommodate me after the procedure in my totally blind state. The evening before I could only have half my insulin and the last I ate was 10pm. No tablets or insulin on the morning and m sugars were10. Hospital was pleased with that. When I mentioned it to a nurse friend today she was disgusted at the highness! Oh well 2 days after op and still having problems seeing. Back to hospital tomorrow for a check-up.
 
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